Hi Mari I am glad you had a good christmas. Dex is such a strange drug and it amazes me how differently we all react to it . I did get lots of bloating and water retention too and now always take ferusimide The other unfortunate side-effect for me is excessive wind , very embarassing ! I think the lethargy is something you are stuck with due to…[Read more]

Hi Dai sorry I missed your birthday post but good to hear you enjoyed yourself , I wouldnt expect any less of you! Sorry cant help with the pn problem although mine did go away after a few months of stopping Velcade and I remember thinking it was taking forever too I really enjoyed christmas and having 2 daughters ,grandson and dog to stay but…[Read more]

Dear Michelle I can only imagine the pain you are going through as Min said this bl–dy awful illness! Dont give up yet I was on Velcade and Revlimid neither one worked but my doctors have put me on Bendamustine and Thalidomide I am not on a trial but apparently these drugs can be applied for under special circumstances Ask your husbands doctors…[Read more]

Hi Chris welcome Although it has been 5 years since I was diagnosed I can remember feeling very confused , angry , sad and at other times flippant and off- hand about it, I imagine a lot of people would also recognise your description too so you are not alone. Believe it or not things will get easier as you get your head around the treatment and…[Read more]

Dear Michelle
I am so sorry that you and your children and of course your husband have been struck down by this blu_y awful illness.
It is a very rough ride you have been on and I sincerely hope that this is not the end of the story or the journey for you both. I have heard that going back to the beginning is helpful, ie if he was on CDT at the…[Read more]

Beautiful bride and wedding dress and just right for the winter.
It sounds like it was all worth the effort and so pleased for you both. Back to some kind of normality now for everyone.
I came home yesterday and it was not as bad as I thought, must be getting used to being on my own though was exhausted form being with the grand children…[Read more]

Hi Jean I am so glad you had a good time it sounds wonderful especially having all the family together . I am sure Frank thinks its worth a few extra hours sleep .I couldnt open the photo but I will try again later Wishing you all a healthy happy new year love Bridget x

Hi Linda welcome to the group Nowhere will you find more support and first hand experience of myeloma from such a fantastic bunch of people! I am glad your husband isnt having too many problems with his chemo Although everything seems very confusing at first it does get better You will find that hospitals , treatment and everything that goes with…[Read more]

Hi Shirley so glad you had a lovely christmas and your lovely family spoiled you , you deserve it. We had a wonderful time too Two of my daughters and the eldest grandson stayed on christmas eve as usual so it was a bit crammed here Unfortunately George was so excited this year he didnt sleep all night so neither did anyone else as we were waiting…[Read more]

I survived my first Christmas without peter with many moments of reflection, a small amount of tears,and lots of children's laughter.
My tears were mostly seeing my grandson playing with one of Peters tanks in the way I know he planned to do with him had he been here.
But on the whole not as bad as i had imagined, but have yet to go home and…[Read more]

Whilst your angry let it simmer under a hot fire of anger then get in there and insist on all the money he signed cheque on being put back in the account. That will make them sit up then go to the financial ombudsman and get them to get you compensation for the additional distress.
On a lighter and more seasonal note merry Christmas
Love
Min

Happy birthday to ya, as the song goes. And many more too.
With Christmas wishes too to everyone
Luv
Min

Wishing everyone a very happy christmas and a very healthy new year and if it turns out to be wealthy too all the better !! Thankyou so much my cyber friends for being here when I need you most lots of love Bridget xx

Dear Mavis I too am in awe of the wonderful people I have met on this site. At the darkest times when it is sometimes hard to remain positive the lovely people on here lift you up again and make everyting seem less bleak with a kind word. To all the people who care for a loved one with mm thankyou for helping me to understand what it is like from…[Read more]

Oh Sarah
Dont these people just know how much distress they are causing. I would be asking them why they accepted the cheques that have already cleared over the years.
Cant imagine how your going to get out of this but i imagine its going to need a solicitor and more unnecessary expense.
When i used to work, I could have belonged to a union…[Read more]

Hi David you are definitely not alone with the memory problems ! I always had a good memory but since being diagnosed it s gone downhill all the way Sometimes it is so annoying especially when trying to remember names ! As for the going upstairs thing I do that as well nd like you remember very clearly when I have sat down again Still its a…[Read more]

Hi Catriona I am sorry your dad is going through such a tough time It is a shock when you hear them say you have relapsed but it wont take long before treatment begins to work and everything will look less scary for all of you. I am like your dad , my blood test dont show paraproteins either but the doctors look at everything including mri ,…[Read more]

Hi Sarah it never ceases to amaze me how bloody useless banks are! You must be furious after doing all the right things they have left you in the lurch Ithink I would push for compensation as they are potentially damaging the good name and reputation of your business Mind you come christmas eve say bugger the lot of them and forget about them…[Read more]

Hi Roisin I am so glad your father -in-law is in the right place to get the care he needs He is a lucky man to have such a lovely family watching out for him he must be very proud Wishing you a happy christmas and all the best for the new year love Bridget

AMARYLLIS a lovely house plant for the spring to look forward to
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min