Gill replied to the topic Shingles in the forum General 12 years, 9 months ago
My husband (Stephen was diagnosed in Nov 2008 aged 53 ) has shingles at the moment. He is in agony. It attacks the nerve endings and causes a huge amount of pain. He is sore but he says he can put up with that but the pain is v.v. Bad (this from a man with several collapsed vertebrae who has to rely on walking aids to leave the house and does not…[Read more]
Gill replied to the topic Scared…everything is happening! in the forum Newcomers 12 years, 9 months ago
Sorry to see you here but a huge welcome
Gill x
Gill replied to the topic week of firsts in the forum End of Life and Grief 12 years, 9 months ago
What a lovely post Min. So pleased you had a good time. 3 Labs? Goodness our 2 Westies are hard enough You must be either a glutton for punishment or a dog whisperer
love from Gill xx
Gill replied to the topic New to Forum in the forum Newcomers 12 years, 9 months ago
Hi Craig and Etta
I have not been on for a while and am just catching up with posts. I second everything that others have said regarding benefit and would add that Etta will also be entitled to a blue badge for parking. thus saving some money
good luck Gill
Gill replied to the topic snow or not to snow?? in the forum Off topic 12 years, 10 months ago
here in Orpington we woke up to a tiny dusting on cars, roofs etc but it had gone by about 9 it's bloomin cold though Gill
PS Orpington is Kent but not that far from London
Gill replied to the topic MM and AL amyloidosis in the forum Related conditions 12 years, 10 months ago
Hi Cinzia
Every person's experience of SCT seems different My husband was diagnosed in 2008 He sailed through his first SCT and felt quite guilty as yes some people do seem to go through the mill. Unfortunately his second SCT did not take but he is on revlimid and doing well.
I do hope everything goes well for youu Good luck and keep us all…[Read more]
Gill started the topic Good News Good News. in the forum Treatment 12 years, 10 months ago
We went to the hospital at the end of last week to see Stephen's heamatologist/oncologist. The couple that came out from the Drs office just before Stephen's appointment looked shell shocked. Although the reception desk is only about 10 paces from the Doctors office they looked completely lost and a nurse had to guide them. Obviously my heart went…[Read more]
Gill replied to the topic Travel insurance in the forum General 12 years, 10 months ago
Check the policie s you already have We used MIA the first time we went away after my husband's diagnosis and then discovered he was covered on our health policy
Gill
Gill started the topic Treatment another good. in the forum Treatment 12 years, 10 months ago
Hi All
I haven't been on for a while because, although I don't need to only post when everything is goodness and light, I felt a bit disloyal posting about Stephen being so horrid.
His prognosis is not good and we know that if next Christmas comes we will feel lucky. He has just finished his 3rd cycle of revlimid and is on dexamethasone. We…[Read more]
Gill replied to the topic About As Off Topic As You Can Get 4 in the forum Off topic 12 years, 10 months ago
Eatery (it's been ages since supper)
Gill replied to the topic REMISSION. in the forum General 12 years, 10 months ago
Fantastic news. Remission is a wonderful word to hear. As for SCT I believe that everyone is very different. Stephen sailed through his first SCT and felt quite guilty as others felt awful, But he was one of the unlucky ones and got very little remission from it
Fingers crossed and the best of luck
Gill replied to the topic Is it back? in the forum General 12 years, 10 months ago
Fingers crossed for John I know that in Stephen's case his blood does not give a very bad pp reading but his "boney" damage (spine, hip rib and sternum) tells all.
Good luck gill
Gill replied to the topic How do you start to say good bye?? in the forum End of Life and Grief 12 years, 10 months ago
I have no idea what to say to you but just want you to know that my thoughts and prayers are with you.
MM is a beast of a thing for anybody but for your loved one at his age it is even more unfair
Gill
Gill replied to the topic another newcomer! in the forum Newcomers 12 years, 12 months ago
not been on for a while as in the deepest of France but how wonderful to log on and hear good newa Well done Carol xxx
I will catch up with all posts when I can Here we are stuck in the last centuary lovely people but nobody is surprised when the water or electricity goes off.
And no we didn't buy in this area because it is quaint the…[Read more]
Gill replied to the topic revlimid cyclophosphamide dexamethasone in the forum Treatment 13 years ago
Hi All
I thought I would post an update on how Stephen is faring on the RCD regime. He seems to be coping with this combo quite well. His pp levels have dropped and the "dexatude" is nowhere near the level it was when he was on a higher dose. It was such a shock to come accross "dexatude" as you could not ever ever meet a more laid back and…[Read more]
Gill replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
I'm so hooked on this silly game I end up like "billy no mates" and play by myself
I did think of putting ave and ave nots:-) but that is silly (even for me so I will go with
VOLATILE
ILE
Gill replied to the topic Where's Dai? in the forum Off topic 13 years ago
Second from the right????
Gill replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
I have heard of the supplement you mention Min I wish I had remembered it before I got this heavy cold. Stephen (MM person) sniffed twice sneezed once gave whatever it was to me and I got the horrrid horrid cold (so pleased it wasn't him that got it)
I digress think of a word ??
ARCHITRAVE
for the next leaves
AVE
Gill replied to the topic Not New to the Forum in the forum General 13 years ago
OK I am not an mm person, but married to one. He got a "bit of a cold" I was petrified that it would turn in to all the dreaded stuff that goes with mm.
Result ?? He's fine (thank goodness) I have the mother of all colds.
Sometimes life gives one the ablity to moan and moan and moan (gues what I'm doing) HEY I have MAN FLUE and I am…[Read more]
Gill replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 13 years ago
Are we late birds or insomniacs
I am not sure if places are allowed (told you all I had no idea of any rules)
But I will go for an island that for years I thought was in the Channel (my family settled on Jersey years ago and I STILL have no idea of the geographical layout.
OK I now know that this island is somewehere north:-) (OK very…[Read more]