Hi Eve

Ian is a little anxious to restart chemo as he had severe side effects from CDT. He will be in hospital as he isn't walking yet but we are hopefull that with good physiotherapy and rehabilitation he will have some mobility.

He is being moved to a hospital nearer our home but I will have to look out for him as he was an inpatient…[Read more]

Hi Jo

Thanks for your reply. Ian is a little anxious starting chemo again as he had severe side effects from CDT. Does he have to have strong doses of steroids?

He isn't walking yet so he will be in hospital but we are hopefull he will get some mobility when he receives physiotherapy and rehabilitation.

Hope you are keeping well.

Maureen

Hi Keith

My husband will start taking Velcade on Wednesday. He is a little anxious as he could not tolerate the CDT. Hopefully he will not have severe side effects.

Maureen

Hi Dai

Thanks for your reply. Ian is a little anxious at staring chemo again as he could not tolerate CDT. He is not walking yet but hopefully it won't be too long until he goes for physiotherapy and rehabilitation. It will be nice when he comes home.

Maureen

It will improve the Melphalans affect last a while .
Sleep when you need to ,your body is weak just make sure you walk about everyso often to prevent clots and ch infection etc.

Im a wimp and still 7months after sct I need to sleep in day most days or just rest especially after a busy day and when i sleep im deep deep sleeping like body really…[Read more]

I would include calcium(kidney function) in that and creatinine(kidney function) ,beta 2 microglobulin (if increasing may be first sign things are on turn) ,and free light chains( pp have a long half life so the test ist as up to date the current whats happening free lights show what happening maybe ages before pp rise and some become non…[Read more]

Hi Stevo,
It isnt auto absorbed it has to be broken down in the stomach,absorbed into bloodstream.I took it 30 mins ish after sleeping tablets then for me i could get to sleep 🙂

What works for one doesnt for another happy dex times,unforgettable

best wishes
Sue

Hi Stevo,can only half raise mine as i did enjoy the supercharged brain dex effect ,i suddenly organised lots i'd never sorted like a mega spring clean but the zombie crash feeling is not nice.
My family always knew my dex days as i talked for england 😀
I took mine before bed but still had disrupted sleep

best wishes
Sue

Hi Keith.

I only know from my asct my platelets went down to 1… I had numerous platelet infusions.
I think their magic number was 10 and below=platelets given and i was allowed home when above 10 under that i was too big a bleed risk.

The spleen can sponge up platelets reducing the circulating ones ,if theres liver problemsare your…[Read more]

Hi Stewart

Venessa can contact me if she wishes. I too am struggling to come to terms with Ian's MM. The doctor has prescribed diazapan for me and I take it when I need it. It makes me feel calmer but I also believe that god will look after us. What age is Elsie?

I had a down day today, shopping in the supermarket, a nightmare. What do…[Read more]

Hi Stewart

My husband was daignosed in October at the age of 56 with MM. It has been a great shock to us. I cried continually for the fiorst 3 weeks. The doctors has given me vallium which I take when I need it. I stay strong when I visit my husband in hospital.

Do you live in Scotland as you are a hearts fan.

Maureen

Hi David

Ian is in better spirits and is eating better. His psinal wound is looking better and he is moveing his left leg and alos has movement in his left leg but his hands are weak.

I am thinking positively and we will try and have as nice a Christmas as possible. He is allowed a small glass of champagne. It will be very hard as this is…[Read more]

Val what wonderful news 🙂 4 years in remission after secondsct.
Thanks for sharing

How long did you get from first sct? also how do you manage to get the Thal,were you part of a trial.
I havent found maintenance availiable unless trials here.
I had my asct in May and despite good bloods i have increasing bone pain in lesion areas from…[Read more]

Hi Angie
Stumbled onto your message. We live in Dunblane and my husbnad Ian has been diagnosed with MM on 24 October. He had to have a spinal operation as his spine started to crumble when the steroids started attacking the tumour. He has had to return for further surgery to the Western General in Edinburgh as his wound is infected. He is…[Read more]

Hi Sue

I am still positive that there is light at the end of the tunnel. At the moment my husband is still in hospital as his psinal wound is still slowly healing. I am spending Christmas with my son, daugher in law and my 2 granddaughters. They have been a great support for me.

Have a nice Christmas in New Zealand and god bless

Maureen

Hi Helen glad to hear your news I think I'm a year behind you and I'm feeling good !!! Think I'm under the same prof Mr. Jackson ??? And yes he is a charmer.
Hope your caugh disappear's soon and you have a great Xmas and new year xxx
All the best Sandra x

My husand has partial paralysis as his spine started to crumble when the steroids started attacking the tumour. We do not know if this will be permanent but he was only diagnosed on 24 October and we have had to deal with the diagnosis plus a spinal operation. He had an infection in his wound and had to return for further surgery. We are now…[Read more]