Myeloma Forum | HeatherMacDermott | Friends Activity https://forum.myeloma.org.uk/members/Heathermac/activity/friends/ Activity feed for HeatherMacDermott's friends. Sat, 11 Apr 2026 13:30:20 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 366f2372e00f329c65e67a542093a98b Chris Cluff replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/page/2/#post-122838 Mon, 29 Jun 2015 22:23:48 +0100 Hi Vicki, long time no speak. I have been off the site for a while, but Lena keeps me updated on your news. I have even updated my profile! Sorry to hear that Colin is having a rough time, but keep your chin up, and hopefully they will get his temperature sorted and he can get back home – that will make him feel much better I am sure.
I have 3…[Read more]

]]> 9c29c0991d701f72dcb14980ac175177 bikerchris changed their profile picture https://forum.myeloma.org.uk/activity/p/39613/ Mon, 29 Jun 2015 22:12:42 +0100 0 18d29c2cf235278d392c8fff163e7818 Chris Cluff replied to the topic A year on from SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/a-year-on-from-sct/#post-111635 Thu, 26 Dec 2013 17:58:46 +0000 HI Carol, thanks for your post. It sounds as if your symptoms are similar to mine – after my CDT the readings were rising again, I guess because I had stopped taking the drugs.
It is a slightly scary though starting out on the Stem Cell treatment, but it is the best option we all have at present, and can buy precious years. I have heard of some…[Read more]

]]> 1c5a8dd2cb2c569bdf4a7850bbb34c9a Chris Cluff replied to the topic A year on from SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/a-year-on-from-sct/#post-111626 Wed, 25 Dec 2013 14:18:05 +0000 HI Vicky and all! I had my 3 monthly checkup and meeting with the consultant last week, and relieved to say that my PP’s were still stable at 15.5, pretty much as they have been for the last 9 months, although just after the SCT they were higher at about 20. I was pleased as I had been having a few back twinges, probably from overdoing things.…[Read more]

]]> 498753fbe54c3d61b5b6ac86b2854d8f Chris Cluff replied to the topic A year on from SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/a-year-on-from-sct/#post-111402 Sat, 14 Dec 2013 23:32:17 +0000 Hi Jean and Megan. No real side effects from Childhood injections, but I seem to have a never ending cold and cough. Have started reading Janet and John books, Tip and Mitten, and hope to graduate to Secret Seven very soon. Chris

]]> d0c3599be11a1c957d820d5817623b86 Chris Cluff replied to the topic Stem Cell Extraction-will I be able to continue working? in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-extractionwill-i-be-able-to-continue-working/#post-111401 Sat, 14 Dec 2013 23:25:09 +0000 Hi Carol, I had to check exactly what I did during my collection, but yes, I did carry on working. I had a few days to recover from the chemo, then did my injections in the mornings and went to work. I think I should have taken them in the evenings. I had 2 days up at the collection at Bristol, but the count was not high enough and it didn’t…[Read more]

]]> 78de3a677e93c1a3da5c58266c8dfa37 bikerchris posted a new activity comment https://forum.myeloma.org.uk/activity/p/233/#acomment-239 Sat, 14 Dec 2013 22:56:26 +0000 Hi Carol, well firstly good luck with the collection! Personally I had to have the very expensive GCSF to make mine work, but got there in the end. Yes, you can be ‘normal’ again! 2 years ago I was in a lot of pain, and could hardly crawl to the bathroom from my bed. Today I have put up a Christmas tree, and been out on my motorbike, which is…[Read more]

In reply to - Carolsymons replied to the topic A year on from SCT! in the forum Treatment Hi Chris Your upbeat post gives me hope. I am going through the stem cell collection process currently (chemo Wednesday, first […] ]]> 955bcdd4bedb610a19dafe6ae32e0232 Chris Cluff replied to the topic Newly diagnosed and shocked in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newly-diagnosed-and-shocked/page/2/#post-111394 Sat, 14 Dec 2013 00:38:04 +0000 Vikki and Colin, glad to hear you are doing well!
Chris and Lena x

