Gill replied to the topic Some good news in the forum General 12 years, 4 months ago
Lovely to hear good news Good luck Gill
Gill replied to the topic Holiday Insurance in the forum Off topic 12 years, 4 months ago
As David said things get lost so I will put in my tuppance worth again. We used MIA the first time we went away after Stephen was diagnosed. Then we discovered we were covered for travel on our health insurance policy. So we had paid twice for the first trip >:-(
Do check your existing policies before you pay out.
Bon Voyage Gill x
Gill replied to the topic advice on when to go back to work after SCT in the forum Newcomers 12 years, 4 months ago
Tina my advice would be [b]Don't[/b]. If you are desperate for money you may not have a choice, but if you can trim down your living costs then just cocentrate on getting better.
It's my husband that has mm I signed off work with stress when he was first diagnosed as he was so ill then. After an exemplary record of attendance and decades of…[Read more]
Gill replied to the topic restless feet in the forum Side-effects 12 years, 5 months ago
Have you looked up neuropathy That can be caused by treatment. Tingly feet and hands and aches
Gill
Gill replied to the topic PLATELETS in the forum Treatment 12 years, 5 months ago
I am so pleased that Slim is a little better . Stephen had platelets too it seemed to be the norm. I know that I get boring with my home spun ideas (couldn't spell phylosophy) but food is best served very little and often. Served on a tea plate it gives the illusion of tiny and doesn't overwhelm I am sure that Slim will go from strength to…[Read more]
Gill replied to the topic And yet another 3 months! in the forum General 12 years, 5 months ago
Well done you. Don't forget to check your existing insurance policies (we found Stephen was covered for travel without any extra premium) If not try MIA they covered Stephen before we looked at our existing policy :-/
Gill
Gill replied to the topic Back home in the forum General 12 years, 5 months ago
Here's hoping that the rev and the dreaded dex do the trick
Dex for breakfast? I think I would rather stick to my toast and chunky marmalade washed down with a strong cup of coffee
Love from Gill
Gill replied to the topic Good News X Two in the forum General 12 years, 5 months ago
So pleased to hear your news Good luck yo you both
Love from Gill xxx
Gill started the topic Maybe a Good Idea???. in the forum Off topic 12 years, 5 months ago
Stephen (my Husband) has had 2 transplants and is now on Bendomustine with a hope that if it fails Pomlidomide may help.
He has had some (not huge) reactions to all the drugs that have come with this latest stage of treatment (some of the drugs are old horrid friends eg Dex)and we both found ourselves wondering what the affects were last time.…[Read more]
Gill replied to the topic Second SCT in the forum Treatment 12 years, 5 months ago
I wish you both huge luck I know well the journey to Kings I went from Orpington to Denmark Hill and trudged down that blooming hill to Kings with all the "tempting goodies" I could think of. Trudging back was lighter with dirty washing, mainly PJ bottoms (too much information.)
Stephen had both SCTs in Kings a great,wonderful and caring place.…[Read more]
Gill replied to the topic Charity Chosen in the forum Under 50s 12 years, 5 months ago
Hi Avis,
Firstly congratulations on being in remission and long may it last. Secondly thank you so much for managing to get your company to sponsor mm uk. What a great achievment. I hope you keep in touch
Kind regards Gill
Gill replied to the topic SCT Colin in the forum Treatment 12 years, 5 months ago
Hi Vicki
Stephen had 2 SCTs the first gave him 16 months. He sailed through it and felt quite guilty that others seemed to suffer. His second failed and he then was sorry that he had "wasted" some of the time he had left by being in hospital and feeling a bit weak. Hindsight is a wonderful thing:-| Obviously if the second SCT had worked he…[Read more]
Gill replied to the topic Brocho – Bridget Rochfort in the forum General 12 years, 5 months ago
Dear Siobhan
Although I spoke to your mum on the phone I never met her in person.
You have thanked people on here for being her friend but believe me she was a true friend to all of us and will be sadly missed.
Like others I have cried buckets since hearing of your mum's death. She was always one of the first to greet you when you…[Read more]
Gill replied to the topic Bridget in the forum Off topic 12 years, 5 months ago
I am shocked and saddened to hear of Bridget's death. She was a friend to all of us, an avid poster and will be sadly missed.
We maybe saying goodbye to her but I am sure that we will always remember her. I know that she was an avid knitter of headgear and crotchet She made hats for many people on here for when their hair was not their…[Read more]
Gill replied to the topic Bridget in the forum Off topic 12 years, 5 months ago
Dear Dai
Thank you for your reply. Stephen had shingles a little while ago and was in great pain so I am sorry to hear that Bridget is suffering with it and having it effect your eyes must be horrendous. When Stephen was told by one of his chemo nurses that some people get it in their eyes he felt very lucky that it was only down one leg and…[Read more]
Gill started the topic Bridget. in the forum Off topic 12 years, 5 months ago
I just wondered if anyone has heard from Bridget recently. I know she wasn't very well and it seems ages since she posted
Gill
Gill replied to the topic Revlimid Failed in the forum Treatment 12 years, 6 months ago
Thanks and apologies
Thank you all for your good wishes and sorry for my bad language.
I very rarely use those words (never anything worse) but when angry enough well— you saw the sort of thing I burst out with and believe me I am so so angry. This illness is such a horrid insidious thing. It does bring out anger.
Thank you to the…[Read more]
Gill replied to the topic 18months later in the forum End of Life and Grief 12 years, 6 months ago
It sounds as though you are moving on Roz.
Good luck for the future
Gill x
Gill started the topic Revlimid Failed. in the forum Treatment 12 years, 6 months ago
Well what can I say? the 50% chance of surving the rest of this year has now reduced to £30%.
Not much more to try. Stephen went to see the oncologist on his own last night for the first time ever (I have always gone with him) He has become very bad tempered and refused to let me go with him.
I suppose I can understand the bad temper (and…[Read more]
Gill replied to the topic HERE WE GO AGAIN !! in the forum Treatment 12 years, 6 months ago
I have not been on here for a while as we were away and Stephen (mm person ) was not very well.
I was concerned not to see Bridget on here.
I do hope you are feeling a little better Bridget. Do post if you can and I think I speak for all of us when I say we are thinking of you.
Much love Gill xxxx