Jacquie replied to the topic Has anyone else's life been lost through having a SCT? in the forum End of Life and Grief 8 years, 12 months ago
Hi Laura my partner Geoff went in for his 2nd SCT on 14 September this year first two weeks fine in third week his platelets were not rising as they should he was given platelets and blood but still no rising our consultant noticed a condition called TTP he had to then be rushed to Bristol for plasma exchange Geoff unfortunately lost his fight too…[Read more]
Jacquie replied to the topic ANOTHER SCT JOURNEY ABOUT TO START in the forum General 11 years, 6 months ago
Hi Scott
Just want to wish you good luck with the harvest.
regards
Jacquie & Geoff 🙂
Jacquie replied to the topic Date for SCT in the forum Treatment 11 years, 6 months ago
Thank you all for your best wishes :(:)
Jacquie started the topic Date for SCT. in the forum Treatment 11 years, 6 months ago
well we have finally sorted date for Geoff to have his transplant.
May 20th now the anxiety begins.
Jacquie replied to the topic From Harvest to Transplant in the forum Treatment 11 years, 6 months ago
Hi Vicky & Colin
Hope all went well today. Do you go to EJU?
We are waiting confirmation of date from Sian.
Geoff has also been seeing Nicky. he finds it really hard to accept and is very emotional all the time:( I just hope he will improve once the transplant is done.
regards
Jacquie
Jacquie replied to the topic From Harvest to Transplant in the forum Treatment 11 years, 6 months ago
Hi Vicki & Colin
Sian finally got back to us Friday afternoon possible transplant dated for 6th or 13th May ! She is going to confirm next week. However I go to America to visit my daughter and granddaughter on 20 May with my mum for her 80th birthday.
Geoff is happy to go ahead sooner and his brother has agreed to see him through it if I…[Read more]
Jacquie replied to the topic From Harvest to Transplant in the forum Treatment 11 years, 6 months ago
Hi Vicki
it was just Dr Frewin told Geoff on Friday she thought we were leaving it to long to have his transplant in June! she really put the cat among the pigeons he was so emotional 🙁 I am going to call Sian Middleton Monday to see when it will be as we have enough cells. Did colin go back on any treatment after his harvest and before…[Read more]
Jacquie replied to the topic From Harvest to Transplant in the forum Treatment 11 years, 6 months ago
Thanks Jean
Did Frank have to go back on chemo in between?
regards
Jacquie
Jacquie started the topic From Harvest to Transplant. in the forum Treatment 11 years, 6 months ago
Hello
Please can I ask those of you that have gone through SCT to tell me how long you waited from Harvest to Transplant. I am asking this as Geoff went for collection 2 weeks ago and due to have transplant June 16. He went to GRH today to have his line flushed and his consultant thinks this is too long to wait as he has not had any treatment…[Read more]
Jacquie replied to the topic Harvest done in the forum Treatment 11 years, 7 months ago
Hi Dai
it was 3.5m in days after 4 days of GCSF injections they did not want to go for more as they were happy with the 3.5. Geoff was disappointed as he hoped they may have tried for 4-5 but hey enough for one transplant.
regards
Jacquie
Jacquie replied to the topic Harvest done in the forum Treatment 11 years, 7 months ago
Hi Megan & Tom
thanks for your posts I will keep you all updates. I am Just hoping Geoff nerves will be ok when I am away as he is very nervous off everything at the moment. Its a shame we dont have a local support group he could go.
regards
Jacquie
Jacquie replied to the topic Harvest done in the forum Treatment 11 years, 7 months ago
Hi Eve it was over 2 collections. regards
Jacquie
Jacquie started the topic Harvest done. in the forum Treatment 11 years, 7 months ago
Hi everyone
Harvest over but only managed to get 3.5 million but hey enough for one transplant. We were hoping for more 🙁
Now for the long wait until 17 June to get them back. It would have been sooner but I am off to visit my daughter and granddaughter in US in May and Geoff agreed to have it done when I am back to look after him.
Jacquie replied to the topic We have dates in the forum Treatment 11 years, 7 months ago
Hi Vicki
Nurses have been great and on time! Just hope the count is right Tuesday morning at Southmead. Will pass on your best wishes to the nurses. Hope Colin is doing well too.
regards
Jacquie
Jacquie replied to the topic We have dates in the forum Treatment 11 years, 7 months ago
Hi Dai
Thanks for your reply the nerves have kicked in already,Such a scary path ahead and as you say this site is full of good people sharing their journeys. just wish we did not have to take this path. will keep you all updated,
regards
Jacquie
Jacquie started the topic We have dates. in the forum Treatment 11 years, 7 months ago
Well went to SCT coordinator on Monday and Geoff is having central line fitted next Monday. GCSF Injections Good Friday to Easter Monday then SCT harvest 2-3 April. As long as we get enough cells SCT planned for 17 June.
Jacquie replied to the topic So it begins in the forum Treatment 11 years, 7 months ago
Hi Vicki yes we are seeing Sian Middleton on Monday and will be harvested in Bristol once we have date. We also had a letter to book Geoff in at Cheltenham on 25th March for a Chest line in ready for the harvest and transplant.
Jacquie started the topic So it begins. in the forum Treatment 11 years, 7 months ago
Geoff went to monthly appointment last week and after 8 cycles of RCD he has a full response to treatment. Back in 3 weeks for BMB result. We have an appointment with SCT coordinator on Monday in Cheltenham so will have more news then
Jacquie replied to the topic Three little words…… in the forum General 11 years, 8 months ago
That's fantastic news long may it last 🙂 🙂
Jacquie replied to the topic Question…..maintenance treatment in the forum General 11 years, 8 months ago
Good luck with the results tomorrow, hope all goes well. will be checking in again in a few days to see how you get on.
regards
Jacquie x