Dear Ann

Like you and Eddie Stephen and I were soul mates, best friends, joined at the hip as the kids used to say. Stephen had had to stop work quite a while before he died. He was a carpenter and builder but of course the mm took its toll and he could not do the physical work that it entailed. I retired a year early so I could stay at home…[Read more]

D ear Sue

I am sorry for my late message but I don't often come on here. I am glad that Michael's funeral went well. I found it quite difficult after Stephen's funeral once it had all settled down I think the reality hit me. Nearly 6 months later I still miss him like crazy but I suppose I have settled into my own routine.

I have decided…[Read more]

Dear Grayham

This is not a club that anybody wants to join but if you have mm it is the best place in the world to get support and friendship.

The treatment for mm and the drugs that are coming on line are getting better and better and I cannot wait to see mm getting kicked into touch once and for all. Too late for my husband who died aged…[Read more]

A huge Welcome Home from me Gill x

Hi Sue I am so pleased that you are both getting some help at last your Mac nurse sounds wonderful.

It is good that you may be able to take a break from work. With Michaels DLA allowance and you not working for a while it may give you a chance to see if you could manage on semi retirement money and Michael's benefits.

I retired at 59…[Read more]

Has anybody heard from Sue? I have been thinking of her and wondered how Michael is Gill xx

Hi Heather

One more tip take a pad and pen when you visit the consultant. Even with 2 of you listening carfully it is easy to not remember it all

Godd Luck Gill

I suffered from cramp when I started on beta blockers . My cardiologist recommended I take Co Enzyme Q10 200mg at night
When Stephen started getting cramp because of his mm we checked with his oncologist and Stephen was told it was OK to use them.

They are a natural food supplement not a drug and take a couple of days to kick in. Min…[Read more]

Dear Sue

Has anybody suggested that Michael go in to your local hospice for some respite care? It can be a chance for you to re-charge your batteries and catch up with some much needed sleep, knowing that Michael is being looked after 24/7.

Our local hospice was marvelous. They had Stephen's pain under control straight away and they are very…[Read more]

Shanks fer dat. I followed all instructions please wake me when overhang? hang something? recedes into just a thumping head and an unquenchable thirst. Oh thats better more cuervo to quench my thirst xxxxxxxxxxx

PS I think the quote is "Here's Looking at You Kid" Come on film buffs Casablanca?????? Gill xxx

My house is at 36 Bridge Road BR5 2BH Telephone 01689 821467 Any body is welcome unless they have evil ideas In which case my Guard Dogs will see you off 2 soppy little Westies (but don't tell anyone. Let's pretend they are killer huge dogs rather than both under 12 inches high and want you to love them to death

Stephen MADE me promise…[Read more]

Dear Helen

Don't ever feel "mean" posting good news. My Darling Stephen died in September. He was one of the unlucky ones.

It is great to hear of people doing well, and makes the possibility of seeing this horrid illness kicked into touch for everybody seem a little closer.

Good luck and good health Love from Gill xx

Thank you

This site is a life line to so many and a place to grieve. Thanks to all the team

Gill

No magic wand from here I am afraid. What did help Stephen a little was keeping extremities extremely warm (excuse silly choice of words)

Feet soed in warm water,loose bedsocks etc.

I wish you both well Gill xx

I have calmed down now but just wondering how they got on here Will we have a cure next? Snake oil methinks;-)

Gill xx

PS to Tom go into general and look for the post headed passports

Thanks for your thoughts Jean.

David I forgot that the site has moderators. I know that when I first joined I read that we are pretty much left to monitor ourselves and people generally only use "indoor language" with an occasional asterisk thown in.

But I was fuming when I saw this advert this morning

Love from Gill xx