Hi Chrissie
How are you? very worried I suspect and you have to take care of you as much as your husband. Its not easy but if you don't look after yourself you wont be able to care for him. Try and take some time out if possible and just escape the turmoil.
My husband was a keen DIY r and keep fit fanatic who was reduced by 4 and a half stone…[Read more]

Im so sorry Bridget,
I thought the Marie Curie nurses were able to provide beds at home. And or Macmillan!? I think they may require some notice to be able to.
We have a loan equipment department in the council for these type of things here.
Its so sad that he has had to go away from his home particularly at his age, he belongs to a generation…[Read more]

Hi Chrissie sorry I didnt understand at first Oramorph is horrible I cant take it either but it might still be worth asking about alternatives like patches or slow release morphine I have found they are very good at seeking a solution once they realise how miserable pain is making your life Has there been any suggestion of radiotherapy for his…[Read more]

Hi Chrissie I can understand how hard it must be for you to watch your husband having to go through treatment and there is a time where yhings seem worse But this is usually because they need to hit the caner cells hard to get rid if as many as possible as quickly as possible If he is now going to have Velcade I would think they must be reasonably…[Read more]

Hi no wonder you are in shock it is devastating to get the diagnosis of cancer and it does take time to sink inBut during these early days of your mums treatment you will begin to come to terms with it as you get more info .Myeloma is a very individual cancer so your mum will probably have several tests and scans to see if there is evidence of…[Read more]

I think your absolutely right Dai, everyone starts with CDT unless there is a problem. Nice are very clear about it being 1st line treatment. Its almost been a your getting it wether you like it or not. drug until the X trials
I personally feel that whilst Peters consultant is doing his best its the best that NICE will allow him to do. Almost…[Read more]

We are not sure Dai, my limited understanding is…… because he did not get his light chains to zero last time they intend to attempt that this happens this time. Soooo it may be that he has to have another mega dose of melphalan before the one prior to transplant. Ideally they want to avoid infections and his needing lots of blood products.…[Read more]

Hi Johnsounds ike you have solved the myster your self but you are so right we all wonder if its the dreaded mm rearing its ugly head !! You could always try playing the piano sorry silly joke love Bridget

Dear Gina sorry mum is feeling lousy , she must be worn out and you too with worry But at least she is in the best place to get treatment and a couple of days on iv fluids and antibiotics will have her back on form She seems such a lively lady I cant imagine her being down for long Please give her my best wishes and hoping she get well very soon…[Read more]

Hi Gill hope this rotten bit doesnt last too long for Stephen Make sure you are looking after yourself too and eating your lovely dinners love to you and Stephen Bridget x

Hi Min good to hear things are better this week and I hope all goes well with the Thalidomide I saw your grandaughters pics on facebook looked like a good party!! Bet she was glad you went love Bridget x

I like the sound of you and your partner in crime scrumping strawbs… I have been away to visit Grandchildren and our adventure was to go to Stratford on Avon where I parked the car and forgot where!!!!! The poor children will be dining out on the story in years to come. They are only newly 6 and 7yrs old. It took so long to find it we were…[Read more]

Hi Gill,
I was wondering where you had got to and this explains why we had not heard from you for a while.
I hope Stephen starts to pick up soon, I know how difficult it is to watch them feeling so poorly. Peter had his 1st GCF injection today following mega melphalan last friday and felt rather sickly for a few days but has not been too ill so…[Read more]

Hi Vicki welcome you have come to the right place for answers and support on here they are a great bunch!! Great to hear your dad is getting good care it always helps Try and take things one step at a time its such a lot to take in The life expectancy figures are very general and often a bit cautious 60 , isnt old and with all the new treaments…[Read more]

Hi Sarah tell him from me its really not bad easiest op I ever had and back on your feet in no time !!!xx

Morning Sarah definitely a happy day Has Gordons hip gone because of the steroid treatment ? Thats what happened to me , I had a right hip replaced in 2008 , best thing ever the pain just goes and it doesnt take long to recover Mine even survived being thrown down a manhole!!They will make sure there is minimal danger of bleeding but I suppose…[Read more]

Hi Shona I think the helpline will be able to put your mind at rest There is often a time when treatment leaves you feeling very poorly but it does get better If mums not eating much try smalll portions of anything she fancies as her taste may be off too Look forward to hearing from you soon love Bridget ps I like madcat just seems rude for ,me…[Read more]

Hi Madcat?? Sorry to hear your mum is having problems Its a bit hard to comment really though as the doctors have all the relevant facts Can I suggest you ring the helpline on here they all have medical background and you would be able to tell them everything I have swollen ankles due to water retention but no rash In my case the steroids seem to…[Read more]