Hi jean and frank

Thinking of you….how's it going?

Vicki and Colin x

How's its going both,

Take care

Vicki and Colin x

Hi jacqui and Geoff,

Wishing you both so much luck with this…..it is nerve wracking. Are you doing the gcsf injections yourselves or is the nurse coming in? Bristol are quite particular about the timings because apparently gcsf has a 12 mobilisation shelf life or something like that?

June does seem like a long way away, but as long as…[Read more]

Hi Jill

Glad to hear of your mums results…..I think all the meds contribute to bowel disruption of some kind…..constipation or other way. Colin was on revlimid, cyclophos and dex. He had a variety from constipation to tummy upsets. Apparently diahorrea can be as a result of being constipated, we were told, due to the bowel being less…[Read more]

Well done Maureen and Ian,

Keep going, beat this damn thing head on 🙂

Vicki and Colin x

Happy birthday Babs stem cells 🙂

These are the stories we love to hear, full if positivity and hope 🙂

Vicki and Colin x

Ali

Yes I agree with the others. Colin did a lot of these 24 hour urine tests. It's important to get it right but at least also to understand what and why your are doing it.i would suggest speaking with mm nurse on the forum, they are so so helpful. Also your Gp and specialist. How come the specialist was in so much of a hurry to let you speak…[Read more]

Hi jean

We elected to get Colin's very short before he went in so that we both got used it it. We were advised not to do it ourself due to the risk of cutting his head and low platelets causing bleeding. A male nurse did offer to shave what was left off, but in the end Colin did it himself. We were also advised to shave with electric razor not…[Read more]

Hi Ali,

Hope your mums doing well….fancy you have an ear problem too! I think you are right about stress and it says to avoid stressful situations ha ha!,

Pete and Ann, Colin had no hair at Christmas. He was v v bald, but by the end of January it seemed to grow back out of nowhere, and by February nearly time for a hair cut. Body hair took…[Read more]

Good luck with your results John 🙂

Vicki and Colin x

Hi nicki

I think it varies. Colin stopped treatment mid July, then had two failed harvest, so between July and the 3rd attempt it was about 2 months. We finally got the cells in September and then he was in end of October 2012. Don't get too worried about time spans in between, no one seemed worried but I was however as non one else seemed to I…[Read more]

Hi Ann and Pete,

Good luck with the check ups and you guys look after yourselves! I think it's just check up after checkup now Ann!
Look after yourself too, I'm still tired and I am sure this vertigo is stress related, coming out after it all!

Biker chris and Lena, how are you both doing 🙂

Vicki and Colin x

Jean and frank,

Sorry to hear of the upheaval. I think the rash is a normal thing with regard to the platelets! This cortisone thing is like an anti histamine. So that will stop the itching and the rash getting any worse I would think. 🙂

With regard to the kidney thing, I have not heard of that but remember they are prepared for all that…[Read more]

Brilliant news Peter, have that celebration at Easter now 🙂

Hooray, you are sooo positive x

Vicki and Colin x

Hi Andy

Thanks, what's normal eh? With mm it seems to be different normals depending how things are going at the time ha ha!! Hope you are doing ok, maybe getting your pps down that sct might not be illusive? Can't they give you double prelixafor to get those pesky cells out 🙂

Enjoy your weekend

Vicki and Colin x

Hey jean and frank,

Frank must have a built in sport radar….waking up for football and then rugby LOL! It's hard to see frank with the tummy troubles and not eating but it will pass. And his neutrophils are past the magic zero which Is great :-). As debs said things will speed up and frank will make a sure slow improvement. Be careful for…[Read more]

Hi Norma,

Best wishes for Monday……do not keep the challenges to yourself! This is what the good friends, family and this forum are about. Providing the help and support that you and the ones closest to you needs. It is a very individual condition, mm, but one that is treatable. It must be hard when you have the lupus as well but keep…[Read more]

Hello Tanya and dad,

So very sorry to hear of the difficulties you are doing through……is your dad able to look objectively at the situation? Is there a problem with alcohol? How would he react to someone coming to see him about it? The trouble is, he has to be the first one to admit it if there is a problem

Making it difficult for the…[Read more]

Jean and frank,

Just popping in to say thinking of you….hope frank is feeling a little better. Glad he's not a rugby fan….we are not happy with the latest England result!….sorry Dai 🙁

Vicki and colin

Hooray

So pleased to hear you are home Pete…..and a glass of lager! Well done you. You have done well, just relax and take time to get better slowly. It will soon come and you will be out on that golf course! At least you managed to stay at home….we were back in the same day first time round 😉 I've been rough all week, just starting to…[Read more]