Hi Tom well yesterday was pretty tough!!Usual long wait for clinic as well My next treatment is going to be Bendamustine as the doc and I agreed I probably wasnt strong enough to cope with a heavy duty chemo regime , but first he has to get the approval of the whole team to fund There was a trial but I am not eligible because they cant measure my…[Read more]

Hi Eve and Sharon I was just wondering if Slim has had a full skeletal survey and bone scan Eve? Mine was done when first diagnosed to give them a base-line to gauge existing damage. In my case the damage is so extensive there are only two places free of myeloma, my left forearm and left thigh!!Everywhere else has more holes than any pepper pot…[Read more]

Im So sorry Sarah,
I imagine you must be numb with all that is being thrown at you at the moment.
Im sure you are shock but unable to feel it due to the shock of losing Gordon.
Think its time to slow down and take a deep breath. Relax and just sob. life is so bludy unfair.
Dont we know it.
Private message me if you want to talk I can listen…[Read more]

Hi Tom afraid not this time Just got home but todays appointment was a planning session where I got another tattoo Tomorrow is the first radiotherapy session and there may be another 4 So Onwards and Upwards for a bit longer Tom but I had better look out those dancing shoes!! love Bridget x

Hi Dai what wonderful news to start the day with! Its been hard fought for but you got there !! Heres to a very long remission and no drugs !! If it were me I would be tempted to drop a line to the exceeedingly stupid doctor in Wales who behaved so appallingly I hope you and Janet have got lots of fun things planned so get out there and forget…[Read more]

I had another rant with a credit card company today…. speaking to an unintelagble man in India…. well you can imagine my reaction to him not understanding my Geordie accent. when I asked to speak to someone in England he said they had no office in England…mmmm the blank statement came from UK so he got the other two barrels and needless to…[Read more]

I am very happy for you Helen, 😉 Have a good life. Pleased to have met you for a short while, you have been in my thoughts lately wondering how you were doing, keep up the good work too and make sure they FRH get the feedback we discussed about the day unit and sick people please.
Love
Min

Welcome back from your holiday Dai, and now you can have many many more.
Wonderful Wonderful news, I am so very pleased to hear you can get back to living a 'normal' life again.
Now get that book written and make sure Minnie features loud and often !!!! no excuses for not getting on with it.
Before that give your good lady wife a big hug and…[Read more]

Hi Solo welcome to our lovely group I do hope you dont need treatment for a very long time to come !!Tumours are quite common in myeloma , they are usually reduced with steroids as they are blood filled When diagnosed a very large tumour was found which had destroyed 3 of my vertebrae so my back has been reconstructed with rods and plates Since…[Read more]

Whatever it takes Bridget, take it.
You know as well as I do that pain is not good for you or for the people who love you and care about you they dont want to see you in pain. If Dex does the business then dex it is… Just go and find a tent to wear!! hee hee cos you know your worth it. Bite your tongue when the alter ego appears from side and…[Read more]

Hi Roz I can only imagine how hard it must be for you ,Min and Sarah , none of us can really know until it happens to us Ido hope you get some counselling very soon as Mari said sometimes you have to nag your gp to get what you need Please dont ever hesitate to post on here about your feelings Roz , I very much doubt anyone could be offended by…[Read more]

Hi Debs I really feel for you what an wawful thing to do to you! I would let them know how it feels when you next see them then perhaps they will take patients needs into account Hang in there Debs love Bridget x

Hi everyone well today ,especially this evening has been brilliant!! I took my dex nice and early and by lunchtime no back pain!!Hoping it will last till at least tomorrow as its wonderful The only thing is having to spend the early part of the day still dopey from all the morphine , but my head actually feels clear tonight Today was the first…[Read more]

Hi Gina it must be a relief to know mum will get some answers next week All fingers and toes will be crossed and you have the positive vibes from all the lovely people on here too Now thats a force to be reckoned with!! I hope mum is continuing to feel a bit better , even if it seems slow it must help being at home with her family Lots of love…[Read more]

They can supply it but its vile cheap ice pops. There is an Asda fairly near to the hospital in Gosforth if you have a sat nav go there 1st. Buy Ice lollies more interesting than plain old ice.
There is a shop downstairs in the lobby but not much choice but the prices are crazy. Do a google map of asda in wallsend or Gosforth. Each of them is…[Read more]

Well I love this post too! I also love the look on the children ,now grandchildrens faces on xmas morning when they peek in the living room to see if he has been!! I love books all shapes age and sizes Suprisingly I love my laptop Ilove my life I love the way good people care about others even those we have not met I love Dais way with words…[Read more]

I love cussing…. I love life, I love lying in bed on a weekday and weekend. I love the life I had before MM got to us. I love our children, our grandchildren and my home.
Peter made all that possible even the cussing though he never cussed at me.
I love the people who have become firm friends on here who I would never have known if the…[Read more]

Hi Min sorry I cant help about bank accounts but when Jeffs dad died we were amazed at how many phone calls , forms and visits it took just to get his mums life back on track In Olives case she is a very lively 82 but she would have found it too hard As you said about not being able to motivate yourself was exactly how she felt too On a spooky…[Read more]

Decided on some retail therapy instead and visited building society to close his account down, what a palaver.
Next its the premium bonds to cash in. how ironic is that he won £25 quid and the cheque had not been paid in.
The car (his disability one) just got me home before the petrol light came on so they can come and get it now.
Had to go…[Read more]