Better pack the snow shoes Ted, and the thermals it's nippy up here.
Love Helen

Hi Ted, happy to help, better get to grips with your high fluid intake now, I'm still finding it a bit tedious to drink as much as they advise.
Love Helen

Many happy returns to all the stem cells! Tom , that's a heck of a lot of cards;-)
Love Helen

Hi Ali
What a good photo, your mum and dad look really happy together.:-)
Love Helen

Hi Ted
The abnormal paraprotein in myeloma is usually found as a whole molecule – like a Y shape, for example igA igG igM. But some people only have small whole pp levels but produce large numbers of small sections of the pp, these are called light chains or Bence Jones proteins and are usually found in the urine. With the new free lite tests you…[Read more]

Dear Dai
It is good to hear you are feeling a bit better and back to getting out again, despite the weather. Whilst not flooded, we have just switched our ground floor electrics back on again having had a blackout last Tuesday, some wire under the floor was no doubt sitting in a puddle. I hope the bloods are no worse on Monday and you get to…[Read more]

Hi Sarah
I've had infection after infection since my SCT , I've been on 3 lots of A/Bs since august and the idea of giving me immunoglobulin was raised about 6 weeks ago. But a decision not to give me immunoglobulin was made based on the fact that the whooping cough testing showed i was producing lots of good antibodies against the infection, my…[Read more]

Well done Eve, so glad you got there, how are the family? can't wait to see some photos. I think I'd spend a day or 2 looking at the sea, it's so beautiful, we stayed in a beach house for a few days when we went, and it was just fabulous to get up and see that view every morning. It's so encouraging to know you've finally got there.
Love…

Hi Vikki
Good results indeed, my neutrophils have hovered round 1.5 since transplant, and WCC around 3. So he's doing ok. It's just slow and steady from here on in. It will almost be boring as recovery is so slow. But we like boring, it means nothing awful is happening!:-)
Love Helen

Hi Ali
I've had tummy trouble since the beginning, we were never sure what was the cause but now I'm just on the Revlimid I know how it affects me now and there is a pattern. But it is worth it if it keeps the mm at bay.
As for the itchy head, I had big problems with the wig, it itched at the sides until I couldn't bear it any more. One day I…[Read more]

Hi Vikki
Well done, a mile stone at last, hope he stays there! Yes it's a bit of a funny thing coming home, I got very down after a few days too, I think it was to do with all the hype before hand, then you sit there …… and sleep….. and think……..then you decide ' I will go and make some tea' and you get back to bed/ sofa and find just…[Read more]

Hi Andy
Good results, my neutrophils are only 1.4 and I'm told I'm showing good levels. see you soon
Love Helen

Hi David
Really glad the anniversary plans all came together and you clearly had such a good time, so exactly who is in that tub with you, none of the girls looks old enough to have been married THAT long;-)
Love Helen

Dear Ali and Babs
I'm just back from weekend away, Peebles this time. Very cold and crisp.
Anyway, I've now had a year on the Revlimid as maintenance and I just thought I'd put in my 2p worth on the time of day for taking it. Because it makes me very tired about an hour after I've taken it, I find it much better to take it at about 7-8 pm ,…[Read more]

Not long to go now. you must be so excited. Have a great holiday Eve, the sleep outs are ok, my nephew has one out there, yes it is a shed but if the weather is good you won't notice:-P Tell slim you can put in miles of walking on a long haul aircraft, and it helps pass the time too:-) love Helen

Hi Keith
Just a note to add to the others, hoping this treatment goes well for you and keeps the mm at bay for a long time. Hope you aren't too tired after the infusions
Love Helen.

Hi Sarah
Totally personal decision. Very scary times, its not pleasant, I took 11 months to recover to a real sense of 'wellness' but I'm pretty good now. 15 months since SCT, in complete remission, on Revlimid maintenance and back to work full time. Recent posts by Vikki and Chris explain the process very well, and Sue describes other things to…[Read more]

Hi Ali
Good news for your mum and the rest of you, and hope side effects are few, I have just completed my first year on Revlimid since my SCT. I'm still improving even now.
Hope all this progress continues and life returns to a more even keel.
Love Helen (still coughing)

Hi Eve
I think they are all correct too, while you've concentrated all your energy on Slim, your body hasn't had a rest. Now that the constant adrenalin rushes are over, your body is trying to regroup. This holiday is what you need, go and enjoy it, I hope you have a magical time with your grandchildren. When do you go?
Love Helen
P.s. next…[Read more]

Hi Vikki
Sounds like he's doing ok, I couldn't walk anywhere when I was in hospital, so going up and down stairs is good. I spent 2 weeks going from bed to loo, and back only!:-( No sitting in a chair, no tv, no reading ,knitting, or magazines. I used my phone and iPad a bit. It took me all my time to shower every day and drink enough to keep…[Read more]