Hi Eva

Ian's mum and dad who are in their 80's visit twice a week in the afternoon and some of his workmates usually go in once a week. It gives me a break from afternoon vists and I have more energy to visit at night. My sisters ar eno help. One hasn't spoken to me in 8 years and the other only sends text messages. I have good friends who…[Read more]

Hi Tom

Ian had as good a birthday as possible. I baked him a cake and bought him the series of the wire. He got nice face creams and lots of cards, including one from his work. His nickname was soapy as in oor wullie as he had curly hair and they designed a card with his name and a monkey on the front. He did laugh.

Thanks for your…[Read more]

Hi Eva

Ian's birthday went as well as can be expected. I baked him a cake and bought him the series of the wire on dvd. He also got nice face creams and lots of cards.

We had good news that his light chains are now down to 147 and paraprotiens are now 5 but his myeloma his mostly light chains.

He used to like playing games but has lost…[Read more]

Hi Ner sorry to hear about your mum sounded really bad !!! I was the same starting with rib pain, back, then finally my left hip and as your mum the doctor kept saying it was muscular !!!!! Anyway eventually after nearly a year a blood test came back and the bomb shell news myeloma !!!!
Started on cemo thalidomide and steroids and eventually my…[Read more]

Hi Dai

Hope you have managed to escape the lurgy. I have 2 small grandchildren and I stay away when they have the sniffles as I seem to pick up everything from them, but I love them to bits.

Maureen

Thanks Tom

Hope we get good news about Ian's light chains next week. Bed sore now starting to heal.

Maureen

Thanks Helen

Ian is cranky when he is on the steroids and I am exhausted when I visit twice a day so I'm afraid I haven't got much patience. Trying to get Ian to use his tablet and take his mind of the things that go wrong in hospital. Trying to motivate him more.

Hope we get good news about his light chains next week.

Bed sore now…[Read more]

wishing you well. Hope Pete recovers soon

Maureen x

Your story has given us hope. My husband is still in rehabilitation after 4 months in hospital for spinal operations as he has partial paralysis. He is has just finished cycle 2 on CTD and we get his results tomorrow.

Fingers crossed the treatment is working and we can get him home soon.

Maureen

Hi Sue

Sorry isn't enough but you will also feel releived that Michael isn't suffering any more. I know you will miss him terribly but also have happy memories of your time together.

I do wish they would find a cure for this disease.

For now take comfort in your family and friends and when you are ready live life to the full.

Love…[Read more]

Hi Tom just saw this discuss'ion and just thought I'd put my two peneth in lol
It's two years yesterday that I was diagnosed big big shock !!!!! Anyway two years on after all the treatment sct ect I'm doing ok'ish !!!! But I'v not worked since I couldn't like you I had a six start on my feet all day cutting bacon I struggled for a whole year…[Read more]

Hi Helen

It is a big shock to discover that you have myeloma but as you say Ian can make progress. I try to get him to think of the positive things that have happened but it must be hard for him to lie in bed every day. He is on day 12 today a dex day so he will be stronger to do more physio.

I find I need a release and try to get some of…[Read more]

Hi Eve

Thanks for your advice. I have started massaging his pressure points but as he is not in a room on his own I can only do some of them but Ian does like it. Doctor has decided that he can get out of bed and sit on a special chair for one hour per day.

Not very impressed with NHS as Ian is always worried about his care and the…[Read more]

Megan

Thanks for your reply. We are trying to stay positive as the bed sore has to heal before Ian can move forward. We just take a day at a time.

My daughter is having a civil wedding in July in London and hopefully Ian will be well enogh to attend. That is his next goal.

Maureen x

Hi Eve

Ian got the bed sore when he was in Edinburgh waiting for his spinal wound to heal. The nursed there turned hime every 2 hours but when he was transferred back to FVH the nurses didn't turn him as they said the air bed was enough. This is what has set Ian back and he is now getting turned every 2 hours. I

I am working 3 days and…[Read more]

Hi Eva

We don't know yet how mobile Ian will be but doctor is quie sure he will be.

I visit Ian twice a day from 2-3pm and 6.30 to 8pm. I live 30 minutes away from Falkirk and finding it hard and exhausting some times. His family are visitng today and tomorrow at 2pm which gives me 2 days to catch up with housework.

I am taking time…[Read more]