To-day is day 16 and they were going to let me home but unfortunately have had three temperature spikes of 39 degrees and they like you to have at least 5 days at a normal figure, makes sense because if you go too early you end up coming back in. So that said Monday at the earliest – which I am quite happy with. I do feel better – no…[Read more]

I knew I could reply on you to give me good news – you are always so positive and I truly believe it stood you in good stead for your excellent recovery – will see what tomorrow brings – i am taking a day at a time and trying not too dwell to much but it is already day 10, they can’t keep me forever! Just hope no problems crop up…[Read more]

Thanks for your reply. I am in hospital at the moment – had the dreaded Melphalan Thursday – sick virtually straight away and they gave me an injection which helped considerably. Stem cells returned on Friday – felt queasy so they gave me another injection. I feel OK at the moment – just starting to feel a little tired.

Thanks for the…[Read more]

Just read your news and your consultants visit. You do have a lot to think about but it looks like they are ‘not allowing the grass to grow under your feet’ and have got you sorted out with a new line of treatment. Please let us all know how this is going when you get started – I know what you mean about being off the drugs. I have…[Read more]

As you know go in tomorrow for my chemo – stem cells on Friday. Just been to-day for all my last minute blood tests and the like – asked them what my paraproteins were – as have not been on any medication for a while – since I was waiting for my admission date. They told me that my pps showed a trace – too small to measure. Feel…[Read more]

Anybody got aching bones? For some time now – when I get up in the morning – it takes me quite sometime to get going but also my legs and particularly my arms and shoulders ache terribly. When I first was diagnosed I was on a bone strengther – Zometa – but have not had that in quite a while. Also when I was diagnosed I had quite a…[Read more]

Thanks for your reply – much appreciated – since I will be in hospital for at least a couple of weeks – I don’t think I will be off this forum – not much else I can do. I think I will be boring everyone with a blow by blow account and asking you all for advice – just waiting for it to be over and done with so I can get on – just feel…[Read more]

Just to let you know that the ‘writing is on the wall’ and I have a definite date of the 7th May for admission. I have to go the day before for blood tests and the like but I can go home and return the following day. My specialist nurse said I would probably be in for 2 weeks minimum and probably no more than 3 – does that seem about…[Read more]

Thanks for your reply. I was also on velcade and remember initially having minor pins and needles – the medical staff asked me about it and I said that it didn’t really bother me and to be fair at that particular moment in time that was the only problem I had. Little did I know how serious it would become and the fact that I had to stop…[Read more]

Thanks for your reply – I did get your email with telephone number (thankyou) but to be truthful do-not go anywhere because of the fatigue – it just wipes me out. Not sure if this is because of the constant pain of the neuropathy or just me. I had occasion to ring Hallamshire for something else and thought I would mention how I felt -…[Read more]

Just to let you know I now have a pencilled in date of the 5/6th May for my stem cells to be put back in. Just hope I start to feel better before then – still having terrible neuropathy in my feet and legs – which obviously makes walking difficult – seem to be at my GPs most weeks trying different painkillers. Sunday night – didn’t…[Read more]

Many thanks
Izzie