Hi Jennifer

I am sorry you have not had more answers to your post I think it maybe because you have asked questions that us laymen cannot answer. I am sure that the specialist team will be able to help you regarding all your questions and you will certainly get support from the motly crew (me included) that post on here.

Kind regards Gill

Thank you all so much for your kind thoughts and wishes

We are changing [b]nothing[/b]! We are ignorinig the fact that Stephen cannot get out of a chair without crutches and me heaving him up and almost falling over (we laugh! What a pair we have become)

We are trying the best we can to keep life as it was and is and will be for as long as…[Read more]

We are now on the "home run". Stephen's oncologist was shocked at how quickly Stephen has deteriorated. Long consultation tonight meant that Stephen quietly put his foot down with a firm hand (just one of our family's silly sayings)

He had been offered E-hap/Dee hap (I am sure I have spelt them wrongly and/or a very high dose of Bendomustine.…[Read more]

Hi David

I have not logged on here much lately as Stephen is so poorly and needing a lot of care.

I am so sorry to hear your news.

What a bitch this life can be.

Love and kind thoughts to you Gillxxx

I know my spelling will not be good but sore mouth = corsodyl tooth paste and mouthwash

2 Stem cell transplants and Stephen got one very small mouth ulcer. Helped by Rinstead pastilles.

The old remedies are sometimest the best.

Good luck and good health to all Gill xx

Stephen has had mm since 2008 he was diagnosed at 53 Recently he had symtptoms of brain cancer and his team looked and looked again (I love the team that work on his behalf)

What they have found are 2 little blighters in the base of his skull. Not good but nott quite as bad as in the brain

Now your mum has been diagnosed she will get the…[Read more]

So pleased that your mum is feeling better.

So lovely to hear that some are doing well

Kind regards Gillxxx

Dear Lynne

Sorry and Thank You

I am so sorry that John has gone but thank you so much for your advice. Stephen is on Dex at the moment and can be horrid. Sometimes I bite and sometimes I walk away.

What is hard is that he has always been a laid back pussy cat and now can be a growly cat.

We all need to treat every day as special. Any…[Read more]

Love the quote Dai thank you

Thanks Jean

You should see the pair of us trying to get out of the flippin jag what with Stephen's mm and me just beng too old for such frippary it is like trying to get up off the floor in public and keep a bit of dignity:-D

Hi Everybody

The oncologist looked again and thought it was in the brain (We had a friend who had lung cancer and it went to her brain It was aweful but quick so Stephen's prognosis looked even worse). They scanned Stephen again MRI, PET anything else that gave a chance of having another look.

All hail the wizard of oz. We went to see him…[Read more]

Your lovely posts have made me cry in the nicest way. Thank you

Stephen is enjoying the olymics and sleeping through most of it 🙂

His specialist phoned this morning (11 am on a Sunday how dedicated is that man) to say he had spoken to the radiotherapathy wizard last night and they think between them they can ease Stephen's pain.

That…[Read more]

I am not here much at the moment and did not know how near the end it was I am so sorry to hear of your loss

Gillxx

I cannot speak highly enough about Kings (Stephen had both his SCTs in there) but what a hassle for Slim to have to keep doing that journey.

We are lucky in that Stephen sees his consultant at a small local hospital near us an there are two chemo nurses there who we speak to. Stephen gets "discussed" with Prof Skye at Kings when the doctors…[Read more]

I am so, so sorry

Gill

What lovely posts

I agree with Dai Bridget will not be resting on her laurels but making friends and welcoming everybody. She will probably make people some very angel like brocho hats.

Thank you so much Bridget for your support, words of wisdom advice and, sometimes, just some silly fun.

With much love and sadness from Gill xxxx

I have my fingers crossed for you both, and hope Howard picks up soon. Have the hosital offered him any build up drinks? You can buy them from the pharmacy as a food substitute.

Kind regards Gill