Dear Meera

I am sorry you have had this diagnosis. I had a plasmatoma on my spine which was treated with radio therepy. I just say to encourage you, that even though I also have been diagnosed with Myeloma I haven't had to have any treatment apart from Bone Fos which strengthens bones.

I have read quite a lot about Plasmatoma and the…[Read more]

Dear Jeet

I'm so glad you are at home. I have been thinking of you so much. I do hope that all these horrible side effects clear up very quickly, but especially the throat and the taste so you can have something lovely to eat!!1

Much love

Mavis

Hi Dai

Aren't you supposed to be on holiday? Hope the fact that you are driving again – hurray!! means you can get there.

Having been off line for a couple of days I just caught up with your post. Tahnk you, yourself, for being so open with us all. I used to read an American Blog by Jon Gordon, who used to say we must find things to be…[Read more]

Dear Briget

I have been getting a new computer so have been off line for a couple of days. I'm devastated to hear your news and angry for you. You have already had such a difficult year which you have coped with bravely while continuing to encourage others.

One thing, you are a fighter and it is good that you have got a medical team you…[Read more]

Hi Gina

It's good to hear your GP is looking out for you dear Mum. It isn't always so. Do hope she can come home soon and the news is good. Do let us know.

Love to you all.

Mavis x

Dear Sarah

I'm also pleased so many people turned out to wish Gordon farewell. I agree with Briget, it really does show how much he was respected and admired.

You have a wonderful family. I do hope that you find comfort and support for each other in the difficult months ahead.

Thank you to the family for their fund raising on behalf of…[Read more]

Hi julie

I've been interested to hear of your journey as i also started mine with a tumour! What are your para protein levels at teh moment. I have been wondering if they wait until you get to a certain level if nothing else too dreadful occurs. I am going to ask my Consultant in September.

I trust you and your husband have many more…[Read more]

Hi Min

All the best to Peter.

Interesting what you say about "I might get angry"! There have been a couple of ionteresting blogs on the American Site "Myeloma Beacon" about the experieinces of hospitals and how we do have to be the people who are alert to the risks.. Maybe Peter would be better off at home if they can't give him a room on…[Read more]

Hi Eve

I join everyone else in saying I do hope the Velcade works for Slim and without any serious side effects.

Hang in there through the Dex highs and lows – you are a wondeful carer!

Very best wishes.

Mavis

Hi Gaye

Also thinking of you and praying for you. Do hope they have got that pain under control and that you can be comfortable in bed!!

Much love.

Mavis x

Hi Ted

Can i also say happy many returns of yesterday!

I am not hqving any active treatment at the moment – only taking bone strentheners, because I have problems in my spine.

I am 66, but if i had got to 80 without any treatment I should certainly think twice about starting any unlees it was absolutely neccesary and the old MM was…[Read more]

Dear Dai

Do hope this week's Velcade goes better for you, that the leg continues to improve, and that you get a good run upto your holiday. Surely it must be your turn to have some good luck.

And to Brigit

Do hope you too get over this tiredness phase. Mind you ,having had so much pain lately is bound to have taken it out of…[Read more]

Hi Susannah

just to say that I hope Michael shakes off this infection and can resume the Trial soon.

Look after yourself. I know how much regular Hospital visiting took out of my husband.

Best wishes to you both.

Mavis

Dear Gaye

When I first came on the site i appreciated your posts and your support of others.

I do understand the decision you have made. Everything I read fills me with admiratin with what you all endure to prelong your life and to give this b….. MM the best fight you can. I am sure a time comes when enough is enough. I am glad you are…[Read more]

Hi Pam

I add my sympathies to ohers. I am just glad that your father didn't have to suffer treatment for MM which would have diminished his quality of life further.

I am glad he had a peaceful end and is now free of pain and at peace.

Best wishes.

Mavis

Hi Dai

At least you know what you are dealing with. Glad it hasn't travelled any further. Sorry about the Walfarin and stockings though.

As you say "upwards and onwards"!

Mavis

Hi everyone.

I found Dr Berenson's interview very interesting, particualrly as i have always said i wouldn't want to go down the road os SCT – because of my age and other non MM health issues, BUT mainly because of quality of life issues.

However, it was interesting to have seen this interview at this precise moment. Reading Jet's Blog of…[Read more]

Dear Dai

Sometmes I despair when I hear what messes happen. But silver lining of seeing the Prof is that precious two week break to look forward to.

Hopefully after the appointment tomorrow they will be able to add something to the treatment for the leg. I do hope the swelling goes down before Pembrokeshire!

Very best wishes.

Mavis

Dear Sarah

Like everyone else I am so sorry that after such a long, brave battle, Gordon is at last at peace. But so sorry for you and the family. The MM fight must have taken over your life for the past ten years and leave you absolutely exausted.

I am so in awe of those, like Gordon who walked this hard road before us and who helped give…[Read more]

Hi Bridget

I am so glad something is going your way after such a rotten few months.
Long may your improvement last. Who knows, those size 12s may get another airing eventually.

I always appreciate your obvious concerna and support of others.

Love

Mavis