Hi Tom and welcome to the best support group you could wish for Good luck on your walk I look forward to hearing how you get on Bridget

Dear Michelle My heart goes out to you and your family

God Bless You

Suex

Dear Michelle,
I am so very very sorry for your tragic loss.
It is an absolute tragedy that one so young should have to suffer this goddamn illness particularly when he had a young family to love.
You will have some difficult times ahead, and frustrating feelings too, you will survive and look back in the future at the happier times when he…[Read more]

Dear Michelle I am so sorry you have lost your husband far too soon to this lousy illness . It must be a comfort to know all the people who loved him were with him at the end The days ahead will be hard for all of you but together you will get through it Hang on to those lovely memories of your life together . Although Phil is not here physically…[Read more]

Hi Dai the lovely Dex a necessary evil we love to hate!! I have had the mouth tingling too , not too troublesome though just a minor annoyance . I also have trouble passing water at times which I found puzzling but I think you have hit the nail on the head it is likely to be Dex I just hadnt thought of it before Both these side-effects are just a…[Read more]

Hi Nicole I am so sorry you didnt have longer with your dad but take some comfort that he is no longer in pain . He was with the people he loved and that must have meant a lot to him .He will always be with you try and remember all the good times to get you through As Helen said live your life well that will be the best tribute to your dad Stay…[Read more]

Hi Dai I am so pleased for you It is such a boost when test results are good and as you said now you know Rev and Dex are getting on with the business of getting the beast back in its lair!! I hope it gets rid of your shoulder pain quickly , no wonder you were feeling down pain like that is so unrelenting Heres to the future Dai its looking good…[Read more]

Hi David hope you start to feel better very soon love Bridget x

Hi Janet no wonder you are devastated five years is a long time to be in remission As Nettie said though there are so many new treatments available now and more in the pipeline which look promising Remember your doctors can suggest a treatment but the choice is yours! If you really dont want to go through an sct again they will suggest other…[Read more]

Hi Dai I second that the world is definitely a nicer place for all of us if the sun shines!! Like you I dont miss alcohol To be honest I only drank on rare occasions , mainly because it acted like poison and caused 2 day hangovers from hell !! No problem when I was young and out all the time but my consumption dropped when I had children and it…[Read more]

Hi Tom I am not too bad thanks You are so right about the warmer weather nothing makes me more miserable than being cold!! A little sunshine makes everyone happier , even getting served in a shop is nicer cos the staff smile back at you on a sunny day!! Unfortunately wine is a no-go for me , I havent had a drink since I was diagnosed 5 years ago ,…[Read more]

Hi Helen I know what you mean about facebook I dont think I could handle tweeting just cant get my head around it somehow!! I hope you shake off the pneumonia very soon it makes you feel wretched doesnt it Like you I was never ill till myeloma reared its ugly head but I have had pneumonia twice in the last few years I suppose chemo is as much to…[Read more]

Hi Helen this week has certainly been better than last !! I am coming to terms with the situationbut at the same time there are some questions I need to ask my doctors about possible treatments. I was thinking tonight that it would actually be easier , in some ways, if I were less aware about mm and the implications of various treatments , we…[Read more]

Hi tmc? as Helen said you are not burdening anyone we are all here for each other and most of us will need to let it out sometimes . I can understand a little of how you feel as since my diagnosis 5 and a half years ago I have been on every possible treatment since my sct All have failed to work for more than the shortest time and now I have no…[Read more]

Hi Andy good luck for Tuesday hope you dont have too many side-effects love Bridget x

Hi Debs thankyou and please dont be sorry for not seeing the post I have seen your facebook posts and its great to see you are getting back in the swing of things and feeling beeter than a few months ago So I am glad that you havent got time to come on here You are doing amazingly with your ball preparations I am totally in awe as I wouldnt know…[Read more]

Hi Zoe I am so sorry you and Dan are having to go through the nightmare that a diagnosis of myeloma brings especially as he is so young, I was 52 and still felt it was too young to have cancer It is a rollercoaster in the beginning because its all foreign even the words used sound strange but it will get easier I promise As Dans treatment gets…[Read more]

Dear Nicola I am so sorry it seems so unfair that you are going to lose him to this rotten illness after swuch a short time. I hope you can get him home but if you cant he will have the most important people in his life with him and will know how how much he is loved Your dad will never leave you , he will always be in your heart , wherever you…[Read more]

Hi Tina we are in a similiar position I also have a tumour on my spine which is very close to causing spinal compression Because I have already had radiotherapy on that site I was only able to have one dose this time . So back on Dex and hoping it keeps it at bay Hope the pain gets sorted soon, make sure they know how bad it is love Bridget x

Hi Andy sorry Velcade didnt do the trick hopefully DT Pace will . I had this a few years ago and its fine whilst you are having it but watch out when you get home it can knock you for six!! You will need to check your temperature regularly as it can set off an infection which needs very prompt treatment Fingers crossed it will be fine for you ,…[Read more]