[GillParticipant]

Hi Aileen

I am sorry you find yourself using this forum. It is a huge shock to get the diagnosis isn't it? My husband has mm.

He went for Xrays as the orthopaedic surgeon he was referred to by our GP thought he had a trapped nerve. A phone call from the said surgeon at 7.30 a.m on the day Stephen was due to go back to get the results should have rung the alarm bells but I am stupid (Stephen knew it must be serious).

Could we leave all afternoon free as he wanted other doctors to run further tests. The rest is history.

On a brighter note you could not have found a better site than this for support. It is a place where everybody is on your side and, because we are all in the same boat but distant, you can ask questions, moan, cry, scream do all the things that you may not want to do in front of your close family and friends.

Good Luck Gill x

[GillParticipant]

A very late welcome to both of you from me. Sorry for my tardiness but I have been a bit busy lately. It is my husband Stephen who is the mm person (diagnosed aged 53 in 2008)

You will find nothing but help on support on here. I am, like everyone else, just sorry that you had to join us.

Gill x

PS Don't believe a word that Tom says. Shy? My ankle:-)

[GillParticipant]

ENDANGER

Gill xx

[GillParticipant]

I love being able to back track on this thread for the posts that I haven't had a chance to catch up with when, like tonight, I cannot sleep.

I could be quite evil and post an I hate thread >:-( !! I would be interested to know what others think. It could be fun if kept very light
eg Tina posted that she loved cute puppies. With tongue in cheek I report that, although she is adorable most of the time, our POOPIE still hasn't quite got the hang of where she is supposed to go. Thank goodness for tiled flooring.

Seriously, I have loved all the posts on this thread. I could lengthen my original post by miles, just reading others thoughts. Did anyone else think "Oh of course why didn't I put that down. "

Gill

[GillParticipant]

LICHEN up next.

Anyone keep a

HEN (groan)

[GillParticipant]

How lovely to find that this site is multilingual. I do realise that the swearing censor is a built in part of the site but I have been giggling by imagining a very tired, crotchety, elderly lady with a huge pile of grey hair on top of her head, pencils sticking out of this bird's nest of hair striking words out on her computer screen.

[GillParticipant]

Dear Sarah.

You are certainly going through the mill. I just wanted you to know that I am thinking of you.

Love from Gill xxx

[GillParticipant]

Took me ages to get this post on here. I forgot that the site won't let you talk about the hot place you go to that is the opposite of heaven:-/

[GillParticipant]

I have not been in here looking at all the posts for a while and need to catch up with posts.

I am so glad you are feeling a bit better Bridget. It all seems to come in bursts doesn't it? Feeling unwell, treatment, feeling better, unwell again, more pills a bit of a break when all seems OK (heaven) and then it all starts again.

So sorry Slim has been unwell Eve. It is awful being sick like that. Stephen would rather put up with quite a bit of pain than upchuck.

I think it is to do with the fact that as a child for years his parents had a caravan in Whitstable. Come h**l or high water they went every weekend in their doormobile to the caravan and Stephen spent the entire journey being sick in the back of the dormobile. He then spent the weekend bored and dreading the sick making journey back.

Gill

[GillParticipant]

The best of luck Nettie. I am petrified of heights and I think you are very, very brave.

I hope you raise a great deal of money.

All the best Gill

[GillParticipant]

HOODWINK

I have patted myself on the back for taking our minds off the dreaded mm with this silly game. Stephen's hospital appointment last night was fairly positive. (will post elsewhere over this.)

And PS to Roz you got it right but I think you made a typo with your alternative word. Did you mean seedling as in tiny plant?

C'mon

Somebody HOODWINK us all

[GillParticipant]

It's the wee small hours and I cannot sleep. How the heck does Stephen sleep so peacefully when he has this horrid, horrid mm and I am the one that lays awake, gets up, makes tea (or worse a glass of wine) It's tea tonight.

Min I love all the things that you have mentioned. I too am lucky enough to be adored by a very special man who fights all the way. But never for himself. He does not believe that you can fight an illness, but believes that you can decide not to "roll over, lay down and die quickly"

It would be great to keep this thread going it's a bright spark in a sea of what, can be, sadness.

I also love silly word games (the last 3 letters game is on my mind right now)

PS great to have you joining in Rozxx

[GillParticipant]

INSATIALBLE (spelling correct? I do hope so)

BLE anybody?

[GillParticipant]

Bonjour Mavis, Min, Mari et al. L'ecole et tres bien.

I had a wonderful time, felt very comfortable and came back on a great high. Everyone there seems to be on the same sort of level so I don't feel a complete idiot.

I was so nervous that Stephen dropped me off and picked me up. (I have driven for over 40 years but could not even think how to get to the college (have already attended at least 2 classes there!!!)

I am looking forward to next week and would try my French out on here but know that Lorraine (who lives in France) would catch me out as being hopeless:-)

Thank you all for your good wishes.

You are so right Min. Stephen said that, in the nicest possible way, it was good to have a couple of hours to himself and I came back full of the people I had met and the lesson. I suggested that he attended classes in hanging up his clothes, resisiting drying his hands on the towels while they are still covered in grubby soap suds and just annoying me in general:-)

None of which I want to change but Please Don't Tell Him:-)

[GillParticipant]

Hi Roz

You could try making a list of things that you would like done eg.When children or grandchildren come round get them foraging in the loft for those photos. I am sure that they will cause some tears but they will bring back some lovely memories.

The photo on here of us looks so jolly as Stephen pinched my bum just as the shutter went off:-) He had the blinking cheek to look straight into the camera and look innocent! but that photo is very special to me

Gill xxx

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