Hi Sue

The first thing Stephen was told when he became ill was that pain management is the highest priority. Do get on to Michael's medical team and ask them to re-assess his pain control drugs.

It cannot change much for you or Michael but I am sure that you know everybody on here is routing for you both.

Love from Gill xx

Do check with the doctor but Stephen used Corsodyl toothpaste and mouthwash during treatment (not good to use it on a long term basis but it really helps)

He managed to get through all treatment with not one ulcer or mouth problem.

Good luck from Gill xx

All I can do is wish you tremendous luck with whatever you decide. As Nettie said this is such an individual illness, and with that comes very individual decisions

My husband only got 16 months remission with his SCT and the second did not take. He regretted that he went for the second but said that hindsight is a wonderful science and we both…[Read more]

Hi Kes

mm is a complete and random illness. Some people live for umpteen years and others (like my husband) don't get that long.

Stephen and I decided just after he was diagnosed that if we did not continue our lives "normally" whatever that is he might just as well die there and then

We made no long term plans ie well in 8 years time…[Read more]

So pleased to hear your news

Tip for sore mouth Corsodyl you can get mouthwash and if she can bare cleaning her teeth the toothpaste helps a great deal

Keep the good news coming Gillx

Hi Colin

I have no idea what the phrases mean but I do know that when Stephen (husband) asked the nursing staff to explain they did.

Stephen made it quite clear from the start that he wanted to know everything. He was a great deal braver than me

God luck and good health Gill x

Thank you all for your kind messages and thoughts.

I am learning to start getting into my own routine and not "our routine". I walk the dogs, clean the house (lazily :-)and shop daily so I have human contact I even go out for lunch once a week. I am trying to find out about part time courses one to brush up my French and one to make my stick…[Read more]

I hope your dad's funeral is a great celebration of his life. Good luck and keep strong for your dad

Love from Gill

Dear Rachel

I don't very often look at the under 50s site but having done so tonight I would like to add my sincere sympathy to you for your loss. mm is so unforgiving and spiteful. My husband died on the 11th September He was 57 and considered young to die from mm But being wiped out at Paul's age is unbelievable.

Much love Gill xxx

Thank you for that Dai

It was very much one that both Stephen and I loved It maybe explains my smart red hat and purple pashmina. I still have a purple dress ordered for his funeral but unpacked and unworn as it seemed a bit over the top. (we were both a bit non conformist but there are certain things that one does not do and dresses are not my…[Read more]

As somebody who lost the light of their life in September I send you my heartfelt sympathy
Gil xxx

Dearest Dai

Ihave just re-read your post regarding the Quakers It sounds lovely Maybe not for me just now but a great possibility in the Future.

Thank you for sharing it.

Best love Gill xx

Dear GAil and Sue

I am sorry I have not noticed your posts. I have been so consumed with Stephen's turn for the worst and death that I have not really been with it at all.

I do hope you are both coping and managing yo come to terms with the loss.

Kind regards Gill