[JonnyPParticipant]

Hi HMason,

Or can I call you H 🙂 .

Your path seems quite different to mine and in any case I know very little about Myeloma at this early stage. So whilst I can't help with the technical stuff, I can at least wish you well with your journey.

Jon.

[JonnyPParticipant]

Thanks Eve,

Forearmed is forewarned I guess.

Jon.

[JonnyPParticipant]

Thanks Badger,

I suspect I will have a lot of questions to answer in the next months, so it is good to know that the support is there

Jon.

[JonnyPParticipant]

Hi Jet,

Thanks for your comments, it's interesting to get an idea of how people approach the situation. I had a less positive day yesterday – who knows why, but I want to get back on the positive path if I can.

I noticed that in failed to spell Myeloma properly in my introduction, so maybe my mind is a bit screwed just now.

I'm in clinic today, hopefully to get some more feedback on the tests and then to start Chemo.

I'll keep an eye on your blog too.

Best wishes, Jon.

[JonnyPParticipant]

Good for you, go for it – I'm thinking irreverence rather than mass destruction though. I wouldn't want to make a bad impression so early on.

Jon.

[JonnyPParticipant]

I sense an opportunity 😎

Jon

[JonnyPParticipant]

Hi Perkymite,

You're very kind and very active on the site, as far as I can tell. I will take a good look around, although my wife is the internet guru – I think she has devoured everything already 😎 .

I'm very impressed with your attitude, I hope that your lead will inspire me on the bad days nil desperandum and all that.

Jon.

[JonnyPParticipant]

Hi Annie,

I'm new to the site and still learning (10 days in and counting). Our situations are a bit different I guess, but obviously I wish you luck with your treatment.

Best wishes, Jon.

[JonnyPParticipant]

Thanks Debs,

I officially qualify for the under 50's, so I'll take a look soon. I'm sorry to hear that the results were not perfect for you, finger crossed with the Valcade.

I have been preparing a spreadsheet for the same reason, but I'm not sure it is fit for purpose, a bit overly complicated I fancy and based on some guess work at this early stage. I would like to see your version if you don't mind, thanks.

My next appointment is on Thursday, so I guess Thursday or Friday is day 1, although I have already started on everyting except the Cyclophosphamide and Revlimid.

It's good to know there is help out there, thanks.

Keep smiling, Jon.

[JonnyPParticipant]

Thanks to everyone for the kind words. I think my pain is relatively light compared to some. Co-codamol seems to take the edge off most of the time, but I keep straining other muscles whilst trying to compensate for a dodgy back.

I have an appointment with a radiologist (or is it a radiographer? Too much info') tomorrow, so hopefully that will start the pain relief process. I am also hopefull of some surgery to sort my back out ~ percutaneous vetrebroplasty, I understand; it just rolls of the tongue doesn't it. 🙂

Any idea how soon that procedure can take place and is it always a viable option?

See you soon; virtually that is.

Jon.

[Author]

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