Izzie replied to the topic SCT in the forum Treatment 10 years, 7 months ago
Hi Rebecca – apologies for not replying earlier – but that is a measure of how ill I felt – couldn’t even be bothered to type – I am ashamed to say. Still feel no better really – nothing I can put my finger on – just general fatigue and some! When I try to explain it to people – they just don’t get it – don’t blame them!! I get your drift – it’s…[Read more]
Izzie started the topic SCT in the forum Treatment 10 years, 7 months ago
Hi Izzie here – just had my stem cell collection a couple of weeks ago and I am now waiting for the phone call. Just wondered if you lovely people can share your experiences of this. The reason I ask is that I anticipated gaining some of my strength back – I still feel absolutely knackered! Have not been out ANYWHERE for weeks – as I have just…[Read more]
Izzie posted an update 10 years, 8 months ago
Hi everyone – not been on the forum for a while – although I read it regularly as everyone seems to know or understand much more than me! I have now been transferred for treatment to The Royal Hallamshire in Sheffield as in the next weeks I will be starting the stem cell collection. Just wanted to know if anyone had any ideas about what worked…[Read more]
Izzie posted an update 10 years, 9 months ago
Hi everyone – since dropping a line on the forum – I have been in hospital overnight – couldn’t stand it any longer – I was on a general ward – so none of the specialists that deal with Myeloma were about. Anyway it was all a bit vague – because of the condition – no-one could say what was wrong – although they assumed it was some kind of virus…[Read more]
Izzie started the topic Excruciating!!!! Tiredness in the forum Newcomers 10 years, 10 months ago
Hi – just wanted to ask fellow followers about the tiredness aspect of Myeloma. I have recently been in hospital overnight as I had been suffering dizzy spells and basically could not get out of bed as I was so tired – unless you have suffered with this all consuming exhaustion it is so difficult to explain – however I think I must have had some…[Read more]
Izzie replied to the topic Diagnosed April 2013 in the forum Newcomers 10 years, 10 months ago
Hi Carol – lovely to hear from you. Yes I am on a clinical trial – thought it was the best way forward. Initially started off on Revlimid, cyclophosphamide and dexamethsone for 6 cycles and have am now just on my third cycle of velcade which I have by injection twice a week. They tell me they like them as low as possible – so I need about…[Read more]
Izzie posted a new activity comment 10 years, 10 months ago
Thankyou for your reply – where does the Willisboy come from as my name is Willis. I just feel that I need some get up and go – I managed to get to the hospital for my velcade yesterday came back late afternoon fell asleep until 6.30 went to bed and didn’t get up while 12.30!!! I don’t think I have ever felt as tired as this before – plus no…[Read more]
Izzie,
The name Willis is my middle name. It was a name that had been in the family for generations, I got it at my Granddads request to keep the name in the family.
I only had one daughter, so the name won’t carry on in the family unless my daughter has a son in the future (she is only 12 so that will be a long way off).
The sleeping and lack…[Read more]
Izzie started the topic Diagnosed April 2013 in the forum Newcomers 10 years, 10 months ago
Hi everybody out here – looking for some support from all you lovely people out there. I was diagnosed April 2013 following being hospitalised with meningitus. So a double whammy for me!I am currently on a clinical trial have finished taking oral chemo and am now on my third course of Velcade – went yesterday and my para proteins have gone from 33…[Read more]
Hi Izzie
Welcome from me too. Glad you have decided to join us as I’m sure you will find lots of support here -I do!
It is interesting that you are on a Trial. Is the Velcade for maintenance? Is the plan for you to go onto SCT?
I just had CDT which fortunately brought me into remission. I have not has a SCT. My choice because of other…[Read more]
