Hi Dai

Do hope you got some satisfaction today. So frustrating that your treatment is going well, but that it is your leg that is setting you back.

All the best.

Mavis

Dear Sharon

Just caught up with your post. So sorry you are having such a rotten time with the CTD. Do hope you get an appointment soon and get the help and advice you need.

It's a very hard path you are having to tread so be as kind and forgiving to yourself as you can be, and as others say, make sure you are getting support with the…[Read more]

Hello Ivan

Just caught your post. Sorry about the diagnosis. Do hope you have had a good hospital visit today and felt comfortable with the Consultant.

If they said you should just "wait and see" with regular check ups, don't feel they are fobbing you off. For some folk this is the way ahead and the months without drastic treatment are to…[Read more]

Hi Dai

It sounds as if quality of life is slightly better for you. Isn't it difficult sometimes to know what is MM and what is down to other factors. Worse when you are older, I can tell you – because then you get "of course, at your age…!"

Do hope reduced level of Velcade does some good and you are able to finish the Course.

Enjoy…[Read more]

Hi Gill

Like everyone else i am hoping and praying the infection is now under control.

Best wishes to you and Stephen.

Mav is

Hi all

Have one of you who know Gaye better thought to try and contact her off group?

Do hope all is well with her.

Mavis

Hi Peggy

Lots of luck with the trial – let's hope it kicks te dreaded MM into touch very quickly.

Very best wishes.

Mavis

Hi all of your wonderful Carers!

Just wanted you to know what a marvellous job you are all doing. I have always thought it must be worse being the one watching on.

Makes me appreciate my own hubby even if we all like to moan from time to time!

Love

Mavis x

Hi Pam

It must be good news that the MM isn't in your Dad's bones as this is what causes everyon with it so much pain, and because of your Dad's other difficulties would be very difficult to get under control.

I do hope that when the Haematologist looks at his other results they can find some treatment for any symptons without going down the…[Read more]

Hi Jet

Though I can't offer anything re SCT, not having had one, I just wanted to say that I will be thinking of you at the beginning of August. I think the fact that basically you are so fit to start with will go well for you.

I also like the new look! As Gloria says, you are lucky to ahve such good bone structure.

I shall look forward…[Read more]

Dear Dai and Scott

I'm glad to hear you ahve both got good partial remissions. Hope it makes all the miseries worth while.

I will cheer you on Scott and watch your progress as I too am not overjoyed by the thought of SCT.

Dai, I'm sorry you have to have more treatment, but at least it is well in the right dirrection and looks like Full…[Read more]

Dear Pam

I'm so sorry you and your family are having such a distressing time with the potential diagnoses of your father. I do hope that someone on the site will be able to answer your specific question, but I wanted to point out that not everyone with myeloma needs immediate treatment, so it may be possible that it will just be the results of…[Read more]

Dear Dai

I'm so sorry "you were "really" ill"! You do seem to have gone through the wars lately. Still, if the temperature and all that followed means you get a rest from the Velcade, and then are hopefully approaching the last round, it isn't all bad.

I once had a junior Doctor try about twelve times to get a canula into my arm so I…[Read more]

Hi John

I am also in a "wait and see" stage having been diagnosed last October following the discovery of a tumour on my spine which was removed in LGI and followed by Radiotherepy. I am 66yrs old.

I am very happy to wait and I am in no hurry to begin chemotherepy – although I do take Bonefos. Having read very widely around the subject…[Read more]

Hi

Thank you for this. Just the information I needed.

Mavis

Hi Sarah

So sorry to hear that Gordon's SCT hasn't worked. Thank goodness there are more options about these days. Fingers crossed that they find a good combination that works.

All good woshes.

Mavis

Hi Gill

Just to say we will all be rooting for you.

Keep strong.

Mavis

Hi Kay

Just wanted to send good wishes. Hope your wigs prove a knock-out!

Love Mavis

Hi Peter

Don't know if you read the American Site "Myeloma Beacon" but they were sugesting that it isn't licensed for all US yet, but said UK would follow. You do wonder why things take so long when it is obviously going to make things better for all of you on Velcad.

Take care.

Mavis

Hi Dai

I can really feel your frustration. No, it is not too much to ask for that someone reads your feed-bcak sheets and has a sound conversation with you. It doesn't sound like rocket science you are asking for. And is it really that Drs are so busy? I don't know, but do get the feeling that Drs find time to do what they think is…[Read more]