Hi
Any thing well washed and cooked thoroughly should be ok and yes avoid prepackaged
Helen

Hi Maureen and Andy
I’m just finishing cycle 31 of the Pomalidomide and start the Daratumumab next Tuesday- just hope it works – fingers and toes all crossed!!
Hope Ian does well on his next regimen and Andy – the same applies to you too.
Our trip to Amsterdam was very nice though it rained a lot, the next jaunt is to Keswick at the end of April…[Read more]

Hi Maureen and Andy
I’m just finishing cycle 31 of the and

Hi Maureen
I’m sorry to hear what you say about Ian’s treatment options- it’s not easy to deal with- when you know that the drugs are out there – NICE have said no to Carfilzomib too and Daratumumab isn’t through yet either. Have they suggested Bendamustine for Ian? It’s my next one if things don’t pan out with the Daratumumab trial.
I was lucky…[Read more]

Hi Rebecca Ann Andy and Jan
Hope this post finds you all in a tolerable state -and thank you for your supportive replies to which I am only getting round to replying! Very rude of me.
I’m still living in a furniture store but it is gradually getting sorted and a lot of stuff is heading for the auction room!

I’m on cycle 30 of the Pomalidomide…[Read more]

Dear Eve
How are you getting on? How was Christmas? Are you home yet and hows the old dog getting on? I think you are so very adventurous and I love that you just got up and went on your trip, turning dream to reality, keep going girl.
Let us know how you are doing
Much love Helen

Hi there Ali, Jan, Ann, Denise, Rebecca and Melanie and many thanks to you all for your kind replies. It’s nice to know you are out there.
I’ve found this milestone a funny one as it suddenly seems quite a long time now since this journey began and I feel relatively good. I’m not as angry about the situation at last… That’s something that has…[Read more]

Hi Jan
I waited for 4 weeks after finishing chemo for stem cell collection then 4 weeks after that for transplant, but I’ve only had the one transplant and I think it’s unlikely that I’ll have another as my cytogenetic problem is one where auto transplant is least effective, but who knows what might happen if I run out of other options.
You look…[Read more]

Hi Jan
I’m not too good at responding these days! Out of signal predominantly.
Glad to hear the velcade is working- I had to have the reduced dose as it affected my legs quite badly but it did give me a few tolerable months.
When do you anticipate having the next transplant? And I think I’d better do as Mavis asks and start a new post, this one…[Read more]

Hi Jan
How is the velcade going now? Got the sickness under control yet? It’s not nice trying to balance all the side effects.. I think I feel worse trying to deal with the vagaries of the constipation caused by this and the runs caused by that- so that sometimes I just stay at home because I can’t plan a route that includes enough toilets!!!
I…[Read more]

Dear Eve
Ha ha ha – do you have the pattern for this!!! I wonder what people would say – it’s almost worth it for the laugh, my husband could have worn them last week in freezing Austria. Are you back in the uk for Christmas or still away. Any newzealanders visitors? None of ours are making the trip this year, too many babies and no money, but…[Read more]

Hi Andy
I’m back from Austria – very nice, beautiful, clean pretty chocolate boxy villages and gorgeous Salzburg, did some walks in the snow and the Christmas markets. Quite festive, but very cold -7 at night and -4 during the day.
Good to see you recovering well, got all your Christmas shopping done yet? I haven’t – clueless as to what to get!…[Read more]

Hi Andy
I’m back from Austria – very nice, beautiful, clean pretty chocolate boxy villages and gorgeous Salzburg, did some walks in the snow and the Christmas markets. Quite festive, but very cold -7 at night and -4 during the day.
Good to see you recovering well, got all your Christmas shopping done yet? I haven’t – clueless as to what to get!…[Read more]

Dear Eve
I do hope I don’t really sound as though I’m giving up on hope, I’m not, though I suppose that the constant round of treatment is getting very wearing at times and it becomes more difficult to sound as optimistic as I used to. Soon it will be 5 years – when I say it like that it sounds like a long time really and I’m pretty well despite…[Read more]

Hi Jan
I seem to have been absent again, I blame the poor internet signal I am subject to here! I must get this iPad seen to! Number one son has job with apple care now so will get him to fix it I think! The music business is now an evening thing, I think he realises that until he gets his lucky break he has to earn a living somehow!
How is the…[Read more]