Dai

Pleased that your treatment is working. The waiting time you had was horrid and I hope you continue to keep well.

Ian is now in rehab in Falkirk. He was sent last Friday but on Sunday had a temperature of 38 so the gp thought he should go bakc to FVH. We had to wait 4 hours on an ambulance and then another 2hours for a doctor to see…[Read more]

So sorry to hear Michael passed away but he is now at peace. Look after yourself and take support from your family.

You did eveything you could for him.

God bless.

Maureen x

Hi Lorry I see you say You'v had shingle pain for 6 months !!!!!! I'v just come down with shingles this week and the pain was horriable at first I thought it was my myeloma back but then realised it was a different pain more like a stabbing !!! Anyway now the rash has come out and I'm on anti viral tablets 5 times a day and pain killers feeling a…[Read more]

Hi Sue

I can't imagine what you are feeling and hope that all our prayers will help you and Michael. Life is so unkind, my husband Ian was diagnosed in October and has lost the use of his legs as he had a compressed spine. I didn't sleep and cried for 3 weeks. Sometimes I think he will walk again and have at least 10 years but other times I…[Read more]

Thanks Tom

I'll keep you updated on Ian's progress. Fingers crossed he will be ok on the dex.

Beautiful day today. Might get out in the garden to tidy up.

Take care

Maureen

Hi Peter

Thanks for your help. Ian cannot walk so going he needs physio and treatment for myeloma. He cannot walk YET but he has been transferred to Falkirk for physio and rehabilitation.

No good having private insurance in Scotland for myeloma as no one treats it. bah

Hopefully Ian will be ok on the dex as it makes him very…[Read more]

Hi Jo

Thanks for replying. Ian had bad side effects from the dex first time round. Couldn't sleep very anxious so I hope he will be ok this time. We do not know if he will get SCT as he has had 3 ops on his spine so he will have to be assessed later.

Have you had SCT?

Maureen

Hi Tom

Thanks for your reply. Ian was well today so I think it is when he is coming down off the steroids his mood changes. We have just been told that he will be moving to Falkirk Royal tomorrow for intense physio and rehabilitation. It is one step[ nearer him coming home.

I bought Ian a tablet so perhaps he will go on the myeloma site…[Read more]

Hi Eve

Ian is ok now, and we have just been told he is being transferred to Falkirk tomorrow for intense physio and rehabilitation. It's great news as it's one step nearer to having him home. Ian is a little anxious as he doesn't like change and likes to be in control, but I'm sure it will be ok.

Ian sent me a valetine through moonpig…[Read more]

Hi Helen

Thanks for your advice.

Ian is in hospital and I mentioned to the nurse about his confusion when I was visiting. I have now phoned and asked if it could be a subclinical infection but they have taken blood samples which are fine. They are now testing his urine.

Maureen

Hi Helen

I mad an appointment with my gp today to discuss councelling as I think it will help me. Ian had councelling when he was not in the land of the living so I have requested that he has it again.

We are talking more now (switiching off the tv) and we are both very emotional. Ian's fear is that he will not walk again while mine's is…[Read more]

Hello Dai

Ian has been depressed this week and a little tearful which is hard for me to watch. I am finding it hard coping. How do you cope? I went back to work part time but I don't know if I did the right thing. Work isn't stressful but I find it difficult not to be emotional. I find I am anxious, heartbroken to see Ian cannot get out of…[Read more]

Hi Dai

It has been a hard week for us both. Ian has been depressed and has been a little tearful. He thinks he won't walk again. I have been feeling anxious, sad and lonely andd have gone back on my tablets. How do you cope? I went back to work part time but my heart isn't in it anymore. I will persevere a few weeks and see what happens…[Read more]

Hi Gill

I can sympathise with you. I also had the worst Christmas ever. My husband Ian was told on Christmas Eve that he would need another operation (3rd since 29 October)to take out the pin in his spine as the wound was not healing quickly enough. I started crying on the morning of Christmas Eve and didn't stop until Christmas was over.…[Read more]

Hi Dai

Thanks for your reply. Ian had only one cycle of CTD as he had the infection in his spinal wound and had to stop the chemo in order that the wound might heal. He did have a good response but was totally ga ga. Hopefully it was the infection and he will be ok on CTD this timeas as his anxiety has gone and we have now come to terms with…[Read more]