Hi Jan – thanks for your reply. I have also noticed that some of the questions are a little bit more probing – I have used ‘Now I can Travel’ for my last few holidays and they were very competitive. Even got an annual policy to cover the states and a cruise in the Caribean last October so I was rather complacent this year and on the strength of…[Read more]

Hi – you lovely people out there – not been on for quite some time. Had my stem cells replaced on the 9th may – spent rather a gruelling time in hospital – went back to Hallamshire on the 21st August to be told I am all clear – a trace of paraproteins – too small to measure. Yippee!!! Does this mean I can say I am in remission? The consultant…[Read more]

Hi Rebecca

To-day is day 16 and they were going to let me home but unfortunately have had three temperature spikes of 39 degrees and they like you to have at least 5 days at a normal figure, makes sense because if you go too early you end up coming back in. So that said Monday at the earliest – which I am quite happy with. I do feel better – no…[Read more]

Hi Rebecca

I knew I could reply on you to give me good news – you are always so positive and I truly believe it stood you in good stead for your excellent recovery – will see what tomorrow brings – i am taking a day at a time and trying not too dwell to much but it is already day 10, they can’t keep me forever! Just hope no problems crop up…[Read more]

Hi All
Thought I would be on this forum everyday – but due to being indisposed – so too speak – couldn’t be bothered. Must feel a little better – as you said Keith 2 days after the chemo felt fine – but not anymore. I have no appatite and have not eaten for three days but still manage to be sick – also the tummy trials have now kicked in ( to-day…[Read more]

Hi Mavis

Thanks for your reply. I am in hospital at the moment – had the dreaded Melphalan Thursday – sick virtually straight away and they gave me an injection which helped considerably. Stem cells returned on Friday – felt queasy so they gave me another injection. I feel OK at the moment – just starting to feel a little tired.

Thanks for the…[Read more]

Dear Helen

Just read your news and your consultants visit. You do have a lot to think about but it looks like they are ‘not allowing the grass to grow under your feet’ and have got you sorted out with a new line of treatment. Please let us all know how this is going when you get started – I know what you mean about being off the drugs. I have…[Read more]

Hi everyone

As you know go in tomorrow for my chemo – stem cells on Friday. Just been to-day for all my last minute blood tests and the like – asked them what my paraproteins were – as have not been on any medication for a while – since I was waiting for my admission date. They told me that my pps showed a trace – too small to measure. Feel…[Read more]

Hi Maureen

Thanks for your reply – much appreciated – since I will be in hospital for at least a couple of weeks – I don’t think I will be off this forum – not much else I can do. I think I will be boring everyone with a blow by blow account and asking you all for advice – just waiting for it to be over and done with so I can get on – just feel…[Read more]

Hi Tom

Thanks for your reply. I was also on velcade and remember initially having minor pins and needles – the medical staff asked me about it and I said that it didn’t really bother me and to be fair at that particular moment in time that was the only problem I had. Little did I know how serious it would become and the fact that I had to stop…[Read more]

Hi Rebecca

Thanks for your reply – I did get your email with telephone number (thankyou) but to be truthful do-not go anywhere because of the fatigue – it just wipes me out. Not sure if this is because of the constant pain of the neuropathy or just me. I had occasion to ring Hallamshire for something else and thought I would mention how I felt -…[Read more]

Hi DickB – Thanks for taking the time out to reply. I can’t remember how long I have suffered with it – but it does seem an age – I like you find moving about is better – although I have serious fatigue problem – which doesn’t help – so am in a bit of a catch 22 situation. Hopefully will look back on this episode and wonder what I was making…[Read more]

Hi Helen – Thankyou for your reply – comforting to know that someone else felt the same way I do now – thought it was just me. Hopefully – you no longer have it? Been back to GPs this morning for another type of painkiller – so fingers crossed – this may be the one – in which case why didn’t she give it me in the first place! Sorry – having a bit…[Read more]

Hi – forgive my ignorance – but I am no computer whizz kid – viewed as a necessary evil – possibly because they do-not do what I want them too. Trying to send a private message – just keeps telling me that an error as occurred – am I doing something wrong. I have put on the user name – but no topic. Any ideas?

Many thanks
Izzie

Hi – I live in South Yorkshire – half way between Doncaster and Barnsley. I was initially diagnosed at Barnsley hospital but they did not have any clinical trials so I opted to go to Doncaster. I had the majority of my treatment there as an out-patient attending once a month for a bone strengthener administered intravenously, blood tests and to…[Read more]