Hi David,
This subject is one that gets me mad.
Why cant you get an early pension/retirement from the government when you have a diagnosis of this type. It has to be better than begging for other benefits. As you say, it wont be a loooong retirement. Unless something remarkable comes on the market to cure the beast. Then they can chanage the…[Read more]

Hi Susan,
What a shame that you cant have velcade, but cheer up, as you wont have to sit around in clinics waiting for bloods to be counted and chemists to make up your velcade. You can sit in the comfort of your own home and take a tablet instead.
All the trials have shown that it is a remarkable drug if it works on you and if for any reason it…[Read more]

Hi Kay glad its all sorted now but what really impressed me is the speed you were in and out of hospital!! No wonder you have such faith in them Heres hoping there are no more dramatic happenings As for work it will still be there you are far more important love Bridget x

Thanks you Gaye
The itching has stopped for Peter But continues for me so I am just taking anti histamins daily.
Peters nurse told us that for the purpose of travel insurance, Revlamid is classed as a therapy or treatment not chemo, and if it means that I can get cheaper travel insurance then I will go with her explanation.
I have paid into a…[Read more]

Welcome Back Shirls,
I was getting a little worried when we had not heard of you for a while, but Im so pleased to hear that things are progressing for you. Its kind of nice that you are begining to come around just as spring is about to come around the corner.
Briliant idea to get a puppy for summer time as running in and out the house for the…[Read more]

Hi Emma welcome to the crazy gang. I am glad to hear your dad is starting to pick up now he is on treatment. Th,ink of us as your second family and ask away, there are so many lovely people on here to support best wishes Bridget

Dear Gaye I think you may well be right and the dex effect may be when it is used in combination with others like Rev and Pom Botheration and a double pox to myeloma!! I am certainly glad to have a friend like you to share the journey with, if only they hurry up and relieve your pain We can be 2 cantankerous outrageous old biddies( not really old…[Read more]

Hi Shirley lovely to hear from you and brilliant to hear you are doing so well! Seems like you have a way to go yet but I am sure you will get your puppy before the summers over Take care love Bridget x

Hi only me glad to hear your mum has got started, it does get easier You could ask the specialist nurse if they do a drug chart to help manage all the tablets , I usually do my own so that I can tick off when I haave taken something I hope things go smoothly and please give my best wishes to your mum and dad love Bridget

Hi Tanya your poor dad is having a hard time and of course you as well When myeloma is first mentioned its always a huge shock and it takes a bit of time before all the information starts to make sense, so take it one day at a time and be wary of searching the internet as information is very often out of date This site is brilliant ,if you have…[Read more]

Hi Min I bet that feels great now its more official and the time will fly!! Before long you will be having leisurely lunches and long shopping trips , dont forget spa days too Sorry just teasing Icant imagine you are the sort of person who would enjoy that sort of lifestyle!! You will love being retired though and I bet Peter is looking forward to…[Read more]

Just a quick one only me. Did you mum not get a little chemo booklet? It should set out what tablets to take when and have the little boxes to allow your mum to write down how she feels when she takes them. Like side effects or not. Just helps when she returns for next consultation as its so easy to forget things. Should also contain the phone…[Read more]

Dear Gaye
If you cant moan to friends who can you moan to? and thats what friends are for.
Platitudes are not going to take away your intolerable pain;
Im still suffering from my sciatica and it can't possibly be anything like you must be going through. I know mine will go away with rest and time; you on the other hand need some better pain…[Read more]

Dear Gaye of course you are entitled to feel sorry for yourself , you have been going through h**ll lately!! Tomorrow I will be willing your rt department to get you sorted as quickly as possible , all my fingers and toes crossed too Mind you they must have decided you were a lady not to be messed with today if they are sending your meds out by…[Read more]

Hi Kay glad to hear treatment is going ok. Poor you gout is very painful isnt it, the last thing you need. I am fairly certain it is dex that makes me feel sore and tender, but it is my first curse of revlimid too. I finished my dex pulse last Thursday and the tenderness was at its worst on Sunday, so the timing is right. I think your description…[Read more]

Hi Jo that image set me off with a fit of the giggles!! Perhaps we could record the dex song ? Then they would have to interview us all on breakfast tv, trouble is none of us would have the patience if it was a dex day !!! Haha Radiotherapy certainly seems to have done the trick for me , the pain does come and go but for only a few hours at a time…[Read more]

Hi Debs be interesting to hear what your docs say Have you noticed a need for saltier foods? I realised last night why peanut butter wasnt right , couldnt taste the salt . Have you mentioned the bruising feeling to your doc? I dont think it is that common I mentioned it to my consultant once and she looked at me as if I was nuts!! Just had a…[Read more]

Morning Sharon great news !!Bet you cant wait to get home Take it easy love Bridget x

Good Morning everyone thankyou for your support , it always makes me see the better side of things. I am going to ask why there seems to be a delay in my finishing the dex pulse last week and feeling so rubbish 4 or 5 days later. Debs my money is on dex for the crappy taste thing , it always does it to me!! Pam I really admire how you are so…[Read more]

Hi Clara,
I think its possible your dad could be offered Revlamid if he is involved in a trial, the usual 1st line treatment is CDT, followed by velcade. I believe the amloid is where all of the bad bits of myeloma collect in one place usualy an organ, and the same medication is used for both. Taz who occasionly posts on here is married to a…[Read more]