Thank you everyone who has taken time to reply. I've just got back from visiting mum in hospital, she seems to be enjoying the rest and being waited on! There's a sickness bug going round the hospital resulting in wards getting closed, typical just as they say her kidneys are improving, just hoping she doesn't pick it up.
Rachel, thanks for your advice and info, I had read your discussions before and thought that we were both in a similar position with our mum's being the same age too. I'll definitely keep an eye out for info days, we're in Northumberland.
Jo, Jean and Peter, thanks to all of you for your words of advice and encouragement. I will pass all of this on to my mum and I'm sure she will appreciate it.
So much for this being a 'rare' disease – my husband has learned of 2 other relatives of colleagues also recently diagnosed.
Best wishes,
Emma.
