Roz,

Be guided by your feelings… as long as they are not those of guilt and obligation. You owe us nothing to feel guilty about and there is no obligation on you to keep on visiting this forum… especially if it causes you pain or hurt in any way.

But remember this dear Roz. We never knew Michael… we knew nothing about him whatsoever,…[Read more]

My pleasure was to stroke my guitars, even though I needed Janet to pick one up for me and place it in my lap. I was too weak to play but it felt good to hold it.

My SCT was in March, I was stroking/holding my guitars my the end of April. I first successfully picked one up and played it at the end of May.

And I haven't stopped since. :-)…[Read more]

Your poem speaks volumes Roz. When is the service? We will all be thinking of you.

Dai. xxx

Happy New Year to you too David and to all who grace this board. I truly hope that this next year is much better for you than the last, however good that was… or wasn't.:-)

Much love.

Dai.

Hi Shirley,

There is never a good time but there is part of me that wishes they could have kept you back a week or so – but never mind – home by the new year and then every single season yours to enjoy.

Regards

Dai xxx

My dear Roz,

I am so very sorry that you were both denied some quality time together over the last few months. I know how down you felt and we were trying to hope for you, that there could be a possibility for one last surge of resistance… but I think you knew.

Please keep in touch, especially over this next couple of weeks.

Much love,…[Read more]

I think that a simple blood test can pick up indicators of most things… if they ask the lab to do a full check… instead of a specific, which most do.

After being diagnosed with bone cancer as a secondary cancer (primary unknown) I was given a whole battery of tests, & scans including one looking for paraproteins (but I have light chain and…[Read more]

Gaye,

Nadolig Llawen
A
Blwyddyn
Newydd Dda

Merry Xmas
And
A Happy New Year

or (literally)

Christmas Merry
And
Year
New Good

Either way, any and all, have a lovely time and thank you for your lovely message.

Much love

Daixxx

Hi Bridget,

I'm sorry I missed your post, I haven't logged on as often as usual due to life and stuff. I am really sorry that you have had to pass 'GO' and get straight onto Revlimid… let's just hope that it suits you well and works for a looooooooooooonnnnnnnnnnnngggggggggg time.

Janet's had a nasty bout of something… well, nasty I…[Read more]

Good idea Debs – I sometimes wonder if first time visitors to this board are not a little daunted or frightened by some of the 'warts and all' postings. Of course they are an important part of the process but a little balance of positivity and hope would be an excellent addition IMHO.8-)

Dai.

Very good. I always enjoy the TaDa! punchlines.:-)

Hi David,

Sorry to hear that everything is normal.:-D

I think the best thing is to ask your GP if there is any risk about having it twice… dependent on your consultant's reply that is.

I was pretty neurotic for the first three or four months but I started to feel less so after my hair was back and I felt Ok about going to crowded…[Read more]

Hi Pamela, (As I typed your name I found myself pronouncing it a la 'Smithy', from the BBC's 'Gavin and Stacey', – 'Pam – El – Ah). 🙂

I haven't really looked into it yet (I either like surprises or I'm a fatalist… 'I'll deal with it when it arises') but I too have been told that I will need 'pins' – one in my upper left arm and one in…[Read more]

Can you slip your consultant a Christmas Cracker and get him to say that Stephen's clogs will be popped by next year? If he is still with us this time next year (and for several after that) you can tell the *&%$£^@!!!ing Bank Manager that is a miracle… its happened before. 😀 🙂 😎 >:-)

Dai.

Hi Shirley,

I hope the Christmas spirit and the festive season helps ease you through your SCT and that when you come out it really will be both a HAPPY and brand NEW year. 🙂 😎

Wishing you a Happy SCT and a Merry Xmas.:-D

Dai. xxx

Hi Roz,

If what Andrea has told you turns out to be the case then I hope that someone (perhaps Andrea?) can put you in touch with a local hospice. Even if the Doctor does decide on no more treatment for Myeloma there will still have to be a positive and structured plan for palliative care… and a regime of medication etc. because Michael…[Read more]

I can remember sleeping with an extra-large Greatcoat over my blankets in the winter and I was told it was my Granddad's from WW1, so I sort of 'wore it with pride'. It was only about twenty years ago that my mother admitted that she had got it (and several other very large coats) from a jumble sale because it was much cheaper than buying…[Read more]

Hi David,

Well this is not cricket my friend – great neutrophils and still not home.:'-(

Why oh why did the have to take out your central line so soon? Were you having trouble with it? It seems daft to me to rush a procedure that has infection risks attached to it when you could have had a couple of weeks recovery at home first. (I had…[Read more]