]]> 915e7fa471234e797b79e824c6311227 Chris Cluff replied to the topic Newly diagnosed and shocked in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newly-diagnosed-and-shocked/#post-111393 Sat, 14 Dec 2013 00:33:47 +0000 HI Chrissie. I have just read your post, and it sounds as if you have been diagnosed at a very early stage. I am sure it was a terrible shock, but as time goes on you will find that there is a huge amount of support out there, and advice from friends on this site. I was diagnosed 2 years ago with MM and had quite severe symptoms. I was only 50,…[Read more]

]]> c1372ab6a55d4e162340ee9cb5bfb262 bikerchris started the topic A year on from SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/a-year-on-from-sct/ Fri, 13 Dec 2013 23:22:56 +0000 HI, it’s Chris here from Taunton. A few of you may have read my posts last year, but I have been off the radar for a while as I have been back to ‘normal’ life and not thinking too much about Myeloma.
Lena has told me about the re-vamped site, so I am having a look around at a few new members of the ‘club’.
I had my stem cell transplant in…[Read more]

]]> 223304dda80c6cadaa095611f3fd269f ChrisCluff replied to the topic Disability Living Allowance in the forum General http://www.myeloma.org.uk/forums/topic/disability-living-allowance/page/3/#post-94534 Tue, 19 Mar 2013 23:51:59 +0000 Hi Billy,
I was shocked to read how much trouble you were having making your insurance claim. I think the key to this is to have your GP on your side, as they have to fill in the most important part of the claim forms, but they are used to this type of illness and know what the insurance companies are looking for. They need the words 'malignant'…[Read more]

]]> 9b82d1ee24c005d884ef6a04c3f84749 ChrisCluff replied to the topic Pete's SCT - Done - now the recovery!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/petes-sct-done-now-the-recovery/page/4/#post-101870 Tue, 19 Mar 2013 23:00:08 +0000 HI Vicky and Colin,
Thanks for the message, we are both well thanks, and looking forward to some decent weather! I have had a horrible flu bug which put me in bed for a few days feeling rough, but apart from a bit of a cough I am much better, and Lena is fine.
How are your blood results doing? Mine havn't really shown much change, staying at…[Read more]

]]> 444c7b7079d299672c30ac8dd30fedcb ChrisCluff replied to the topic Pete's SCT - Done - now the recovery!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/petes-sct-done-now-the-recovery/page/4/#post-101868 Sun, 17 Mar 2013 23:39:23 +0000 HI Ann and Pete,
So glad that you have got Pete home and recovering, it sounds as if you are doing well Pete, and well done for getting back on the beer so soon! I know I felt miles better as soon as I was under my own roof.
I hope that you continue to improve, Pete and that your next check up goes well.
I have just about got over my flu,…[Read more]

]]> 74046eb96d1bcfe5d32426aaf6be768e ChrisCluff replied to the topic Pete's SCT - Done - now the recovery!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/petes-sct-done-now-the-recovery/page/3/#post-101855 Mon, 11 Mar 2013 23:58:15 +0000 Hi Anne and Pete,
Sorry I havn't been in again, but I was struck down by flu last week with a high temperature, and I was trying to stay out of hospital myself!
Had a few days in bed, couldn't move, but I'm a bit better now.
Lena has been keeping me posted, and I am sorry that Pete has been struggling so much with his bad throat pain. I am…[Read more]

]]> 0dabc7f3d61af4ec8ccea02b1f4973b6 ChrisCluff replied to the topic Pete's SCT - Done - now the recovery!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/petes-sct-done-now-the-recovery#post-101829 Sun, 24 Feb 2013 23:59:30 +0000 Hi Ann and Pete,
Well done Guys, at last those cells are in and you have done the hard bit!
The sweetcorn smell is pretty nauseating, and I felt a lot better one I tackled a shower to get rid of some of the smell!
I hope you get your room tomorrow, it makes a much shorter trip to the loo apart from evrything else!
You have done well seeing…[Read more]

]]> 899598934c17520fe8dbfde75c1ce7ef ChrisCluff replied to the topic Question.....maintenance treatment in the forum General http://www.myeloma.org.uk/forums/topic/questionmaintenance-treatment#post-94410 Mon, 18 Feb 2013 00:24:11 +0000 HI Vicky and Colin, thought I would drop in and say hi! and hope all goes well at your meeting this week about Colins treatment.
I am getting on fine, and pretty much back to 'normal', my hair is very short, but growing well now, and I am really busy at work and around the house. I still have a small dose of Oxycontin, and the doctors have…[Read more]

