Hi Ozzy

Yes, I too had a bit of a husky voice while on CDT. Glad to say it is now back to normal. My eyes were also a bit cloudy sometimes. Also gone now.

Best wishes.

Mavis

Hi susan

I have got a bit confused with this post. My experience is that my mobility problems are because of bone problems and not because of drugs. I have had soreness with my toes and bottom of my legs. I have found it difficult to find comfortable shoes – in fact I haven't!

All best wishes.

Mavis x

Hi Lesley,

Just wanted to say welcome from me. I went down the traditional route of CDT which worked well for me, but I am full of admiration for those of you who go on Trials. I do send you my best wishes and hope your experience is one of the really good ones!

Love Mavis

Hi Keith

Well done, that's one down. How many are you expecting?

All best wishes.

Maivs x

Hi Tina

Very interested to hear you are on the Trial. Can't remember, did you have a SCT?

Sorry you have got this annoying itchy side effect! Hope the alternative treatment works for you. I wish you a long and event free remission.

All best wishes.

Mavis x

Hi Jenny

Sorry you are feeling so crap at the moment. Sorry I don't have any experience of your particular regime, but wanted to send good wishes. I'm sure that someone will come along with some sensible advice, but do let your medical team know how low you are feeling so they can help.

Very best wishes.

Mavis

Hi Susan

So sorry that you have been diagnosed with MM, but welcome to the Discussion Group, we aren't a bad lot! I find it very helpful.

I finished six rounds of CDT on October and responded very well and am currently in full remission. I just had two Thalidomide tablets each night. I had always decided not to go down the route of SCT…[Read more]

thanks vicky and colin all the best to you both

hi Tom since speaking with you ive had loads of positive responses thanks for opening the door to me have a great day

hi chris
i found a forum site thats for amlyiodosis suffers but im gonna still keep the link with everyone here i knew something was not right with my body in June and the doctor was so good and quickly investigated they were so quick with everything and sent me to London where it was officially told what disease i had so im glad i know but…[Read more]

hi mothas
thanks for replying yes its good thank you whoever set up this forum god bless you
i really thought the desease affected only women until tom wrote me so im learning more each day

hi pat thank you for the kind word sand support its so good to know that i can finally talk to others who have the similar understanding and feelings about this disease in been battling for a few months and since i went to London royal free hospital for my first visit its made me more confident to share this
i think that everyone i have spoke to…[Read more]

thanks tom wow you sound so positive just threw those words of encouragement you've made me feel ten times better thanks for that yes im gonna find out if there is a support group in my region

Hi Sarah Jane

Good luck with trying to get your blood results. I try to use the Diary, but I seem to have considerable difficulty getting mine. Not helped by the fact that results of PP levels seem to take a fortnight so are never available at Consultations. Am often promised a letter or phone call, but they don't come!

Other results to…[Read more]

Hi Daniel

So sorry your Dad has relapsed. I can understand how worrying this is for you and difficult for you to cope with. I can see why you are asking "how long", but as otheres has said, it is just not possible to say. From what I have seen, not even Consultants can be certain until the very last weeks. Things are so much better and…[Read more]

Hi Deb

I too sm sorry to have to welcome you to the MM Club! Sorry you have got it so young. I am nearly 68yrs!

As others have said, if there ever was a time to have MM, now is the best. There is so much expermentation going on, and, also so many new drugs available.

Very best wishes for the decisions being made for your treatment.…[Read more]

Hiya there..

I am really sorry to hear of your diagnosis but please don't lose faith. My name is Kerry, it's my partner Melv that has Myeloma. He is 39 years old.

Myeloma seems so complicated doesn't it? So hard to get your head around but there is so many treatment options as I'm sure that you have found today.

How did your appointment…[Read more]

Hi Keith

What a blow that the Bendamustine seems to be loosing its grip. As you say, you are in God's hands – is there a better place? It still doesn't mean we don't have to battle on. I was very impressed by one of the participants on this week's "Songs of Praise". He was a paraolympic who was trying out bionic legs. He said, at the…[Read more]

Hi Peggy

Sorry to hear you ahve had such a bad time and with complications at home -what are they doing!!!! They must be in a sorry state too. Hope both sides soon get the all clear.

At least yu are on the right side of the SCT, even if it has been such a bad experience.

I sympathise about the hair problems. Although I didn't lose all…[Read more]