brocho replied to the topic Joint pain in the forum Side-effects 12 years, 7 months ago
Hi Kay I agree with whats already been said , you need to be kinder to your body !! Your determination is incredible but you have been through the most challenging treament and your body does need time to recover If you push yourself too hard now you could delay you recovery rather than speed it up so please listen to your body and rest when you…[Read more]
brocho replied to the topic Hello to you all x in the forum General 12 years, 7 months ago
HI Gina its so good to hear from you although I think we would all have understood if you felt unable to post again. You and your family are doing brilliantly as you have all the way through your mums battle with myeloma The memories will get easier with time and there will be more smiles than tears just hang in there. I thought of your mum last…[Read more]
brocho replied to the topic Tiredness in the forum Related conditions 12 years, 8 months ago
Hi Eve and Dai thought I would join your conversation about morphine! Like you Dai I have been on it constantly for 5 years now The dose has increased from the early days as my pain has increased I have always worried about being so reliant on it but Iknow I cannot manage without it . I take 165mg of slow release Oxycontin twice a day, no need…[Read more]
brocho replied to the topic SCT completed in the forum Treatment 12 years, 8 months ago
Hi Sarah I am so pleased to hear Henry has done so well You must be relieved he got through it so quickly The hard bit is having patience now and learning to rest when your body tells you to Hope Henry gets a verry long remission love Bridget x
brocho replied to the topic Don't google it, I couldn't even spell it! in the forum Newcomers 12 years, 8 months ago
Hi Neeli as I read your post I found myself getting angrier by the minute There are several people who have had to wait over a year as has already been said gps are unlikely to see a case of myeloma Thankfully M.M.U.K is working very hard to make gps and other professionals aware of myeloma. I also had to wait over a year for diagnosis , many…[Read more]
brocho replied to the topic Just Giving… in the forum Off topic 12 years, 8 months ago
Hi Dai I am not at all surprised that you and Janet have such a lovely kind ,caring daughter as your compassion and giving nature shine off theses pages You must be so proud . I have never had lofty materialistic ambitions for my children , I raised them to be good people and I am also very proud of their care for others If they had made a forune…[Read more]
brocho replied to the topic Just Made It in the forum Treatment 12 years, 8 months ago
WooHoo Well done Slim thats the way to do it !! Worth being shattered for . Like you we have quite a journey to the hospital . as you say its cost as well as time so the team at UCH always try and schedule as many tests in one day as they can Although you get home exhausted at least you havent got to face it all again the next day. Well not too…[Read more]
brocho replied to the topic Another 3 months in the forum General 12 years, 8 months ago
Hi David it always makes my day to read a post like yours. Heres to many more posts like it and hopefully they might give you a longer time between clinic appointments Go and enjoy yourselves lots of love Bridget x
brocho replied to the topic Relapse after 5 years in the forum Newcomers 12 years, 8 months ago
Gill you certainly arent the only one !! We all have our way of handling things . I know that if Jeff ever said that I would freak out , yet its ok for me to say it !! love Bridfget x
brocho replied to the topic FUEL BILLS in the forum Off topic 12 years, 8 months ago
Hi Paul well we all need to claim what we are entitled to these days, I am still looking for the letter with the name of the scheme on it though!! So pleased you got sorted at least thats one less worry for you and Rachel Scotland sounds good have a great time and post some pics to make us jealous love to you both Bridget x
brocho replied to the topic New bird(ish) in the forum General 12 years, 8 months ago
Hi Kirsty a big welcome to you although this site must be the last place you thought you would need. I am glad you found it though as it will help you get your head around being diagnosed with myeloma Try not to look elsewhere on the internet as a lot of the info is out of date and some of it is just plain scaremongering You must still feel…[Read more]
brocho replied to the topic Board activity in the forum Off topic 12 years, 8 months ago
Hi Dai funnily enough I have been thinking the same thing lately I really miss the chatty lighthearted moments on here This board is brilliant for finding out facts re mm and even more so for support but its so nice to be amongst like minded people and relax too. I probably have been a bit quiet lately si I will get back to normal I think love Bridget x
brocho replied to the topic FUEL BILLS in the forum Off topic 12 years, 8 months ago
Hi Eve the media furore is what prompted me to be concerned I find it very disturbing that people can be misled by a few emotive headlines without looking at the facts Hopefully common sense will prevail before things get any worse love to you and Slim Bridget x
brocho replied to the topic My beautiful brother in the forum End of Life and Grief 12 years, 8 months ago
Dear Jean I am so sorry your brother has gone From your description he sounds like a lovely man Hang on to a lifetimes memories Jean he will always be a part of you . I hope Alex is able to celebrate her birthday too I hope you can take some comfort that you were able to be with him Jean . lots of love Bridget x
brocho replied to the topic Will there be anything else? in the forum Treatment 12 years, 8 months ago
Dear Gill what a bugger!! I really hope it turns out to a minor blip ! Gill having been at the point Stephen is on more than one occasion my advice is dont panic yet ! Stephens doctors will be actively looking for the best possible trerment for him There is radiotherapy as one possible option , longer term there is Bendamustine which although it…[Read more]
brocho replied to the topic FUEL BILLS in the forum Off topic 12 years, 8 months ago
Hi Dai you are so right the lack of information to people who could be eligible for benefits is a disgrace Especially when there are politically engineered media campaigns to shop benefit cheats, the latest being anyone claiming DLA It makes my blood boil that they think we are all so gullible and stupid and could be conned by these manipulations…[Read more]
brocho started the topic FUEL BILLS. in the forum Off topic 12 years, 8 months ago
Hi everyone just thought I would share my latest find with you all Apparently every fuel company has a fund with which to help those suffering hardship I think the criteria is if you are elderly or chronically ill eg cancer, registered disabled you can apply for a one off payment of £120 to help with electricity costs . All it took was a phone…[Read more]
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 12 years, 8 months ago
Hi Tom sorry didnt see your post this morning, mind I dont see much in the morning I am a bit like a zombie before 10 am !! Thats the trouble with Thalidomide it totally knocks me out at night and I am useless when I first wake up!! You wouldnt believe the times I have dozed off with a cuppa in my hand If I shut my eyes my grandson usually…[Read more]
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 12 years, 8 months ago
Hi Carol sorry to hear you are having pain trouble it can really get you down cant it Still great news that the mri ruled out anything nasty though Hopefully this spell of warm weather will help a little If nothing else the sun makes us all feel a bit more cheerful Keep smiling your lovely smile love Bridget x
brocho replied to the topic Dr Terry Wahis – Highly Recommended in the forum General 12 years, 8 months ago
Thanks Dai it never hurts to be reminded how important it is to eat healthily love Bridget x