Hi trigger

Would just like to echo what the others have said….it is always a gamble because everyone’s mm is an individual condition. My partner was diagnosed at 56 and had an sct in November 2012. Fingers crossed so far still in remission. I would say that each persons journey through an sct is also individual.

If your mum feels she can go…[Read more]

Hi Andy

Glad you are feeling a bit better. Good old steph on the ball. Glad you are out of hospital and njoying the sun…..what sun! Fingers crossed for the next go at treatment 🙂

Vicki and Colin xx

Hey Tom, glad to hear your treatment is going good, are you supplementing with vodka:-)

Vicki and Colin x

Tom just spotted your blood results, not a clue where I am on this forum! I think figures look good….novice though 🙂

Vicki and Colin x

Hey Tom,

How’s the treatment going? You are amazing! You are a real star and we all need a dose of your positivity…..roll on long remission to you!

Helen, great to hear you are out the other side….result 🙂

Jean and frank, hope all going wll for you guys. Got to get all the messages in as it’s so hard to log in:-)

Vicki and Colin x

Andy

Hope you are feeling better after your stay in hospital…..soon to be back not the drugs to keep the mm at bay? Your thoughts in mm are always thoughtful,and sensible, and boy have you gone through the mill. A beacon for us all…..hope you have the holidays plan as you need more beer and sun to have a go at the pps!

Peter as a long…[Read more]

Hi all

Apart from all of the other detail, eve, one of the messages that I did pick up was that slim is no longer being treated. I’m sorry to hear this as he has gone through so. Ugh, as have you in another sort of way. Wishing you both all the best.

Our experiences have been very positive and we have both been very grateful,for all of the…[Read more]

Firstly David not impressed with the first diagnosis of ‘nothing to worry about!’ Glad you sought a second opinion! When Colin was on revlimid he had to do an injection every day to keep the flow of blood going. I think revlimid side effect is blood clots. He was just lucky that time he was on it 🙂

Hope things are going better for you…[Read more]

Hi Tom,

Jus wondering how you are doing….hope the holiday went well and you are feeling ok? :-). Still struggling with this site as it takes 10 goes to get in!

Hope all ok with you jean and frank 🙂

Vicki and colin

Hi there

Glad to hear Charlie got through the sct, that’s great, shame about the hiccup and collapse! Hope all is well now? Can’t offer any information about the hospital but wishing you all the best with your move and Charlie’s ongoing improvement x

Vicki and Colin x

Hi there,

Just logged in to say hi and wish you all the best with the treatment regime. My partner Colin was diagnosed in October 2011. Like Megan we are still careful about what food we eat and I still get nervous if we have prawns! Colin had a transplant in November 2012 and thankfully so far still in remission.

It’s a tough road for the…[Read more]

Hey Andy and Helen

Great to hear from you….despite the technical problems you are often in my thoughts. As on other posts we have been busy relocating Colin’s mum nearer us. We are hoping for a holiday abroad soon, Colin’s next appt is 5th February so if all goes well there we are off…..somewhere pending travel insurance issues and as long as…[Read more]

Hello all

We too have the log in troubles…..if that we the only thing eh! Not been on for a while as we are moving Colin’s mum down to live closer to us…..to tired to do too much typing tonight and Colin is snoring to my right! 🙂 just wanted to say hi all and hope you are all still battling on 🙂

Where’s that sun!

Vicki and Colin x

Hi all

Thank goodness I’m not the only one with logging in problems! First of all, happy new year all. Apart from the login in issues we’ve been busy. Colin’s mum is moving down close to us and so we too have been doing the packing, and all the other things that go with it! D day is this next Monday so fingers crossed.

Tom hope you have a great…[Read more]

Hello Carole

Merry Christmas! Ultimately the decision has to be yours. My partner Colin had the transplant. He had this in November 2013. At the time it was hard going andnthere are days now when Colin gets anxious when he thinks but to it. However we took the view that we would grasp everything to give him as many chances as possible! I spend a…[Read more]

Hi nick

Welcome to the forum. My Larner Colin was diagnosed age 56, no interim just straight into mm. One back bone fracture which was amazing given the level of his light chains (31000) and pps were 17. It was a real shocker! Luckily no kidney damage. Colinnhad 7 cycles of revlimid, cyclophosmahide and dexamethasone. It was tough as he had lots…[Read more]

Hey all

Well done chris glad you are doing ok! Hope you are continuing to feel well. Colin still gets very tired but am convinced that’s to Do with the fact he’s on heavy duty pain killers for the initial back fracture. That’s got him down as he gets confident, does a lot and then is wiped out for 3 or 4 days. For me the worry is mm on the…[Read more]

Hi Tom,

I’m having real problems logging into the new site. I’m so sorry to hear your news…..your drug free remission has always been something I think of when I get down! You are a real positive guy so here’s hoping for you that that next phase of treatment will whack mm into touch again! Tom you have clearly not been drinking enough vodka for…[Read more]

Firstly hey chris how are you doing post sct….Colin still gets very tired but qualify that with doing too much and then wiped out for three days!

Hey all welcome if you are new to the site and hi to the old stagers. This is really a tough road to follow for supporter because you feel helpless and sufferer because its a tough lot of treatment.…[Read more]

Hi there,

My tip is be positive, think positive and try to only read sites like this. The rest scare you. I know it’s hard to be positive sometimes as it can look bleak, however try to as it will make you and hopefully your dad feel better. Remember 70 is the new 60 🙂

Good luck with the treatment.

Vicki and Colin

Hello all

A happy Christmas to you all, enjoy every moment. Life is for living. Take care and enjoy xx