Hi Paul

This is an "oldy" of 66yrs answering a post on the fifties strand! Having just picked up your posting i also wanted to welcome you, sadly as it were (!) to this great site.

It's good you have been given Revlimid as part of the Trial as it is supposed to be very good for a front line therepy. I read lots of stuff on the Myeloma…[Read more]

Dear bridget

Just thought to say – do dose ourself up well with painkillers before the radiotherepy or it will kill your back. I didn't find my radiotherepists very symathetic. I hope yours are more so and that it works quickly for you.

Love.

Mavis x

Hi Bridget

I'm so gutted that you are having such an aweful time. I can understand tears – with so much pain you feel so out of control. I remember being there a year ago. I am so glad that the McMillan Nurses have made some useful suggestions and help is at hand.

I feel very wild, I listened to an Amnerican Webcast about Pain, a few…[Read more]

Hi Amelie

So pleased to hear that John got his dream because you worked so hard for it. Keep dreaming and making dreams come true.

Best wishes to you both. May you have much time together.

Mavis

Hi Dai

I had been thinking of you today and wondering if you got off on your holiday. I'm so glad you have. I do hope that when you read this on your return you will have had a very well deserved break and come back to fight both the MM and the system and knock them both for six!

Very best wishes.

Mavis

Dear Min

Like everyone else, I am shocked that you have lost Peter so suddenly. I know we all thought he would pull through yet again. This terrible MM had been particularly unkind to him. At least you can take some comfort that his fight is over and all the horrible things that go with the attempted cure.

Now it is you and the family who…[Read more]

Hi Dai

So sorry you have this last minute hitch before your holiday. Do hope you
get off soon.

Very best wishes.

Mavis

Hi Gill

So sorry your PN is so bad. Do hope some of the suggestions here help. It's one of the things I dread as I have something similar following nerve damage through one of my hip operations. I find Reflexology helps. Although sometimes a bit painful during the treatment it does seem to get the circulation going. I wonder how Dai got on…[Read more]

Hi Gina

Sorry Velcade hasn't worked for your Mum. Do hope the next few weeks bring better news.

Best wishes.

Mavis

Hi Chelle

So sorry you and your husband are having such a hard time. As everyone says, don't give up, these Consultants seem to be able to come up with a plan. If yours doesn't ask for a second opinion.

All very best wishes.

Mavis

Hi Carol

Just wanted to add my happy respose to your good news especially as it comes just after i had read the sad news about Gaye and shed a tear for her.

Like everyone else, I do hope the 0PP lasts and lasts and that the revlamid maintenance works well for you.

Get out there and forget MM for a while.

Love Mavis

Like everyone else, I feel so sad at Gaye's passing even though she had prepared us for it. She certainly fought the brave fight and endured so much pain with fortitude. An example and a friend to us all.

I just take comfort that Gaye had prepared herself for her end; and because I do not believe death has the last word.

Gaye may you rest…[Read more]

Hi! Thank you to everyone who has contributed to this stream and best wishes to you all. It is interesting to keep up with side effects and outcomes.

This ties in, a bit, with Dai's contribution today about a form to track it all.

Keep fighting all of you. The good news is that MM isn't always winning. Just a shame that the drugs take so…[Read more]

Hi Dai

I think this is a great idea – the trouble might be getting the medical staff to co-operate. I take my MM Diary along to each appointment to get my blood results, as they can't provide me with a print out – my Consultant says they don't have one!! I'm not sure that she really agrees with me keeping the results and I have only seen the…[Read more]

Hi julie

Thanks for the information. I agree with you – it is hard to get hard information.

All the best to you.

Mavis x

Hi CN

Makes trying to survive another ten years worthwhile!!!!

Mavis

Hi Min

I dfo sympathise with you and peter and I'm sorry that he has ended up back in hospital – just what he didn't want.

When I had a double hip operation some years ago (not MM related) I felt in the same position as Peter – being kept in hospital against my will. My husband and I were at logger heads about it. The thing that helped in…[Read more]

Bridget

So glad you are up to cracking jokes!!!

Are you sure you aren't hitting the hard stuff?!!

Mavis

And Gaye … thinking of you – "to bra, or not to bra?!!!"

Much love to you both.

Mavis x

Dear Sally

Just wanted to add my best wishes to you and your father at this difficult time. So sorry your Dad is having it so difficult. I am the same age as him, and also have arthritis, and can't imagine how I would manage without my husband's support.

Do take care of yourself too.

Mavis

Hi Julie

Thank you for your informative reply to my questions. That's why I value this site so much. I'm sure that Ted will have found what you had to say interesting to about levels of PP before treatment.

I was diagnosed following a tumour on my spine which was successfully removed in Leeds LGI and I have some racking in my spine where…[Read more]