H Keith
Peter always found that his platelets had recovered in the 10 days off period, and on the one occasion that they did not he simply missed one injection of velcade, until they had recovered. Hopefully you will have made that recovery whilst you have had your rest.
Min

Dear Min I was pleased to see on another post that Peter is feeling a bit better this week , long may it continue Yesterday was my first dose and it wasnt a great day ,I just felt yuk all day and very lethargic What surprised me was I didnt get a rush of energy from the 40mg of dex at all , I had hoped it would override any tiredness from the…[Read more]

Gill
I do hope Stephens black eye is healing to a lovely greenish yellow by now. I was amused as last time Peter was on Dex he almost had a punch up with a queue jumper on a garage forecourt.
How is the Puppy settling in? still keeping you up at nights or now sleeping with her new brother.
also hope Stephen is coping with Velcade and look…[Read more]

Hi David how very true Unfortunately politicians newly in power are like junior doctors and would have us believe they and their strategies are much better than anyone else before them Ha ha!! love Bridget x

Dear Sarah and Min you are both going to enjoy not working you will soon wonder how you ever found the time to work!! The extra time with the grandchildren alone makes it worthwhile . Min I am living on benefits now and a small work pension and my solution for the shopping is on-line The big 3 supermarkets are all pretty good and the delivery…[Read more]

Go SarahGo
Very brave decision, but I can understand why. Life is just too short.
You do cope, we had 18months with no wages and a bloody porshe to pay for. Its long since gone but it bled us dry for a long time. What I plan to do is make a list of groceries every week and send Peter for it as I am hopeless and just get carried away whenever I…[Read more]

Hi Jo
One of the consultants we saw a few weeks ago, was German who had just spent two years in America. He had some amazing thoughts on the subject and I think he will find working in the NHS for a few years quite a step back from what he is used to. If velcade works on you its wonderful, its so sad that mm sufferers have to try everything to…[Read more]

Hi everyone yesterday I had a near perfect biopsy Heres how it went 9am I arrived and was met by the only nurse on the unit who inspires fear and dread in me !! Its not her fault she is a very large girl but she is brutal at putting cannulas in , on one occasion she made 6 attempts before giving But yesterday went like a dream , although she…[Read more]

Hi Min good to hear you are about to become a lady of leisure!! Haha I bet thats the last thing you will be but I am so glad you are going to get time to do all the things you want Have you got the cruise brochures yet? love Bridget x

Thanks, its just sinking in Im going to have a life again….. have a lovely trip and don't forget the photo when you come back, have a lovely time with your new grandchild. And of course her parents.
Luv Min

Hi Keith,
You don't know how much you appreciate the NHS until you need it, but we have to improve or stay the poor man of Europe for cancer survival rates. There is no easy answer and change hurts, but if its better so be it.
Early diagnosis is the key and those people with MM often do not get this. Perhaps the private sector would be paid by…[Read more]

Hi Keith I know what you mean the whole NHS reform issue is worrying me too Trouble is there wont be any mass rebellion against it people will just let it slide in but when it comes to trees they will be chaining themselves to those!! Gos arent equipped to deal with finances they should be given more time to spend with patients not lessAs you say…[Read more]

Due to all the fingers and toes crossed by the beautiful people on here, I have an appointment with HR on valentines day to discuss my redundancy package…………….yippee, I will be drawing my pension soon.
Luv Min

Hi Jo,
He was on a low dose of aciclivor following the breathlessness which turned out to be DVT so he takes half a tablet three times a day. Most days now his ankles and feet are swollen, cannot work out the cause, some days its worse than others but he does have water tablets to deal with it.
The sciatica is much better thanks, not gone…[Read more]

Hi David and Dai I have never been told I have Bence Jones yet my paraprotein levels bear no relation to any myeloma ativity My consultant uses the serum-free light chain test but even that was showing low values despite very significant myeloma progression and a large tumour My doctor now jokes I am the most difficult patient they have , at…[Read more]

Thanks Bridget,
Actualy today he said he felt better than he has in ages. His reasoning being the velcade must be out of his system? In fact he remarked that he was feeling stronger, than he has since he started on velcade really did not do him any good. what little muscle tone he had gained before his relapse was lost whilst on…[Read more]

Gaye
There you go blazing the trail for the rest to follow. Peter was meant to have a second balloon kyphoplasty in Dec and two days before it had to be cancelled, because of his darned newly acquired thrombosis. He was absolutely gutted as the relief from the first op where two were done was brilliant for him. His D dymmer numbers are getting…[Read more]

Dear Min how very cunning I love the e-mail idea My technophobe husband can look up his dream team only because I put it in favourites but not much else When I have tried to show him a shopping site he ends up on a page which is nothing to do with the original and I then have about 20 pages to remove Maybe he will get the hang of it one day !I…[Read more]

Dear Bridget
Send your other half to the pub on Tuesdays so you can watch in peace and on a big screen. Peters clinic days are Tuesdays ,so egg and chips and the hand control are my idea of heaven on Tuesday evenings. Have been known to go to bed very early in order to watch undisturbed. Otherwise its Sunday morning while doing the ironing.
I…[Read more]

Dear Sarah I hope you have had another call to put your mind at rest Oh to be young and fearless again love Bridget x