]]> 5858b952a1f1e7da6962f40cb205b3f2 ChrisCluff replied to the topic Pete's SCT - so it begins!!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/petes-sct-so-it-begins/page/3/#post-101219 Mon, 18 Feb 2013 00:10:02 +0000 Hi Anne and Pete, Sorry I have not been in touch, but I have been feeling good, and have been busy getting back into work. Well done Pete in your bumper cell collection – that Plerixafor is good stuff!
I send all our very best wishes from Lena and I for your treatment tomorrow, and hope it all goes well. I can only say that it wasn't as bad as I…[Read more]

]]> 1fe47122e13f8edafa557af55adb5f10 ChrisCluff replied to the topic Pete's SCT - so it begins!!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/petes-sct-so-it-begins/page/2/#post-101204 Thu, 20 Dec 2012 01:30:58 +0000 HI Vicki and Colin, I hope all is going ok with you both and Colins recovery. Has his taste come back ok?
Really sorry to hear about Colins Dad, a real blow when you have enough to deal with already. I went though the same thing with my Dad a couple of years ago, and it is a pretty traumatic and emotional time, no matter how infirm or ill they…[Read more]

]]> 0899da117a5cdacd1c6882e314f9cb86 ChrisCluff replied to the topic Pete's SCT - so it begins!!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/petes-sct-so-it-begins/page/2/#post-101207 Thu, 20 Dec 2012 01:25:22 +0000 Hi Anne and Pete,
Well done on getting the 1.6 million cells, that is really good going when the readings were under the magic '10'! Mine were so low first day, 2 I think, I was barely off the start line! No cigar there for me. 🙂
Let us know what the Doc says, but remember that they will give you the best advice to get the most out of the…[Read more]

]]> b3b6eb3bf7a59c36799a093125491546 ChrisCluff replied to the topic Phil's SCT Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/phils-sct-journey#post-101254 Thu, 20 Dec 2012 01:00:58 +0000 HI Megan,
Glad to hear that Phils SCT is going well so far – the various drips seem endless, and sometimes I forgot whether I was attached or not!
Good luck with the next few days, I was very pleased when I was moved to a single room once the old blood counts dropped, you don't really want to chat when you are feeling grotty, and the loo is…[Read more]

]]> 73cfc08708e26228a32cde83748b2840 ChrisCluff replied to the topic Pete's SCT - so it begins!!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/petes-sct-so-it-begins#post-101189 Tue, 11 Dec 2012 22:14:34 +0000 HI again, one other point about the stem cells, the collection isn't always successful, so the doctors don't usually fix dates until they have collected the right number, but once they have them bagged up they will crack on and book you in for the transplant within a few weeks, depending on work commitments and things.
It's best to look ahead…[Read more]

]]> 736aee981116ad91c0730447fd319e7b ChrisCluff replied to the topic Pete's SCT - so it begins!!!!! in the forum Treatment http://www.myeloma.org.uk/forums/topic/petes-sct-so-it-begins#post-101188 Tue, 11 Dec 2012 22:00:54 +0000 HI Ann and Pete, hey I can claim the first reply on your new thread! Congrats on setting it up – the beginning indeed, but hopefully the end of your course of treatment 🙂
In answer to your questions, the GCSF shouldn't have too many effects, but Pete should start feeling some aching, maybe in the lower back and legs, my legs were really tired…[Read more]

]]> 33b22d5a514cf975ed06088bfe27f9da ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/8/#post-100718 Wed, 05 Dec 2012 22:48:35 +0000 HI Ann,
Thanks for the post, no need to worry, I am doing fine considering it is only 2 and a half weeks since I came out of hospital! My taste has come back fine, and my mouth is ok again and I have plenty of energy, just takes a while to get going in the mornings. Have been to work a couple of days, and we went to 2 dinners over the weekend, so…[Read more]

