I am so jealous Dai, waiting with baited breath to hear how much of a difference it has made and if it is um
Pleasurable?
I have seen the advert on TV and when Peters legs were poorly with either kidney failure or more recently DVTs and pulmonary embolisms I considered it, then thought it was just a marketing ploy. But if you give it your seal…[Read more]

Brilliant news Bridget,
Drug holidays Bliss, being able to see your ankles Bliss, choclolate Bliss. Never mind the weight, it will go when its ready. If not it has some useful properties.
I wish I could get some weight on Peter, in readiness for the next hurdle I feel he will fade away due to lack of weight.
Got to get baking now!
Love Min

Hi Sarah
I hope and pray that there is a continued improvement however small for Gordon and that you find some peace for yourself. Difficult I know and much as we tell ourselves not to get wound up it is impossible.
I feel for you, and the heartache your going through at the moment. Little steps improvement wise make such a difference to the…[Read more]

Oh Dai I really hope they get your leg sorted very soon!! It is so depressing and I am sorry if my silly post made yoy feel worse Fingers toes and eyes crossed for you love Bridget x

Dear Min well you deserved a couple of glasses of vino after the day you had!! Thank goodness the surgeon agreed to do the kyphoplasty earier ! I wish theses doctors would consider how they would feel in that situation pain makes the healing process much more difficult but apart from that Peter has had to put up with a high level of pain for such…[Read more]

Hear Hear
Min

Hi Ivan
Good hiccups cure. Half a teaspoonfull of sugar on the back of the tongue for a short while then chew it. works for my man Google hiccups +sugar

Min

Oh deary me, two glasses of wine and I have the hangover from hel l Bridget.
I dont think I have been so stressed in a very long time. Woke at 4 and never got back to sleep. Hospital this morning and consultant told Peter his numbers !*!*!!!* wish he had not as I went into anxiety mode; not good, sent him off to see the transplant co-ordinator…[Read more]

Good luck Jet and Keith hopefully you will be home again very soon ! It is definitely worth it so hang in there just think of being drug free ! love Bridget x

Hi Min and Eve I just wanted to say I have never been too worried about knowing the exact paraprotein numbers on my tests, in the first few years before I became a non-secretor, I was just happy to be told they were low or static, I would have found it too stressful to keep wondering how low they were! As you say Min if you concentrate on being…[Read more]

Hi Gina glad to hear your mum finally got started on her treatment you must be so relieved! Hopefully she will gradually get her appetite back and be able to tolerate food ok Gina your mum must be very proud of all of you and I am sure it must be a huge relief for her knowing you are fighting her corner!! lots of love to you both Bridget x

Dear Sarah if only I could do more than send you my love and a big hug I will be thinking of you.You and Gordon have been so strong together, I am sure your strength and positivity have kept him going as it will now Sarah Hang in there Sarah hopefully that slight improvement today will be an even bigger one tomorrow Love to you both Bridget x

Hi Sharon I am so pleased your consultant was more willing to listen to you. It sounds as if the other doctor was sticking rigidly to the trial protocols rather than adjusting doses for your benefit In my experience of trials the overiding factor is what is best for you as a patient and although the protocols are there there is room for changes…[Read more]

I can see your disappointed Eve,
but don't despair remember this is a marathon not a sprint!
There will be many ups and downs on this journey. ( I am struggling to spell as just had a pre dinner glass of wine mmmmm)
Take into account his spell in hospital when he was ill and imagine the priority now is getting him fit,well and some weight back…[Read more]

Hi Jet good luck for this week I m sure you will be home in record time just hang in there !! Remember not to try and rush things too much , your body needs time to get over it so rest when you need to !! love Bridget x

Hi Dai like Sarah I am blooming well gobsmacked at the date you have been given for a minor procedure that could save your life!! Good luck tomorrow , give them what for! Well at least my local has got a good system for DVTs and when it was thought I had one the scan was immediate even though I was brought in late at night !!Mind you they fall…[Read more]

Hi Gill so pleased Stephen is feeling better . I am sure he will soon get his appetite back now he is back home with you looking after him Please make sure you look after yourself too though !! Hows the puppy? I hope she has learnt to perform in the right place now!! love Bridget x

Hello Gill
Im pleased to hear you have Stephen home at last.
I know exactly what you mean about the fancying food and then not eating it. When Peter came home I had a fridge full of food that went into the dogs (at least it wasnt wasted) but I know how soul destroying it is to make tasty morsels that cannot be consumed after special…[Read more]

Hi Ivan
My husband tried curcumin as an alternative treatment after his SCT. I read that asparagus was amazing and fed it too him as often as I dared. But if these things worked no one would be taking chemotherapy or thalidomid.
It was difficult to say if it kept the beast at bay or not but when he came off it his numbers rose significantly.…[Read more]