Hi
I am new to this site. My husband was diagnosed a year ago, we had thought for about seven months that he had MGUS, the MM was diagnosed finally in January this year. He has up until now had no symptoms and despite being referred to a haemo-oncologist who we see every six weeks, I think we are both in denial. However today he told me that he is incredibly tired all the time, he is a taxi driver and works very long hours. It is his first admission that something is wrong with him and quite frightening. So now I feel horrible that I am just the same nag i've always been, the dilemma of course is that if I stopped behaving like me, he'd cotton on immediately. After he was diagnosed I totally changed the way I treated him but after about a week he basically said he'd had enough of this c..p and could I go back to normal. Now I think I have to take my cue from how he feels, which may involve a lot of mind reading as he is very good at putting on a brave face. Most of the time I am able to be normal but sometimes I am terrified about what is to come which includes really really selfish things like money worries and me being able to nurse him and the absolute worse which I can hardly bear to think about. What a huge muddled rant, hope it is not too boring and thank you for the opportunity.
Jayne