]]> 776f391ee7406be1e696ffe94c7b00d1 ChrisCluff replied to the topic Colin SCT starting, here goes!!! :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-starting-here-goes-/page/7/#post-100879 Tue, 27 Nov 2012 00:25:51 +0000 Hi Vicky and Colin,
So pleased that you have finally got Colin home again, it is pretty overwhelming after being stuck in one clinical room for a month, not far short of being in prison really when there is no chance of escaping! I just loved being back under my own roof, but felt a bit vulnerable for a while.
I am sure you will pamper him, and…[Read more]

]]> 3764d9342751be13165cfb31fd96646d ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/8/#post-100713 Sat, 24 Nov 2012 23:14:27 +0000 Ahh, thanks Ange, I feel quite humbled!
I'm not too sure what I can say now the exciting bit is over, but I am really pleased that the thread was helpful – mostly down to the other Club members comments I am sure, but Lena always reads the various progress reports, and I will try to stick my two-pennorth in if I can offer advice to others. It is…[Read more]

]]> c15b3862f20484964988c2efa33f1e61 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/7/#post-100708 Sat, 24 Nov 2012 23:03:51 +0000 HI Vicky, So glad that Colin is improving and that they have got to the bottom of his pains, thats great! And you said he may be home tomorrow too, that is just brilliant, so pleased for you both.
I am absolutely fine, appetite really good, just as well as I lost about 5kg, and there is nothing of me! I'm stuffing in beer, chocolates, fish and…[Read more]

]]> 66d878a9bddce56fe37a8adcbc9a2372 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/8/#post-100711 Sat, 24 Nov 2012 22:22:23 +0000 Hi Anne and Pete, I am more than happy to offer a few words of 'wisdom', and feel quite honoured that you have asked, so please don't apologise because this is exactly what the forum is for.
You will probably be dealing with Dr Bolam who is charge of the transplants,, and is very well respected but can be a bit brief in his explanations!I quite…[Read more]

]]> 092dba04a709bad146b8f90219995026 ChrisCluff replied to the topic Colin SCT starting, here goes!!! :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-starting-here-goes-/page/6/#post-100872 Fri, 23 Nov 2012 22:39:33 +0000 HI Vicky,
glad to hear that the hospital are looking into the pains, I got the nurses to measure from my forearms a few times, or swap arms as they always used the right one ('it's what your right arm's for' do you remember that advert!) haha, where was I? Oh yes I was going to say that I was warned that 9 out of 10 patients get an infection,…[Read more]

]]> 4e034a2016ce013051451b6b609938e3 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/7/#post-100706 Fri, 23 Nov 2012 22:32:36 +0000 I had my latest check up at Outpatients today, and we did have to be patient too!
The good news was that my neuts are up to 0.95, and they have cut most of my meds now! We celebrated with a pub lunch and a look at some of the flooding which has been bad round here.
I am feeling that things have really turned a corner and that we may have…[Read more]

]]> 278be08531b645e5a002d283b78565cc ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/7/#post-100705 Fri, 23 Nov 2012 22:17:38 +0000 HI Karen,
I think you will find it easier to prepare if you know what you are letting yourself in for! It sounds scary all at once, but taken one small step at a time it's much less daunting! It's soon over really in the scheme of things.
They said from the start that most patients have 6-8 cycles of CTD, and my pp's took a long time to reach…[Read more]

]]> 5fd39f69d8dd8b60e5667b272dd866fe ChrisCluff replied to the topic Coming to terms in the forum Newcomers http://www.myeloma.org.uk/forums/topic/coming-to-terms/page/3/#post-86944 Thu, 22 Nov 2012 22:24:34 +0000 Hi Kes,
I wanted to welcome you to the 'Club', as a fairly new member since last November myself and a similar age to you.
I am really pleased that you have found the site as it the best way of finding out what is happening to you from people going through exactly the same thing. The hospitals are limited in the general help they give, and…[Read more]

]]> 2169ebd5de1a300612457f76e77d7fb8 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/7/#post-100702 Thu, 22 Nov 2012 19:56:21 +0000 HI Vicky, I have put a reply on your Blog,
Chris

]]> c4efff92a2d1850e8d4907bc519aa09e ChrisCluff replied to the topic Colin SCT starting, here goes!!! :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-starting-here-goes-/page/6/#post-100867 Thu, 22 Nov 2012 19:53:31 +0000 Hi Vicky, so sorry to hear about the false start on Tuesday, you must have been so upset having finally got him home! Colins sickness may well have been the temperature – a few months ago my temp suddenly shot up and I was really sick and ended up in the hospital. Definately sounds like withdrawal from the hospital food LOL!

