Thank you all but it was for and about them, not me (if you see what I mean). I want a group hug and cuddles, I want to take their pain away… but I can't, so at least I can share a drop of humanity and try to tell them that I and we are always here… and when one of us drops away there is always, most unfortunately, a new group of wonderful,…[Read more]

Thanks Mari – I blame it on the dex – two lyrics, progress on my synopsis and I've tried to flog my publishing company to my sister >:-(

Busy, busy buzz.

Dai.

Thanks all, it gives me hope that velcade might be a working option that's for sure.

I naw aboot t'warm – Cushie Butterfield tawd me.

She's a big lass and a bonnie Lass she likes her beer
They call her Cushie Butterfield and I wish she war here. 🙂

Dai. – singing softly.

😎 😀 🙂

I have only had 3 infusions so far Gill (3rd yesterday – Thurs) and I have not had to take a single Movicol yet…. unheard of, I sniff them for a high when I've nothing better to do… I'm not in Stephen's league but I'm… chilled… laid back… incredibly loose.

Dai.

Don't listen to that guff from Gill Sally – she is a rock… immovable, enduring and wonderful. Gill and others on this board have maintained and sustained me from a distance more than they will ever know.

Dai.

Hi Ali,

Welcome, I am glad that you have found us. This is a wonderful site and we sit in our corner of it and try to support, succour, inform, befriend and.. well, just be for the most part.

You will find a great mix of people on/in different stages of the Myeloma 'journey', a good number are carer's like yourself, willing to share…[Read more]

Don't worry, not quite yet. 😎 😀 🙂

Dai. xxxx

Dear Susan,

Like David, my memory of Kevin is one of grateful acknowledgement for his help, advice and willingness to share. He was definitely 'one of the good guys' and for you so, so much more. God bless you and I hope that you have much love wrapped around you at this time.

Dai.

Ah Tina my love, I am so, so sorry that you have lost your Patrick. My thoughts and love and sense of loss are with you.

Much love,

Dai. xxx

Hi Tracey 🙂

Sharpy is fine, Tracey is better. 😀 😎

Dai.

Hi Mari,

Well I'm following Stephen and Keith, so please tag along. 😀

We keep on getting rain warnings and deep blue graphics on the weather charts but little actual wet stuff. Janet's going out into the garden with the hose pipe and tools tomorrow. 🙂

Dai.

That is good to hear Angelina… I hope John's next treatment works just as well

I recently met a woman at the Nottingham infoday who had responded well to treatments but not to the SCT. I believe she managed 18 months after Velcade and five or near six years on Revlimid and still going strong. There's hope for us all. 😀

Dai.

Hi Sharpy,

I started my CDT treatment in July 09 in a bad way with kappa light chains at 3,500 -they came down to 'negligible' after 2 cycles, complete remission after 3 and remained so after the 4th 'to be sure' cycle.

My consultant was adamant that I should press straight on to my SCT but I was not so sure because it took two attempts,…[Read more]

' It will be interesting to see if it comes back in a few days , feel a bit silly if it doesnt though!! '

I sincerely hope that you feel as daft as a brush you ninny. I will celebrate your silliness with you. xxx

Dai.