I cannot speak highly enough about Kings (Stephen had both his SCTs in there) but what a hassle for Slim to have to keep doing that journey.
We are lucky in that Stephen sees his consultant at a small local hospital near us an there are two chemo nurses there who we speak to. Stephen gets "discussed" with Prof Skye at Kings when the doctors have their case conferences but other than a few visits Stephen has always been seen locally
I am glad things are looking up a bit for you long may it continue
Kind regards Gillx
I am so, so sorry
Gill
What lovely posts
I agree with Dai Bridget will not be resting on her laurels but making friends and welcoming everybody. She will probably make people some very angel like brocho hats.
Thank you so much Bridget for your support, words of wisdom advice and, sometimes, just some silly fun.
With much love and sadness from Gill xxxx
I have my fingers crossed for you both, and hope Howard picks up soon. Have the hosital offered him any build up drinks? You can buy them from the pharmacy as a food substitute.
Kind regards Gill
Lovely to hear good news Good luck Gill
As David said things get lost so I will put in my tuppance worth again. We used MIA the first time we went away after Stephen was diagnosed. Then we discovered we were covered for travel on our health insurance policy. So we had paid twice for the first trip >:-(
Do check your existing policies before you pay out.
Bon Voyage Gill x
Tina my advice would be [b]Don't[/b]. If you are desperate for money you may not have a choice, but if you can trim down your living costs then just cocentrate on getting better.
It's my husband that has mm I signed off work with stress when he was first diagnosed as he was so ill then. After an exemplary record of attendance and decades of working with the same charitable organisation. They weren't at all charitable when I sent in my certificate and my manager phoned me at home almost daily to ask when I would be returning to work. I should have sued them for harrasment!
I ended up taking early retirement and have never regretted being at home with Stephen. We both enjoy the same things (mostly:-( ) and when he is watching the wretched cricket or some other silly thing depicting grown men chasing after a ball I am quite happy to potter about in the garden, read a book, take myself off somewhere etc.
I agree with everything that Dai and Tom have said and as a person that does not(as far as I know) have a life shortening illness I still believe that life is too bloody short to not get the most out of it.
Good luck with your decision Gill xx
Have you looked up neuropathy That can be caused by treatment. Tingly feet and hands and aches
Gill
I am so pleased that Slim is a little better . Stephen had platelets too it seemed to be the norm. I know that I get boring with my home spun ideas (couldn't spell phylosophy) but food is best served very little and often. Served on a tea plate it gives the illusion of tiny and doesn't overwhelm I am sure that Slim will go from strength to strength .
Big PS to Tom a Banshee does not run. She is little in a long nightgown with very long hair. She sits on the outside of your windowsill, wails and combs her hair. If you look at her she throws her comb at you. If it hits you BANG your dead
And I'm only one quarter Irish:-)
Love from Gill xxx
Well done you. Don't forget to check your existing insurance policies (we found Stephen was covered for travel without any extra premium) If not try MIA they covered Stephen before we looked at our existing policy :-/
Gill
Here's hoping that the rev and the dreaded dex do the trick
Dex for breakfast? I think I would rather stick to my toast and chunky marmalade washed down with a strong cup of coffee
Love from Gill
So pleased to hear your news Good luck yo you both
Love from Gill xxx
I wish you both huge luck I know well the journey to Kings I went from Orpington to Denmark Hill and trudged down that blooming hill to Kings with all the "tempting goodies" I could think of. Trudging back was lighter with dirty washing, mainly PJ bottoms (too much information.)
Stephen had both SCTs in Kings a great,wonderful and caring place. And! just a peice of really useless information that I am sure you will all be impressed with…. I was born there!!! They obviously turn out geniuses:-)
Do keep posting and let us all know how it is going
Love from Gilxx
Hi Avis,
Firstly congratulations on being in remission and long may it last. Secondly thank you so much for managing to get your company to sponsor mm uk. What a great achievment. I hope you keep in touch
Kind regards Gill
Hi Vicki
Stephen had 2 SCTs the first gave him 16 months. He sailed through it and felt quite guilty that others seemed to suffer. His second failed and he then was sorry that he had "wasted" some of the time he had left by being in hospital and feeling a bit weak. Hindsight is a wonderful thing:-| Obviously if the second SCT had worked he would have thought it was worth every minute.
I know of some people that have obtained remission for years and others, like Stephen, that don't get that long. The choice has to be Colin's
This is such an individual and unusual cancer that it seems nobody can predict how a person will respond. I do know that some have felt bloody aweful during SCT and others (like Stephen) just can't eat, feel grotty and poo a great deal. (gentle baby wipes for the bum is the order of the day:-)
I wish you the very best of luck in whatever road that Colin takes. Do keep in touch and let us know how it goes.
Much love from Gill xxx