Hi Dai good luck with the velcade issue , if we all ask about the sub-cu then maybe they will hurry it through here ! love Bridget x

Hi Dai
If you go to the home page of of this site you will see an article on subcutaneous velcade from the Lancet Oncology, which hopefully will add some arrows to your bow when you see him/her. Good Luck and who knows you may be a groundbreaking Velcade patient.
Regards
Min

I would not be too concerned as long as he is not trying to rive his skin off! sounds like and allergy to one of the medications he will be getting post transplant perhaps an anti biotic. If the health professionals are not concerned they probably recognise it. Following the high dose chemo, the body is very sensitive to all kinds of things that…[Read more]

Hi Shirley happy easter to you too love Bridget x

Hi Joe I am so sorry you are having to deal with all this but thank goodness your mums tests were negative As for your own tests I agree with Jean and Gina , tell your mum and dad they probably sense something is wrong anyway. Dont bear the worry all on your own share it with them , they will wnt to be there for you just as you have been for them…[Read more]

Hi Eve.
Don't they just drive you mad with worry with there attitude to illness.
I buy fizzy water, flavoured still water and 7up. The 7 up is supposedly approved as being full of beneficial salts. Don't know how true that is but, Peter was up all night with a sort of bug. Difficult to know if its a sickness and trots or just the normal start of…[Read more]

I am not dead yet sounds good to me Dai Although in my case stage 3 will be " Are you still here?" !! It would be great if we could all arrange to meet sometime in the future , we share such a close bond on here it would be lovely to meet the people behind the posts ! love Bridget x

Hi Gill thats blooming brilliant!!! See there is always a silver lining ! Now you can have a lovely weekend relaxing in the sun love to you and Stephen Bridget x

Looks like my dog Ben Happy Easter
luv Min

Brilliant news Gill, Im very pleased for you both,
Min

Hi Jean that sounds like a lively clinic appointment , you should have had a bet on who was right!! Good news though which is great and the fact tht Franks health is good enough to consider an sct should he need it is great Hopefully it wont be for a very long time Have a wonderful weekend with your lovely new grandaughter , I cant think of a…[Read more]

Hi Sarah,
He had developed DVTs as a result of velcade in both legs and they went off into his lungs where they said there was so many clots in his lungs there were too many to count. Revlamid is a drug your on potentially and hopefully for ever. Thrombosis is one of the side effects so as long as he is on it he will be on heparin. 6months of a…[Read more]

Gill, I think that is an excellent idea, would it be a mother hen party? as we fuss around them like mother hens.
Jo The chill was caused by the IV immunoglobulin they gave him to allow him to go on holiday, he had a really bad fever from it and woke up bathed is sweat then had to change the bed it was so wet' The chill turned into cold and…[Read more]

Hi Jean,
Its good news mostly then, I had a wry smile when you mentioned red rag to a bull. These men can be such a pain in the kneck when it comes to their health.
Enjoy you Easter and your new Grand daughter and family. Don't waste your energy worrying until you have to, thats where I went wrong. Im in a permanent state of worry mostly…[Read more]

Hi Sarah
I have strong memories of administering Peter GCSf before his harvest, ugh it was awful ; and he had dreadful bone pain and back pain in particular, then of course he blamed me for giving it to him. He is now on daily heparin injections for the rest of his life following pulmonary embolisms from velcade. I refuse to do them when he…[Read more]

Happy Easter David hope you and your family have a lovely weekend love Bridget x

Hi Min I am so sorry to hear you had a nightmare holiday !! What rotten timing to get a reaction , poor Peter Glad you got home safe and sound and can relax now though We have been promised sunshine all next week so you can enjoy your garden at least love Bridget x

Hi Dave good luck with your sct Hopefully you wont have too many unpleasent side-effects and be home before you know it It is definitely worth going through Hang in there love Bridget

Hi Debs
Peter is like Bridget with a constantly snotty nose while on or off medication. He is not a sufferer of sinus but I have been plagued by it and the best relief is a bowl of boiling water and a towel over the head and sniff in the fumes. Clears the sinus's at no cost. Friars balsam is a good addition to the water but a bugger to wash off…[Read more]