Hi Laura my partner Geoff went in for his 2nd SCT on 14 September this year first two weeks fine in third week his platelets were not rising as they should he was given platelets and blood but still no rising our consultant noticed a condition called TTP he had to then be rushed to Bristol for plasma exchange Geoff unfortunately lost his fight too…[Read more]

Hi Scott

Just want to wish you good luck with the harvest.

regards

Jacquie & Geoff 🙂

Thank you all for your best wishes :(:)

Hi Vicky & Colin
Hope all went well today. Do you go to EJU?
We are waiting confirmation of date from Sian.
Geoff has also been seeing Nicky. he finds it really hard to accept and is very emotional all the time:( I just hope he will improve once the transplant is done.

regards

Jacquie

Hi Vicki & Colin
Sian finally got back to us Friday afternoon possible transplant dated for 6th or 13th May ! She is going to confirm next week. However I go to America to visit my daughter and granddaughter on 20 May with my mum for her 80th birthday.

Geoff is happy to go ahead sooner and his brother has agreed to see him through it if I…[Read more]

Hi Vicki

it was just Dr Frewin told Geoff on Friday she thought we were leaving it to long to have his transplant in June! she really put the cat among the pigeons he was so emotional 🙁 I am going to call Sian Middleton Monday to see when it will be as we have enough cells. Did colin go back on any treatment after his harvest and before…[Read more]

Thanks Jean

Did Frank have to go back on chemo in between?

regards

Jacquie

Hi Dai

it was 3.5m in days after 4 days of GCSF injections they did not want to go for more as they were happy with the 3.5. Geoff was disappointed as he hoped they may have tried for 4-5 but hey enough for one transplant.

regards

Jacquie

Hi Megan & Tom

thanks for your posts I will keep you all updates. I am Just hoping Geoff nerves will be ok when I am away as he is very nervous off everything at the moment. Its a shame we dont have a local support group he could go.

regards

Jacquie

Hi Eve it was over 2 collections. regards

Jacquie

Hi Vicki

Nurses have been great and on time! Just hope the count is right Tuesday morning at Southmead. Will pass on your best wishes to the nurses. Hope Colin is doing well too.

regards

Jacquie

Hi Dai

Thanks for your reply the nerves have kicked in already,Such a scary path ahead and as you say this site is full of good people sharing their journeys. just wish we did not have to take this path. will keep you all updated,

regards

Jacquie

Hi Vicki yes we are seeing Sian Middleton on Monday and will be harvested in Bristol once we have date. We also had a letter to book Geoff in at Cheltenham on 25th March for a Chest line in ready for the harvest and transplant.

That's fantastic news long may it last 🙂 🙂

Good luck with the results tomorrow, hope all goes well. will be checking in again in a few days to see how you get on.

regards

Jacquie x