Hi Eve

Its a bit of a B-A-S-T-A-R-D this MM (see now av shown you he he)

Am sure Slim will be Ok its just getting his meds right that causes a big problem :-/

And as for Slim Looking in good shape, I think its an MM thing cos I know that all us suffering MM look bloody good to say what we are and have gone through 😀

Good Luck and…[Read more]

Hey Eve

Trust me girl us lot are not easy to offend:-D and it must be the Skool prefect that felt it might be dodgey 😎 I know I have tried to use MANY a cuss word and it wont let me He he (but av found a way round it ha ha.)

Hope you and Slim are doing OK

Lots of Love from one "Unaffected bout comments" Tom xxx

ps let me know if…[Read more]

Hi Dia

All the best for tomorrow, and am with you re Janet and rain 😎 it will be ok for me if it rains every nite and the sun is out daytime 😎

Tom

Hi Bridget

Sorry to hear you are feeling poorly 🙁

I am same as all our other friends above, but I was told never to suffer pain or any doubts at all and if any rear its ugly head I am to go straight up to the ward 😀 and I have used it twice so far and its great no waiting no worries 😎

hope all is well and its put down to heavy…[Read more]

Hi Liz

I also have not been on for some time 🙁

But am pleased Kev is doing good 😀 I also (like many more) had a rash as well, but like all my other bits it all worked out great 😎

Good Luck

Tom xx

Hi Jet

Yep I kept my Lashes 😀 mind you it was the only hair i had left, and when it was growing back I could have took a bit of old rough samnd paper to my body to stop the itching lol.

No you wont need fals lashes and as for the wig some ladies look sexy with no hair 😀

Tom "Onwards and Upwards" xx

Hey Girl's

Now lets put a mans perspective into this one ha ha

Firstly I have to say for those that are due to have a SCT :: Honest it will be worth it here I sit what ?? call it 16 Months Post Transplant and am doing great 😀 for me it was and still is the best thing I could have done to make me Better8-)

Now the Tash thing, now that…[Read more]

Hi Min and Peter

Pleased you have an answer to the sweats its a bu%%er all these side effects.

Enjoy your Holls

Tom xx

Hi Tony

Sorry but you are way ahead of me so cant add anything apart from saying good luck in the treatment you get?

Tom

Hi Liz

I can say that when i was in and had my transplant I found it hard to drink enough and they put me on a drip also (it was easier)gosh its hard work to drink that much when you aint feeling too good as it is:-S the drip was the best for me plus I drunk when i could ((water Pamela Lol))

Me I think i had two bloods and two platlets in…[Read more]

Hi Liz

Hey you take no notice of "Tinkerbell" as she is a little tinker ha ha, I have nearly stopped drinking these days only a bttle of vodka a week now 😎

So you dont have to rush to catch up he he.

Love Tom xxx

Hi Liz

Your both more than welcome, and it wont be long before he is up and about, and there is no rush one day at a time and it will work out, I must have been 8/12 before I felt better and trust me the wait is worth it 🙂

Tell Kev to keep on the "Upwards and Onwards"

Tom xx

Hi Liz

It sounds like its looking good and on the way up now, still one step at a time though, give my best regards to Kev and tell him its an "Onwards and Upwards" that he will now be having.

Good Luck and hugs to you Both

Tom xx

Hi Liz and Kev

I also had to have platlets too, two lots but it made me beter faster :-).
When I had my SCT I also slept that much in the last 6 days that I misse who came to visit ha ha, sleep is what Kev needs at the moment (and for a feww weeks after) it will all fall into place 😎 I would say about three months and Kev will be saying Wot…[Read more]

Hi Liz and Kev

So sorry you had to join this site, but it is one of the best.

I had my SCT december 2009 so it is 16 months post transplant and honest I have never looked back, up hill for a few months then WALLA better 😀

Since I had SCT I and my young bride (Elaine) have just got back from Great Yarmouth, and had two fly away holls…[Read more]

Hi Keith

Pleased it is going good for you 🙂 as formeav got to grips with it on Good days:-D and am not having any treatment Cept Zometa infusion:-S

and Debs as for the feet mine also but thankfully no pain some time they just feel fatter:-/ or that I have something under my toes like wool:-0

And Gill ur comment ::::::::Stephen…[Read more]

Dear Susan

I am so sorry you lost a brother to this dreaded MM, and also give you my condolances on the loss of your elder brother, Life is so cruel.

I see you have just joined us, please stay with us am sure we can all rally round and help you in your hour of need.

Love Hugs and aslo Prayers sent to you and your Family.

Tom x

Hi Ozzy

I was told I had MM in Jan 2009 had 5 sets of CTD, went on sick at the start of 3rd cycle, (manual job) had SCT 3rd December 2009 out by the 16th December, still not feeling too good for the Xmas, but felt 100% better 2nd week in Feb :-D, I still went out for walks and the pub when feeling Ok,went back to work may 2010 had about a year…[Read more]

Oh Gaye
You have just made an old (ish) man very happy, you put a smile on my face that before reading your post didn't know I could smile that wide Ha ha.

As for My Dr well he is normal and I have met him while out shopping and he pats my shoulder and asks if its all going Ok, he once put both his hands on my fat belly and shook it saying…[Read more]

Hi Amanda, and sister

Sorry you have to join this band of MM'ers, but to be honest they are a great bunch of folks.

I have MM and was told in Jan 2009 and started CTD in Feb leading up to a succefull Stem Cell Transplan and Yes am with you Re the Carer? it aint for me, dont know what I would choose?.

And as for the "Lack" of treatment yes…[Read more]