Hi Tina

Sorry you have had such a horrible complication. It's not easy this journey, is it. I'm glad you got such a sympathetic nurse to answer your call because you do feel alone don't you. Have they adjusted your doses? I believe you are on the 28 day cycle (I am on 21 day one).

I went to the consultant yesterday, for what should…[Read more]

Hi Dai

What is it about these infections that they can come on completely unexpectedly. I have every sympathy with you trying to deal with it with paracetamol although it is a complete no, no! If my experieince is anything to go by, being in a general ward will have not been a bundle of laughs.

Glad you are back home, if weakened, and…[Read more]

Hi Helen

Thanks for the encouragement.

Mavis x

Hi All!

Yes, it is good to get some good news of these continued remissions post SCTs. Shame you have to meet these three month hurdles, but I guess your bodies must be giving you some indication that all is still OK.

I hope for all of you that the news continues to be good.

Very best wishes.

Mavis x

Hi Craig and Etta

What a difficult year you have had. So glad that, at last, you can see light at the end of the tunnel.

Do keep us informed about the SCT. Do hope it goes smoothly, something must, surely! Here's to a long, long remission.

Very best wishes to you both.

Mavis

Hi Vicki

Sorry to have to welcome you and Colin to the Site, but I am sure you will find the support, and information you gain from being part of it, the best thing you have found. It has made such a difference to me.

It is good that Colin is able to maintain a reasonably normal way of life for the time being and that he is keeping…[Read more]

Hi Helen

Thank you for your helpful comments. Glad to say that I have felt better today and have made a more determined effort to do a bit more getting around. Well, if you can count walking round the room with my zimmer half a dozen times, doing more!!!

I know I have to focus on the good outcome I am looking for at the end of the CDT.…[Read more]

Hi Andy

Strange how this MM takes everyone differently. At least if your bloods are OK the PP levels aren't having an adverse affect on your system which is the main thing. Hope the drugs soon kick the levels into touch. How are you coping with reactions to the regime?

Yes, do keep in touch.

Best wishes.

Mavis

Hi Eve

Will be thinking of you all this week and especially Slim as at last he has his transplant.

Not an easy time for you, but at least you have good times to look forward to once the SCT is behind you. Do keep us up todate with Slim's progress.

Lots of love.

Mavis xx

Dear Gail

Sorry we have had to welcome you to the site. I do hope you find it helpful to be able to share just how you feel. I am 67 yrs and I am the one with MM. I do feel for my husband as he just has had it all dumped on him. Same as with all the caregivers. We are so fortunate to have loved ones who do care. It is a hard journey for…[Read more]

Hi Tina

I'm glad I'm not the only one who has had a couple of low days! I had my worst day yesterday. Day 18 or my second round of chemo. I had a hard job breathing and lots of back pain. I felt very low. Unusual for me. First time I'd asked myself what's it all for. Very sensible words from you Dai. Thank you. I guess this is the Dex…[Read more]

Dear Eve and Slim

What can we say? What a dreadful thing for your family to come to terms with. It always seems the wrong way round when a grandson dies.

My love and prayers are with you and all the family especially in these next few difficult days.

Mavis x

Hi Bridget

Like Helen and many others I have been missing you and write this in case you sign on.

I gather that you have been posting to Face Book but I don't post there. But i want to send you all my love and best wishes.

God bless you.

Mavis xxxx

Hi Tina

I am just ahead of you. Day 14 of second 21 day regime. Only side effects swollem ankles, slight taste change and very sleepy, but this could also be because of new pain control. Glad my hair has stayed thick!

I haven't had any difficult effects to Dex yet. Like you I wonder why we have to take so many tablets and some of them…[Read more]

Hi Stephen

Do hope that you continue to make good progress.

Keep in good heart.

Best wishes Mavis

Hi Andy

Welcome back. Sorry you have been bowled this googly. Glad you are over it now.

All the best as your Rex/Dex treatment continues.

Mavis

Dear Jacqui

Welcome to the Site. Sorry you have had to join us. It is good that you have responded so well to treatment so far. This bodes well for your SCT later.

All best wishes.

Mavis

Dear Sally

Welcome to this Web Site. I am sure you will find it a great help especially as you are naturally feeling down at the moment. I'm so sorry you have had this relapse. Of course you would have hoped for a longer remission, but it is good that you are responding well to Velcade. Think, three years ago you wouldn't have automatically…[Read more]

Welcome CharlieLouise

So sorry your Nan has been diagnosed with MM and that you are having to come to terms with it all. With a young family you are going to have a busy time!

All best wishes.

Mavis

Hi Ann

So sorry that your husband has had to join us, but I know you will find lots of support on this site.

As you will be gathering MM is a very varied disease. It could well be that your husband may find he doesn't need to move to treatment yet, or perhaps just bone strengthening infusions. Sometimes it is just "wait and see" at the…[Read more]