Hi Ellen,

Do you think you could add Plasma Cell Leukaemia to the list of related conditions? It is a very rare distant relative of MM and my wife suffered it for over 8 years (some sort of record).Treatment is the same as for MM
in the absence of deep research into the condition. I am happy to share my
knowledge of this "orphan". Heath

Thank you, you are kind.I am not an expert,but I made sure both Sue and I
understood what was happening,why etc. We had brilliant medical teams who
always explained what was what.

Dear Gill,
Thank you for your kind posting.

Hello. I just wanted to say that Myeloma has a very nasty,distant relative
known as Plasma Cell Leukaemia.Thankfully it is rare (one case a week in UK)but can be highly agressive with a very poor prognosis.
There is little information or research – no doubt because it is so rare.
My wife Sue died of it this April after eight and a half…[Read more]