Hi Tim

Thanks for your reply. Ian has had a course of CDT which didn't agree with him but he was switched to velcade with steroids which seemed a lot better but the chemo has now been delayed to help his wound heal.

Did you have an issue with walking after your spinal operation? Ian will need physiotherapy and rehabilitation.

Maureen

My husband was diagnosed with MM on 24 October after suffering with back pain since April. He has gone to the docotor on a few occasions and was referred to a specialist in July who advised him he was stiff and to have physiotherapy.He had physiotherpay for 13 weeks but he was still in pain. He then asked to be referred privately. The doctor sent…[Read more]

Hi Wendy sorry to hear You'v got pain, as you know I was getting pain in my hip when I saw you in the summer, and after X-ray cat scan then MRI under mr. Orr the orthapedic consultant they said I'd a fractured hip !!!!!! No wonder I was in pain ???
Anyway he said it was healing nicely and there was nothing to do oh apart from to start using my…[Read more]

Hi Peggy

Will cross my fingers here too.

Hope tests go fine and you get a good date for the SCT

Christmas in hospital just check full in hospital services as often less drs etc and pharmacy being less open.

You may need your son more after the transplant when your at home?

I was harvested 2 years before i had my transplant they…[Read more]

Dear Sarah

Is she any happier now shes made the decision?
I'm pleased she made a decision she wanted not what she thought she ought to do

Maintenance is common in USA but sadly not here unless part of the myeloma trial.You could call lovely Ellen at myeloma uk helpline she can find out if any maintenance trials for people not having…[Read more]

Hi Tina,

It will get easier ,I'm six months post asct and finally feeling more human .
I was in for a month and didnt have an easy ride and was shocked how i felt after it.

It was very frustrating and tough but i just tried to think this is part of it and accept it ,hoping i would be like others and feel normal again.

I slept a lot and…[Read more]

Hi Sarah

Thats a difficult one as all seem to react differently to it?
Many seem quite bright have a few rough days during it then are typing progress while recovering in hospital.

If you search here sct or asct you will find posts some blogged during the experience.

I had mine May 3 rd this year and its only the past 3 weeks i had any…[Read more]

Sorry to hear this.
No its not always like that,I was diagnosed mm in 2009 april and touch wood have had no hospital stays except May for my stem cell transplant.

I have had a lot of bone pain(plasmacytomas and rib fractures) and tried various meds,morph tablets then mst,oromorph but pain remained nasty so I contacted my macmillen nurse ,who…[Read more]

Hi Sarah

Two thoughts ,he may need a longer course of antibiotics? the lungs have so many pockets that if some infected muck is left it will just regrow in a week or so.
Do his lungs feel tight at all or does he find it easy to cough up? I woud suggest askin about an atrovent inhaler as this would open his lung tubes and help him keep lungs…[Read more]

David.

I would guess your ? enlarged prostate isnt helping with the frequent UTIS
I think /hope you will get less after your prostate is improved.

I understood that we were high risk for non encapsulated bacteria ie the ones that love the lungs ,my immunologist told me this many years ago when i was just a MGUSER .

I had an ungrowable…[Read more]

Hi Vicki
I'm so happy,cells stored and now sct.
I hope it goes as smoothly as it can 🙂

I think i was good until? 6 days after melph then felt crap ,but was monitored extremely well with my bumpy times.
I too sucked ice 2 hrs pre melph and 2 hrs after ,ice was fine but my mainly soggy lemon ones tasted awful but i just munched on ,i had…[Read more]

Hi Peggy,

I think the "standard" is to give cyclphosphomide then gcsf injs but I know Dr Cooke at QE Birmingham didnt give these when i last saw him .

I looked up to see how likly i was to predict ease of harvest and decided against the cyclo from my consultant.I didnt want chemo affecting my stem cells pre harvest,some say it does an extra…[Read more]

hugsssss Dai,why did it take them so long to diagnose? didnt they send stool samples???!!
Im running on 50% 4 months post sct !wish i was as strong as the men seem to be post sct?? lol so im only reading bits of our forum past months
I hope you will soon be feeling your better self 🙂 Drink lots and rest and smile ur made of strong stuff 😀

Sue

Hi Cathy it's nearly a year since my transplant, so my memories a bit vague but I remember being sick on the sixth day after transplant and feeling yuck for the next few days but after that I started to feel better. The only thing I could face to eat was a banana and rich tea biscuit's. Wet wipes for the toilet we'r a must and fizzy water to…[Read more]

Hi there just wanted to say hello and glad You'v found this site it's a god send . Sandra.

Dear Eve

Thats awful,times like this i feel so helpless.. sending you strength and my thoughts i can understand he feels need to delay asct.
I go in tomorrow for my first ,melp on weds i delayed till first relapse
sending a mega tight cyber hold

love Suexxxxxx

Yes I'v mentioned on here before about my itchy spots since my sct in oct. last year!!! Doc gave me anti hystemines witch help'd a little but think its something we've just to live with !!!
Sandra.

Hi there, if you need to know anything this is the site for you ask anything and someone will give a good answer. I know you'll all still be in shock but it does get better and things are not as bad as you first think.
I had stem cell transplant in October and now in remission.
So anytime you need help just ask.
Sandra.