brocho replied to the topic Mum back in hospital after a nice holiday in the forum General 15 years, 1 month ago
Hi Michelle so sorry to hear mum is not well hopefully the anti-biotics will get things sorted quickly When I had pneumonia last year I was very ill but within a couple of days of being on iv anti-biotics I started to pick up very quickly Stubborness is a good as well as bad trait by the way , its what keeps you fighting and your mum is a…[Read more]
Min replied to the topic NICE in the forum Treatment 15 years, 1 month ago
Nice to see that they will be feeling uncomfortable.. If they are to be made redundant it will be Nice to see them wrigglng uncomfortably at decisions made by some faceless beaurocrat! Give them a taste of what its like to have life changing decisions over which they will have no control. Mmm what goes around comes around!
Min
Min replied to the topic Test prior to SCT in the forum Treatment 15 years, 1 month ago
Hi David
Peter had all of them on the same day except for urine collection. He never had one of those even though he had light chain mm.
What a shame you have to drag yourself there for several days in a row. But best of luck with them all.
Min
brocho replied to the topic NICE in the forum Treatment 15 years, 1 month ago
Good morning Gaye I just finished reading about NICE being stripped of of its power to refuse or sanction drugs too Lets hope they dont replace one system with another!!Am I right in thinking gps will now decide? Either way its going in the right direction As Tom says onwards and upwards!!x
brocho replied to the topic Our Photo's in the forum General 15 years, 1 month ago
What lovely grandchildren you have Tom they must give you so much joy and they look like real characters too !!My eldest grandson is 10 going on 100 I reckon puts me in my place anyway !! x
brocho replied to the topic Our Photo's in the forum General 15 years, 1 month ago
Lovely pic Tom good to see the infamous crocs and socks at last !!Your grandson is a little cutie Hope you and the crisps had a good weekend love Bridget
Min replied to the topic Michael suffers with this in the forum Side-effects 15 years, 1 month ago
Hi Jim
Peter starts on velcade on Tuesday next week. His consultant warned him about PN and said to let them know if he has any tingling at all and they will lower the dose and or stop the treatment. How long ago were you on it? What is Acetyl L-Carnitine and Alpha Lipoic acid. do you take it when you have pn or to prevent it?
Anyone got any…[Read more]
brocho replied to the topic Access to Pomalidomide and Bendamustine in the forum Treatment 15 years, 1 month ago
Good morning Gaye I do think despite my grumbles about the beaurocracy that we are very lucky to have a health service like ours It makes me weep when I read of countries like america where there are thousands who can access even the basic care. We are especially well cared for in cancer treatment I think ,the stumbling blocks seem to be in…[Read more]
brocho replied to the topic Mums send off in the forum General 15 years, 1 month ago
Dear Lee I am sure your mum is so proud of you not only for her send off but for the love and care you gave her all your life . Cherish your memories ,she will always be with you in your heart love Bridget x
brocho replied to the topic Scenes from where we live in the forum General 15 years, 1 month ago
I think another category for photos would be a great idea x
brocho replied to the topic Access to Pomalidomide and Bendamustine in the forum Treatment 15 years, 1 month ago
Dear Gaye poor you what a day still you made sure you got value for your money with the nhs !!haha Take it easy today no dancing or jogging for you well unless you can remember the handjive that is love Bridget x
brocho replied to the topic Access to Pomalidomide and Bendamustine in the forum Treatment 15 years, 1 month ago
Dear Gaye what an awful position to be in I think you summed it up just right –a pox to myeloma You are in my thoughts and I have fingers and toes crossed for you .Tina I am sure you are Patricks lifesaver and what a great team you must be Lots of love to both . sorry not very eloquent its come -down -dex -day !!
brocho replied to the topic Our Photo's in the forum General 15 years, 1 month ago
Well I was going to try and post a little pic but the house gremlin has hidden my camera Mind you Lee I think you are too good for me Lovely pic x
Min started the topic one for the beta team In case you dont know!. in the forum General 15 years, 1 month ago
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W ell blow me having got home and looked this up I see that the bold the italics and the underline button are obviously working but I cannot see this as I type or even after I post. So its not until you refresh or something that you see the bold etc…Sorry about that and please ignore my prattling on. Do I fell like Ive got egg on my face…[Read more]
brocho replied to the topic Scenes from where we live in the forum General 15 years, 1 month ago
All these lovely pics of glorious views are really making me green with envy !!Gaye I can see why yours cheers you up it looks very serene Well I did think about taking a pic but I really dont think the view of my council estate would inspire anyone still its home x
brocho replied to the topic Scenes from where we live in the forum General 15 years, 1 month ago
Thankyou Lee the pics are lovely How lucky you are to live somewhere that beautiful , made me quite jealous , mind you I wouldnt fancy running into the evil goose !! love Bridgetx
Min replied to the topic Ice cubes in the forum Treatment 15 years, 1 month ago
Hi David,
the way it was explained to me was that the tissue in the lining of the mouth is renewing itself more frequently and faster than the other cells in the body, and that the ice was a way of protecting those cells. but you have certainly given me something to think about… Having said that Peter had his harvest at a time when he was off…[Read more]
Min replied to the topic Scenes from where we live in the forum General 15 years, 1 month ago
Lee that pic makes me all soppy cos Iived in Lincoln mostly Swinderby for about 10 years when my husband was in the RAF. Often wish we had stayed there. Because its two cardigans colder her in the North East!
brocho replied to the topic am first lol in the forum Under 50s 15 years, 1 month ago
Hi Tom the brocho name was just a user name and I didnt realise it would come up on my posts I dont know how to change it though and am hoping someone will enlighten me love Bridgetx
brocho replied to the topic Ice cubes in the forum Treatment 15 years, 1 month ago
Hi David well thats an interesting viewpoint never heard of any negatives regarding the ice before !! My little brain will be pondering on this one for a while I think === how could ice stop the cells being killed off ?? love Bridget ps personally I think spelling mistakes make the posts more fun !!