Hi Min – like Bridget I love the fact that you grassed him up to the day unit. Wonderful. How about 'Don't mess with me sunshine – you know I am always right' and decorate it with lots of green grass as a reminder!

I wish Peter well and it sounds like wonderful service from the hospital – when they sent the plasterer over did he do the…[Read more]

Good to hear from you again Vicky and welcome to the site.

David, I am really impressed with your happiness levels – I wonder how they will perform as time goes on! Yes you are a positive person and I know it is a must when dealing with myeloma and all that it throws at us.

You are probably in hospital at the right time to escape the snow…[Read more]

Hello Gill – no I have not heard of this trial and from what you say it doesn't sound as though your doctor has given you very much information on it. Did he tell you the results of your SCT? Does he want to give you this as a maintenance drug after your SCT? If you haven't had that information then I think it makes your decision difficult…[Read more]

Dear Bridget – phew, I feel exhausted just reading your story let alone experiencing it. If I had experienced the same as you my fingers would be bashing the keyboard to the hospital CEO – as I have grown older my Britishness has faded when it comes to bad hospital treatment, and what you have experienced is shocking. Trouble is when you are…[Read more]

Dear Elizabeth – I have had two balloon kyphoplasty operations both of which got rid of the awful pain but did not restore the 4" in height that I lost. I'd rather be without the pain than the height so do go for it if offered.

Best wishes, Gaye x

Hi David – yes it sounds very up market but just as you deserve. You will soon be reeking of sweet corn once you get your stem cells back. It's sickly sweet but thankfully you won't smell it – but everybody else will!

Good luck and I look forward to further musings from Ward 9 – to be continued …………….

Love, Gaye

Tina – Thank you so much for your reply and I will let my consultant know. I do hope that Patrick's paraproteins remain good for as long as possible. I will get back to you when I know more about the Pomalidomide.

My love to you both. Gaye xx

Dear Roberta – I too am sorry that you are in this position and agree 100% with what Bridget has written. It's a rotten position to be in but sadly we know all too well that some families respond differently to how we hope and expect. The Mac nurse may well be a good start so do give them a try. If she can't help she will surely know somebody…[Read more]

Hello Tina – as you know I was being considered for Bendamustine and Pomalidomide on clinical trials as Revlimid is now no longer working. Bendamustine has now been ruled out because of my low platelet count. I know that Patrick has been offered Pomalidomide under special circumstances. On clinical trial it won't be available until next Easter…[Read more]

David, I suspect that he didn't get into any remission, either partial or complete, and that's why they are starting him on Velcade. It's not often that I have heard that happen. I do wish Patrick and his family well.

Gaye z

No Nicki please continue with your name – it just made laugh when I saw it and brought back memories!

I'm sorry you are having a low day. I'm afraid it's one of those things that goes with myeloma from time to time but they do pass and the good ones are more frequent and much happier. Hang on in there Nicki.
Love, Gaye x

Oh dear, I have just done it twice and and you have lied to me David so that you can have some company. Well, I am happy to be in this exclusive club of looking completely daft and long may it continue ………..! Thank you.
Gaye x

Dear Keith – so sorry to hear about your back and rib pain but at least you are being seen quickly for your skeletal survey to find out what's happening. I shall be wishing all positive things for you and I am sure you will keep us up to date with the results.

Fingers crossed and keep thinking those positive thoughts.

Love, Gaye x

Thank you for your kind words Dai. I'm taking things easy and catching up on all my favourite programmes on the iPlayer!

I hope that all is well with you.
Love, Gaye x

Thank you so much Bridget. The joys of a good night's sleep, gorgeous shower and hair wash cannot be overstated – wonderful! I read your post about michellin woman. It really is a bummer when this happens. Have they told you when your SCT is going to happen? That certainly should shake off a few kilos. In saying keep up those wonderful…[Read more]

Welcome to both Gill and Ian and looking forward to seeing further additions in the Rogues Gallery!8-)

Love, Gaye x

I think it says you have an extensive vocabulary Debs!
Gaye x