Hi Min I am so glad to hear Peter is still feeling good , heres to a lovely week off!! I have just had the worst 2 days ever!!Still very painful and tender to touch , sewating eyc and all in all I just feel dreadful but as I havent got a high temp I am reluctant to see the docs before clinicThanks to you though I am looking forward to next month…[Read more]

Hi Bridget
I got it wrong, Peter finished his 2nd packet yesterday so now on a week off, Hospital next week for a new packet! Still feeling good.
LuvMin

Hi Sandra hang in there I am sure you will get a lovely drug free summer . I do know what you mean though ,at times it just seems never-ending But the sun is trying to shine and it helps to make us all feel better love Bridget x

Sandra
You are allowed to moan all you want. The sensitive teeth thing was something Peter had with velcade and still cant manage a drink out of the fridge.
I don't know that water is the absolute advise, as I watched a programme that showed that as long as its liquids that will do.(NOT ALCOHOL LOL) Get some sensitive toothpaste and don't wash…[Read more]

Hi Ron, My husband has had Baloon Kyphoplasty done on two vertebra and only delay to getting the other two is the fact he is on blood thinners.
The surgeon made it very clear it would not be done for cosmetic reasons only to alleviate pain. However if by suffering from kyphosis she is unable to raise her head to see dangers ahead for instance…[Read more]

Hi Ron I do understand how your wife feels as I too have lost 3 inches in height and my appearance has changed completely in the last 4 yearsThe main thing though is that she does not have any bone pain. I am not sure whether they would do this procedure on the basis of appearance but its definitely worth asking Please let us know how you get on…[Read more]

Hi Keith sorry you are feeling lousy All you can do is listen to your body and give in and rest when you need to The taste thing is the worst symptom I think , drives me nuts Perhaps someone should open a restaurant for people who are taste compromised?? Could call it Th e Cardboard Cafe? Sorry I am in a silly mood today Hang in there Keith it…[Read more]

Hi I am sure the french health system is a good one and from what others have said they are well up on treatment of myeloma , but I do think consistency and an element of trust are crucial parts of our treatment It can be difficult if you have to go to another uk hospital during a course of treament , I can imagine the possible problems with an…[Read more]

Hi Nigel welcome to our merry little band !! It is the best place on the net for answers regarding myeloma as it is based on individual experiences, however if I have learnt one thing about mm its that it is a toatally individual illness where the variations in symptoms and response to treatments are unique! Being able to share experiences with…[Read more]

Hi Nigel,
You cannot have velcade until your bloods have been tested for a variety of things. You are therefore pretty much tied to the hospital as its twice a week for 3 weeks at a time. Then 1 week off meds to recover from the previous 3 weeks
Min

Hi Sarah,
Well I have now had 6 days of not getting up for work, I have the pension form to get to the Pension People tomorrow(not yet filled in) I have done my sums a lot of times to see how poor I will be until the OAP pension kicks in. I am spending far too much time on this computer, but still have sciatica so cant do much else. My plan is…[Read more]

Hi Mavis thankyou for your kind words. I am sure I will be back to normal soon , well as near as I ever am !! take care love Bridget x

Hi Roz thankyou it means a lot when all you lovely people on here cheer me up I dont feel sorry for myself very often ( not much point !) but its great to have friends when you do I am hoping to be able to bear my clothes touching me at least tomrrow , otherwise I will be sark naked not a pretty sight Hope you have a good weekend and you are…[Read more]

Dear Min bless you , it really helps to know Peter is feeling better . I have stopped feeling sorry for myself now , till the next time !! I dont have the runs but my tummy isnt right , I think I read before that Peter is on Lanzoperale so am I Interesting that Zometa has made a difference to the water retention , I realised mine has been…[Read more]

Hi Chris I am glad to hear you are doing well after your transplant A trip to Australia sounds wonderful at this time of year , I bet your daughters were happy you made it Do you have grandchildren as well? I am not sure my tale will be much use as everyone of us is different but here goes— I was diagnosed in 2006 after almost a year of…[Read more]

Dear Bridget,
I know what you mean Peter is just a few weeks ahead of you and on the same lowered dose, he too was all haywire etc when he started the 2nd packet, but in addition he has the worst diarrhoea. Being kept under control with more pills! This has been the case since he started the course.
On the plus side this week he has turned…[Read more]

Hi Min what a pain these neutrophils are I am having the same problem!! Is Peter on the GSF injections ? I have been told its likely I will need one or two a week to keep my neutrophils up. what joy !! I really hope you can get some sun soon love Bridget

Hi Eve try http://www.insurancewith.com
Got a quote down from several thousand to just under two hundred.(quid) Im just waiting for my husband being fit to travel due to neutropenia or I would be lying in the sun now.
It is raining and It is cold enough to freeze the *** here in the north east today. If he doesn't hurry up and pick up Im going to…[Read more]

DAI
I am so sorry to hear of the loss of your faithful friend, [i]He was never just a dog.[/i] And he looks a handsome chap.
I have had to do the same with my 1st collie and labrador and the sense of loss is overwhelming. Not being greeted in the morning and when you come home leaves a massive hole to be filled. This is why I have 3 dogs!…[Read more]