Whoa Dai, you are lucky Janet is so on the ball, Horlick's (ugh) only for you now to help you sleep:-)
Helen

Hi Jean – they are beautiful perhaps their mums just share good taste!
Love Helen

Hi Teresa
No the snow didn't lie and as we are on the edge of the city it was too warm for thick frost so here's hoping. I have tried alliums every year for the last decade with no long term luck except for 2. One is as femma as a spring onion and the other just grows leaves, no idea why, i normally have quite green fingers, but there, sometimes…[Read more]

Hello Mavis
I wondered where you had got to, you have always been there when I've posted so your absence was very strange after all this time.
I'm glad to hear that things are getting sorted so that life back at home will be easier for you, but you will be missing the busy time in church, time for a rest. The tiredness does get a bit easier,…[Read more]

Hi Ian
No……. But only been on it for 4 months as induction chemo and the last 5 months as maintenance. How long have you been on it and what neuropathy do you get?
Love Helen

Oh Dai I didn't realise that you already had arm involvement. Stress fractures need very little 'stress' sometimes to occur. I'll think of you sitting in clinic while I too sit in clinic and will wait to hear how you get on.
Love Helen

Hi Dai
I think you should really whinge about your shoulder when you next go. Mm might be smoke screening and there are lots of really painful shoulder things- like frozen shoulder, impingement or painful arc syndrome, all of which are simple (as in not 'serious') but need lots of pain relief and physio because they can mess up normal life and…[Read more]

Dear Teresa
I'm so sorry to hear that the trial has failed so quickly for Peter, that must be so hard to bear. What is the next plan for him?

I finished all the pots last weekend, planted with alliums and lilies, then we had snow for 3 days! Heaven knows what will grow now:-P
Love Helen

Hi Nicola
That's a fantastic send off for your dad, you must feel so proud that people thought so much about him, I hope that gives you a little bit of strength to cope with the tearful times.
Thinking of you
Love Helen

Hi Tina et al
If you need pain relief, take it. I have looked after people who have taken colossal doses of opiates and functioned very well for years. ( you wouldn't believe the amounts we see in the addicion service:-P ) There is nothing so wearying and depressing as pain. As long as your docs are aware of what you take they generally don't…[Read more]

Hi Kay and all
I'm a few weeks ahead of you on the sct front and also have the curls now, getting them cut next week, will post new photo then I think. Today I can barely move, having woken up with severe back pain, the first I've had for a year as it went when I started the chemo last February, I'm hoping it will settle in a day or so, and I did…[Read more]

Hi Sarah
Good to hear Henry doing well, now lots of food and sleep and mending
Love Helen

Hi Neelie
What an awful experience, your poor dad. I think a letter to the practice asking how this decision was made is in order. I had my blood taken a year before diagnosis because I was anaemic and was told the results were ok and stop worrying about them! Turns out 12 months later when they were repeated, the telltale signs had always been…[Read more]

Hi Andy
Always been a night bird, descended from a long line of owls I think, and never used to need more than 6 hours sleep. Now I need about10! Dex time is weird, I could never switch my brain off, so even when I think I was asleep I felt awake, – dreaming was vivid reruns of the day and little plans for the next.

Hi Susie
A few days pain…[Read more]

How are you now Andy ? Can't sleep I guess!!
Helen

Hi Mavis
How are you now? Have you got the pain under control yet?
Love Helen

Hi Susie
Welcome
A very worrying time for you but Kay seems to have covered it well. I have a different, low secretory myeloma so my pp was only 5 at its highest, though the anaemia I had meant immediate treatment. Each of us has their own 'level' and the pp is only one of the measurements used, when all the tests are done then they will decide…[Read more]

Hi Elizabeth
I only use my iPad and can't work out how to cut and paste anything but see how it will work on the pc, very clever
Love Helen

Hi all
Yes I was told alcohol was permitted but not stonking drunk! Since being on the revlimid though I can't bear the taste, it feels like its laced with chile and burns, but I'm keeping on trying, on a weekly basis….. The taste has to come back….:-(
Helen with cup of mint tea in hand…….

Well done Becky, don't they make you proud to be their parents, Dai and Janet.
Helen