Hi Min,
Am very happy to answer your questions. Would you rather email me direct?
My email is in one of the posts ; evayouren@lineone.net.
Best,
Eva

Hi Nigel,
Eva here from Scotland. I think some of the older drugs are a bit cheaper: for example, Thal is cheaper than Rev. I'm sure that Nice will fight to save money. In the end treatments become available when they've been used in other countries for ages and it becomes obvious that we are very backward in funding them.
One of my neighbours…[Read more]

Dear Dai,
I'm sorry about your news. I do feel it's premature to be re-evaluating your prognosis. There are so many patterns of response and relapse. I don't know how many myeloma blogs and case histories you've read. There are people who actually 'fail' an ASCT and then go on to live ten years. Admittedly, they respond to other myeloma drugs, on…[Read more]

Dear Sylvia,
A quick question. I was interested that your onc will give you Velcade via injection. Which part of the UK are you in?
I'm interested in subcataneous delivery of velcade because whenever I've had a cannula put in it has always been very painful. The pain has persisted for the entire time I've had the cannula in.
Best…[Read more]

Hi David,
My paraproteins were zero before the SCT. Afterwards they went up to 3G/L which was considered quite alarming by my onc. They stayed at that level for two months and then began a decline over the next three months to zero. We don't know what caused the blip. I had a very bad fall in the week after I came home from the SCT. Some people…[Read more]

Dear Shirley,
Wishing you a speedy recovery,
Eva

Dear David,
By the way, I'm hopeless on a bicycle! I only learned to cycle when I was in my thirties. Today was the first day when I tried to run again after the cold spell. I'm in the north of Scotland and I ran on a country path. I managed to find a track that wasn't iced over! Hope you and your wife have a great time on the cycles.
Eva

Ron I agree about the migraines. I've taken some aspirin while not on any myeloma treatment and I've found that if taken very early on in a migraine attack, it can be surprisingly effective.
Eva

Ron,
You'd have to ask the original physician.

Aspirin has been in the news a lot. There are suggestions that it might lower the incidence of certain cancers. You could google that.

If you want a speculative comment about why someone might be told to avoid aspirin: well, it might be linked to the blood thinning properties of aspirin. This…[Read more]

Dear Keith,
I seem to be in a simliar position to you. I haven't had a bone marrow test yet for absolute confirmation. Remember that for many of us this will be a journey( and sometimes a long one) rather than an event.
Thinking of you,
Eva

Dear Gill,
I haven't had any Velcade yet though I may need to do so soon. My comments are only based on my reading of various trials here and overseas and of other peoples' blogs.
One of the things that interests me is that Velcade is just beginning to be administered subcutaneously( under the skin, injections), instead of via IV. One trial…[Read more]

Dear Ron,
A book you might find useful is 'Journey beyond Diagnosis' by Greg Pacini. You can order it via Amazon.
Eva

Dear Ron,
I hope your wife gets the appropriate meds for the nausea. Until this happens, she's going to feel very anxious as she will feel out of sorts all the time. A diagnosis of cancer is always a shock. One of the things that each person has to decide is what their relationship is going to be with knowledge about their illness. Some people…[Read more]

By the way, my number is 0186283 2148.
Eva

Hi Jonny,
This is Eva. I live in Scotland and was diagnosed two and a half years ago. I've been on a very interesting journey with haematologists. I would prefer to have a dialogue with you about this. I would be prepared to talk on the phone and call you back as I have free phone calls. Otherwise, my email is evayouren@lineone.net.
Best…[Read more]

Dear Bridget,
Just a short note to let you know I'm thinking of you. Sometimes Velcade doesn't work on its own but is ok with combinations of other drugs. I can see that it would seem wise to try Revlimid, but I imagine you might be able to come back to Velcade with something else or to try drugs that are in the same family as Velcade in the…[Read more]