IsabellaTring

  • keznmel replied to the topic I feel so miserable! in the forum Newcomers 11 years, 5 months ago

    Hi Vicky – thank you so much for your message. reading what you wrote was like I was telling the story…just how I feel. I have also thought about using all of this in a positive way, maybe volunteering somewhere or studying maybe?! Who knows.

    I hope that Colin is OK at the moment – how are you doing?

    Take care xxx

  • keznmel replied to the topic I feel so miserable! in the forum Newcomers 11 years, 5 months ago

    Hiya Tom – thank you for your message. We have something else in common..In May 2007 I was diagnosed with Fibrosarcoma, cancer of the soft tissue and I finally went into remission in June 2010 ..as Melvin was diagnosed with MM in the December. I have to agree with you regarding the comparison of feelings – I felt more in control when I was the…[Read more]

  • keznmel replied to the topic Still angry in the forum Carers 11 years, 5 months ago

    Hi Lorna..

    My partner Melvin was diagnosed with a Solitary Plasmacytoma on 15th December 2010, so our journey started nearly two years ago. Reflecting back to those days, I felt scared and unsure of what it all meant, I remember that. It was almost like I went through some kind of grieving stage??! Things have really progressed for Melvin now…[Read more]

  • Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]

  • Thank you for your message Jean. Guilt is a very powerful emotion isn't it? I think it can be a visitor in most situations. Unfortunately, I over think absolutely everything too and scrutinize myself..'have I done enough?' etc..

    We have been referred to Counselling, although the last two appointments were cancelled due to the Counselor being…[Read more]

  • Hiya – it seems to be all go for you at the moment. Fingers crossed that they soon find you a match. Best wishes Kerry and Melvin x

  • Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]

  • Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]

  • keznmel replied to the topic Possible Myeloma ? in the forum Under 50s 11 years, 5 months ago

    Hello Angelina,

    I'm sorry that we meet this way. You do seem to have a lot to deal with at the moment and i appreciate what a very anxious time this is for you.

    You say that you have had the bone marrow biopsy – have you had the results now? As far as I am aware, this does give an accurate diagnosis of Myeloma. It is my 39 year old partner…[Read more]

  • Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

  • Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

  • Hello to you all…

    I have found myself reading so many of your posts on here for weeks, maybe months and it's lovely how much support you all give to each other. I now feel that I could do with some of your shared support – I'm finding things really tough! Here is our story…..

    My name is Kerry and am 37 years old tomorrow – it's my 39…[Read more]

  • Hello to you all…

    I have found myself reading so many of your posts on here for weeks, maybe months and it's lovely how much support you all give to each other. I now feel that I could do with some of your shared support – I'm finding things really tough! Here is our story…..

    My name is Kerry and am 37 years old tomorrow – it's my 39…[Read more]

  • keznmel replied to the topic Myeloma in the forum Newcomers 12 years, 1 month ago

    Hi Mavis…

    Thank you…I will ask for one of those x x

  • keznmel replied to the topic Newcomer in the forum Carers 12 years, 1 month ago

    Hi Zoe…

    It's tough isn't it?! Melvin, my partner is only 38, so young! How is Dan? He sounds like he is having a tough time of it.

    Melvin was diagnosed with a solitary plasmacytoma of the spine in December 2011 and had radiotherapy that helped. He is currently in hospital with multiple fractures..now on the ribs…and is being hit full…[Read more]

  • Thank you everyone for your lovely kind thoughts and words of encouragement. It's such a tough time for us.

    I hope this finds you all well. Please keep in touch x x x

  • Thank you Bridget,

    I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]

  • Hi Mavis…Sorry for late reply.

    Thank you for your message. I hope you are feeling well.
    Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]

  • Hi there…

    My name is Kerry and I'm 36 years old. My partner of 16 years, Melvin was diagnosed with Multiple Myeloma in December 2012. In December 2010 he had a plasmacytoma of the l4 vertabrae. He is currently in hospital with pathological fractures to the ribs and a blood clot on the lung and is in terrible pain. We are waiting to hear what…[Read more]