JonParsons

  • Hi HMason,

    Or can I call you H 🙂 .

    Your path seems quite different to mine and in any case I know very little about Myeloma at this early stage. So whilst I can't help with the technical stuff, I can at least wish you well with your journey.

    Jon.

  • JonnyP replied to the topic Hello everyone in the forum Newcomers 13 years, 2 months ago

    Thanks Eve,

    Forearmed is forewarned I guess.

    Jon.

  • JonnyP replied to the topic Hello everyone in the forum Newcomers 13 years, 2 months ago

    Thanks Badger,

    I suspect I will have a lot of questions to answer in the next months, so it is good to know that the support is there

    Jon.

  • JonnyP replied to the topic Hello everyone in the forum Newcomers 13 years, 2 months ago

    Hi Jet,

    Thanks for your comments, it's interesting to get an idea of how people approach the situation. I had a less positive day yesterday – who knows why, but I want to get back on the positive path if I can.

    I noticed that in failed to spell Myeloma properly in my introduction, so maybe my mind is a bit screwed just now.

    I'm in clinic…[Read more]

  • JonnyP replied to the topic Another newbie in the forum Under 50s 13 years, 2 months ago

    Good for you, go for it – I'm thinking irreverence rather than mass destruction though. I wouldn't want to make a bad impression so early on.

    Jon.

  • JonnyP replied to the topic Another newbie in the forum Under 50s 13 years, 2 months ago

    I sense an opportunity 😎

    Jon

  • JonnyP replied to the topic Hello everyone in the forum Newcomers 13 years, 2 months ago

    Hi Perkymite,

    You're very kind and very active on the site, as far as I can tell. I will take a good look around, although my wife is the internet guru – I think she has devoured everything already 😎 .

    I'm very impressed with your attitude, I hope that your lead will inspire me on the bad days nil desperandum and all that.

    Jon.

  • Hi Annie,

    I'm new to the site and still learning (10 days in and counting). Our situations are a bit different I guess, but obviously I wish you luck with your treatment.

    Best wishes, Jon.

  • JonnyP started the topic Another newbie. in the forum Under 50s 13 years, 2 months ago

    Hi everyone,

    I have just introduced myself to the newcomers section, so I thought I had better make a claim to join the young guns, as I am officially 48 going on 63 but still thinking I'm 33 – ouch.

    I hope everyone is in good spirits.

    What does this breakaway faction do? Is it ever so slightly anarchistic or what?

    Jon.

  • JonnyP replied to the topic Hello everyone in the forum Newcomers 13 years, 2 months ago

    Thanks Debs,

    I officially qualify for the under 50's, so I'll take a look soon. I'm sorry to hear that the results were not perfect for you, finger crossed with the Valcade.

    I have been preparing a spreadsheet for the same reason, but I'm not sure it is fit for purpose, a bit overly complicated I fancy and based on some guess work at this…[Read more]

  • JonnyP replied to the topic Hello everyone in the forum Newcomers 13 years, 2 months ago

    Thanks to everyone for the kind words. I think my pain is relatively light compared to some. Co-codamol seems to take the edge off most of the time, but I keep straining other muscles whilst trying to compensate for a dodgy back.

    I have an appointment with a radiologist (or is it a radiographer? Too much info') tomorrow, so hopefully that…[Read more]

  • JonnyP started the topic Hello everyone. in the forum Newcomers 13 years, 2 months ago

    Aplogies to the moderator – this is attempt number 3 (And I'm supposed to be vaguely intelligent 😀 ).

    Hi my name is Jon and I was diagnosed with Myloma last Tuesday following a bone marrow biopsy. To be honest, we were already nearly certain that the news wouldn't be good because I had a call on Friday evening suggesting that the preliminary…[Read more]