Poor chap really is…[Read more]

]]> a64ca082f7f479983d536b9d8fcef20b ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/6/#post-100694 Tue, 20 Nov 2012 00:09:32 +0000 HI Vicky,
So glad to hear that all is looking good for Colin for this week, I am sure it will do him the world of good to be at home with you, and away from the Hospital.
My NP's still only 0.42, but they are on their way up, and I am back there on Friday for a monitoring checkup. Got the all clear today though,and home for good, so I am sure…[Read more]

]]> 3f708c882b53ba9446ef0104760ad9bb ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/7/#post-100698 Tue, 20 Nov 2012 00:04:11 +0000 Hi Megan,
Thank you, and I am really pleased that my ramblings have been of help to you and Phil! I really shouldn't worry about beating records, Tom is obviously a superhero with his 16 days! I was only given my proper discharge today, and my NP's are still 0.42, so a bit under the 0.5, and that has been 28 days since I went in. I feel really…[Read more]

]]> cba4c9191252a083038f472ed5172967 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/7/#post-100697 Mon, 19 Nov 2012 23:51:17 +0000 Hi Tom,
I agree, I went back into the Ward today for a last blood test and to get the 'all clear' which I did, so brilliant. But all the smells, and noises on the ward suddenly come back to you, and the fact that you are being watched over all the time.
I am taking it carefully, happy to potter around, but Lena is cooking some wonderful food,…[Read more]

]]> b4b65a7c3e9ed2f72650facb48144308 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/6/#post-100692 Sun, 18 Nov 2012 22:58:39 +0000 HI Ali, thanks and yes it's terrific to be at home, so much to do, but I am just enjoying being here with the family.
The end of Dallas was just great, I just LOL'd when old Cliff Barnes appeared, really wasn't expecting that one, and the next series should be just as good from the look of it! One of the hospital staff was into it, and we…[Read more]

]]> 82c0ab083989f9ffa1d219ee6fb3b623 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/6/#post-100688 Sun, 18 Nov 2012 22:52:13 +0000 HI Katie,
Glad to help, and yes I'm doing fine. Get your Dad to start a new blog, and we will all chip in to keep his spirits up! It sounds like he is an active bloke, and it really helps to look ahead and plan what you're going to do once you are better again.
Chris

]]> df7b47e1afa8b4cc333f1fbb66e6f10e ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/6/#post-100686 Sun, 18 Nov 2012 17:50:43 +0000 HI Katie,

I said I would give more thought to what your Dad may do during his stay. Everone reacts differently to the treatment, and he will be very tired and not feeling much like eating. I found I could do a few e-mails or see a visitor, and then most afternoons I slept a bit, and I found I didn't sleep well at night as the nurses do wake…[Read more]

]]> 7b72e79444cb11b865717d4cacd8d127 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/6/#post-100683 Sat, 17 Nov 2012 21:48:35 +0000 HI team and thanks for all your kind words, it is so thoughtful of you!
It has been one of my best days of this year being back home, I lit a fire in the sitting room, and have been keeping warm in from of the cosy flames messing about with coal and wood – the doctors would love me!
It was very strange going out into the fresh air today – cap…[Read more]

]]> 621b2d6130f264a38c09f350eeff59f1 ChrisCluff replied to the topic Neutrophil recovery after SCT in the forum General http://www.myeloma.org.uk/forums/topic/neutrophil-recovery-after-sct#post-93781 Fri, 16 Nov 2012 15:41:44 +0000 HI Phil,
I hope your results were encouraging this week, I only had my SCT 3 1/2 weeks ago, and it's early days for my neutros only 0.35, but they are letting me home tomorrow. I have no idea about pp's but mine were at a steady 18-20 before my Transplant, so it will be interesting to see what they are now.

Can I butt into your blog as my…[Read more]

]]> d74ec5710665cfbb447bdc34d5f7d979 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/5/#post-100676 Fri, 16 Nov 2012 15:24:36 +0000 Hi Team Myeloma!

