Hi Min poor Peter must be painful I had to laugh at you grassing him up though just what I would have done !!Very impressed with your hospital thats what I call service !! How about writing " I knew I was right" .Hope you dont get too snowed in we havent had any yet and I dont mind being missed out despite my grandson doing a snow dance Have a…[Read more]

Hi Nicki its a bit spooky seeing your post as I was wondering this morning how you and Sam were!!!Glad to hear he is home now and nothing like your own home to feel better love Bridget x

Hi Roz you are a strong person Roz , you must be to have got through it all so far !!!!Tears dont mean you are weak they are a good way of relieving stress so please dont give yourself a hard time We all want to help and words are our only way of doing that unfortunately but there are a lot of us on here that really care about you and Michael and…[Read more]

Good Morning David heres to another good day for you . Gaye hit the nail on the head you are a naturally positive and happy person so if anyone can get through it and be cheerful its you If your visitors turn up wearing pegs on their noses you will know for sure its sweetcorn day !!I am not snowed in yet but it is blooming cold out here !!love Bridgetx

Dear Roz how strong you are and Michael too , hang in there and keep fighting it . If it were me I would be insisting on that meeting today , otherwise you wont see anyone but registrars till Monday .But at least Michael is in the best place to get treatment for the infections. Never give up Roz love Bridget x

Hi Lynne what an awful time for you both no wonder you are frightened but dont give up hope It sounds as if they are beginning to get things under control, Dex is an amazing drig and very useful in myeloma as it reduces inflamation and helps other drugs to work There are a couple of people who post who have had acute kidney problems and needed…[Read more]

Hi Gill nice to see you on here I agree wth Gaye you need more info , if I were you I woulld ring Dr Rabin he is very good at ringing back Please keep us posted love Bridget x

Hi Sue a lot of us do have bone pain most of the time and it could be just that You should make an appointment with the doctor or specialist nurse to review the pain medication it may just need adjusting or even changing the type Try not to worry too much I am sure if your doctor has any doubts they will do scans and x-rays to be sure Either way…[Read more]

Hi Michelle wonderful news !!! I am so pleased for your mum and you it must be a weight off your mind and now mum can get better much more quickly at home love Bridget x

Morning David good to hear you are still feeling ok .I have had a few occasions in hospital where mistakes with drugs etc and I must admit I usually do my own check , I cant imagine anyone getting away with it with you either !!In saying that its the last thing you need to worry about when you are feeling lousy but we are so vulnerable when we are…[Read more]

Hi Kathleen glad you got here and who wants to be normal , not me !!! I find it slow to get into services and the discussion forum perhaps it needs a tweak or two Glad you levels are on the up love Bridget x

Peters started his second cycle of velcade yesterday, and today he is breathless so its obviously the velcade thats causing it. But not unbearable. However he is back to using his stick as a result to rest on as he cannot walk far again.
Update on the tank…. he is using it to chase the cats who are terrified of it. But as a passtime it…[Read more]

Hi Norman
Firstly, look up on this site http://www.myeloma.org.uk/intro-to-myeloma/myeloma-news/ News about zometa.
A biphosphonate that my husband has been on for 18months now. He has a drip in the day unit every 6 weeks and it takes about 30minutes, following which he usualy feels as if it helps with his bone pain. His consultant has several…[Read more]

Hi Norman I have been having these infusions for the last years Initially I was on Parmidronate once a month, fairly simple takes about 2 hours Usually ache for a couple of days afterwards , a bit like flu , bit after that no problem Having changed to Zometa recently , just had my second dose I have had no side-effects as yet .I do find it helps…[Read more]

Hi Jean thankyou they made me chuckle too love Bridget x

Hi Shirley I am so pleased you have got the date now and it wont be long before its all over and you are home again If you arent up to much on xmas day have another xmas when you get home , double celebration !! I hope you will be able to keep us posted and we can cheer you on Good luck I am sure it will go smoothly love Bridget x

Hi David I am now a lovely shade of green ___ matching china !!!!I am sure its not a mistake they obviously know class when they see it love Bridget x

Hi Norman thanks for the info I will go down that route if my doc wont just e-mail it to me Take care Bridget