Well, I have had the news I have been waiting for – the consultant has said that I can go home tomorrow, as long as nothing drastic happens overnight of course! 😀

My neutro's are up to 0.35, not quite 0.5, but I am otherwise well, and feeling good.

At Musgrove they haven't given me GCSF after the transplant as they…[Read more]

]]> 38869cb89791ba861b4f9da33f20bd8d ChrisCluff replied to the topic Colin SCT starting, here goes!!! :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-starting-here-goes-/page/4/#post-100839 Tue, 13 Nov 2012 22:20:42 +0000 HI Vicky,
Good news about Colin, I had the rash too on my back which drove me mad for a while, but much better now. Good luck with the sickness, it's the worst thing.
The race is on then to see who can get out first!!! 🙂 On your marks…..
Best wishes from us both,

Chris and Lena x

]]> ad59362570a04b797e059ec6b51fcaaf ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/5/#post-100671 Tue, 13 Nov 2012 22:02:59 +0000 HI All,

Thanks for the post Vicky, and for the update on Colin, great to hear that his readings are on the up, and I am sure his tummy will recover soon.

I had a resting day today, and felt a bit off, but my bloods are improving except my neutrophils which remain stubbornly static at 0.015. At this rate I will still be here at…[Read more]

]]> 9f42f3ad9e334934c3155acabbed05e9 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/5/#post-100668 Sun, 11 Nov 2012 12:43:07 +0000 Ooops 0.12 n phils. Chemobrain.
Hope more tomorrow……
Cheers everone!
Chris

]]> 04adebbe55ee64f290df4aed31870355 ChrisCluff replied to the topic CTD Finished and came home on Wednesday 31st in the forum Treatment http://www.myeloma.org.uk/forums/topic/ctd-finished-and-came-home-on-wednesday-31st#post-100916 Sat, 10 Nov 2012 22:02:51 +0000 HI Tina, glad to hear that you have managed to get home again, well done!
I am waiting for my release, but am longing to be at home with my own 'stuff'!
I am really fussy about my food at present, but I would say stick with the things you fancy, a bit at a time. I love coke which seems to help the sickness, I can't taste much else, and I used…[Read more]

]]> d4865e26ac59c6ef2d4ecc5acdff5a67 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/4/#post-100664 Sat, 10 Nov 2012 18:52:31 +0000 Hi Vicky,
I hope that Colin in feeling better.
I am much better now, Day 19, and my neutrophils and blood levels are rising fast! I am on 1.2 np now after 0.01 lowest, so pretty hot! Also my infection is gone so I am off the antibiotics which may help the tummy.
I am aiming for home after 0.5, but likely to be end of the week yet, but…[Read more]

]]> 143a2d79a0a4857ab1877002e2ac3f5f ChrisCluff replied to the topic Colin SCT starting, here goes!!! :-) in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-starting-here-goes-/page/3/#post-100825 Thu, 08 Nov 2012 12:49:10 +0000 HI Vicky,
Sorry that Colin is so rough, as Tom says, it is so hard when we go in feeling fine and fit, but quickly become so rough, but we have to focus on the larger picture, and it will be worth it to have a normal life again.
Every little step is a positive, whether a small meal, or a shower, or a visitor, and I am just tackling one day at…[Read more]

]]> 8e7ce4942bf5e9692a0b4598f84d4aa5 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/4/#post-100660 Thu, 08 Nov 2012 12:37:55 +0000 Hello everyone from Ward 9. I am soldiering on, and making slow progress, but steadily feeling better which will be encouraging to Colin.
The old runs are set in to stay, but under control really – running shoes not necessary! I am waiting for the pp's to pickup, and havn't had them today, yesterday still on 0.03.
On the whole I am ok, and…[Read more]

]]> 3c29338f9558a31ec423b96e09545c09 ChrisCluff replied to the topic REVVING UP FOR SCT! in the forum Treatment http://www.myeloma.org.uk/forums/topic/revving-up-for-sct/page/4/#post-100654 Mon, 05 Nov 2012 22:10:37 +0000 HI Vicky and Colin, and everyone.
I hope your day has been ok.
I am on a lot of antibiotics now, every few hours, and the old temperature is under control at the moment – good thing – but seems to have triggered the 'trots', although that may be the chemo.
Another good thing, the 'north and south' is much better (google rhyming slang for…[Read more]

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